'Who, When, How to Share': Pilot study of a new disclosure decision-making programme for autistic adults.

IF 5.2 2区心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Autism Pub Date : 2024-08-01 Epub Date: 2024-02-10 DOI:10.1177/13623613231221685

Emeline Han, Katrina Scior, Kana Grace, Eric Heath, Simone Dufresne, Laura Crane

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Abstract

Lay abstract: 'Who, When, How to Share' is a new programme that aims to support autistic adults in making decisions around sharing their autistic identity with others. The programme involves working through a self-help guide independently over 3 weeks with optional peer support. We wanted to find out if autistic adults would join the programme and find it useful. Thirty-two autistic adults took part in the programme and 19 of them completed it. Most participants who completed the programme liked the programme and found it helpful, but some felt that they needed more time and support to complete it. They suggested that the programme would be more accessible if it was more interactive, such as including videos and other ways to gain feedback on their progress. Surveys filled in by participants before and after the programme suggested that they became more confident and less stressed about sharing their autistic identity with others, but some felt they still needed to build more confidence in order to handle negative attitudes from others. More work is needed to improve and test the programme further.

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谁、何时、如何分享"：针对自闭症成人的新披露决策方案试点研究。

内容提要："与谁分享、何时分享、如何分享 "是一项新计划，旨在帮助患有自闭症的成年人做出与他人分享其自闭症身份的决定。该计划包括在 3 周内独立完成自助指南，并可选择同伴支持。我们希望了解成年自闭症患者是否愿意参加该计划，并认为该计划有用。32 名成年自闭症患者参加了该计划，其中 19 人完成了计划。大多数完成计划的参与者都喜欢该计划并认为它很有帮助，但有些人认为他们需要更多的时间和支持来完成计划。他们建议，如果该计划能有更多的互动，比如包括视频和其他获得进展反馈的方式，就会更容易接受。参与者在课程前后填写的调查表显示，他们在与他人分享自己的自闭症身份时变得更加自信，压力也更小了，但有些人认为他们仍然需要建立更多的自信，以应对他人的负面态度。还需要做更多的工作来进一步改进和测试该计划。

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来源期刊

Autism PSYCHOLOGY, DEVELOPMENTAL-

CiteScore

9.80

自引率

11.50%

发文量

160

期刊介绍： Autism is a major, peer-reviewed, international journal, published 8 times a year, publishing research of direct and practical relevance to help improve the quality of life for individuals with autism or autism-related disorders. It is interdisciplinary in nature, focusing on research in many areas, including: intervention; diagnosis; training; education; translational issues related to neuroscience, medical and genetic issues of practical import; psychological processes; evaluation of particular therapies; quality of life; family needs; and epidemiological research. Autism provides a major international forum for peer-reviewed research of direct and practical relevance to improving the quality of life for individuals with autism or autism-related disorders. The journal''s success and popularity reflect the recent worldwide growth in the research and understanding of autistic spectrum disorders, and the consequent impact on the provision of treatment and care. Autism is interdisciplinary in nature, focusing on evaluative research in all areas, including: intervention, diagnosis, training, education, neuroscience, psychological processes, evaluation of particular therapies, quality of life issues, family issues and family services, medical and genetic issues, epidemiological research.