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Sleep and activity patterns in autism. 自闭症患者的睡眠和活动模式。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-05 DOI: 10.1177/13623613251413538
J Dylan Weissenkampen, Arpita Ghorai, Thaise Nr Carneiro, Maria Fasolino, Brielle N Gehringer, Maya Rajan, Holly C Dow, Shriya Kunatharaju, Till Roenneberg, Ronnie Sebro, Daniel J Rader, Brendan T Keenan, Laura Almasy, Edward S Brodkin, Maja Bućan
<p><p>Autism is a heritable neurodevelopmental condition marked by impaired social interaction, repetitive behavior, and co-occurring conditions. Sleep disturbances are common in autism. This study uses low-cost wearable devices to compare sleep, physical activity, and circadian behavior in autistic adults and their non-autistic relatives. We recruited 318 autistic individuals and 130 family members, collecting accelerometer data over 3 weeks (8249 days). Using a data-driven approach, we identified actimetry-derived features associated with autism. We examined 308 traits using the elastic net algorithm and linear mixed effects regressions. We identified 52 actimetry measures associated with autism (area under the curve: 0.812; confidence interval: 0.761-0.862), validated in a test set (area under the curve: 0.756; confidence interval: 0.700-0.813). Both mean and day-to-day variability in several measures (e.g., time spent sedentary, total light physical activity) were associated with autism. In autistic individuals, reduced physical activity during wake was more strongly associated with shorter sleep time than in non-autistic relatives (likelihood ratio: 41.6; p = 1.13e-10). Reduced physical activity in autistic individuals was linked to increased social impairment, as measured by the Social Responsiveness Scale. Long inactivity periods and lower physical activity levels were associated with autism, correlating with less sleep and later sleep onset. Interventional studies are needed to explore if improving sleep and physical activity can improve the quality of life for autistic individuals.Lay AbstractAutistic individuals frequently report problems with their sleep, though what aspects of sleep are most affected is not well understood. In this study, we recruited 318 adult autistic participants without intellectual disability and 130 of their non-autistic family members to measure their sleep, physical activity, and daily routines. Study participants wore accelerometer-based wrist-worn devices over 3 consecutive weeks to record their movement and activity. In total, 154 distinct physical activity, sleep, and behavioral traits were identified from the recordings, 52 of which were found to associate with autism. Many of these traits were related to physical activity, where autistic individuals were more likely to be less active for longer periods and have lower overall physical activity levels. Long periods of inactivity also associated with less sleep, with a stronger association in those with autism. For example, for every hour of inactivity, autistic participants had on average ~23 min less of sleep compared to ~17 min in their family members. Autistic individuals with lower levels of physical activity showed higher social impairment as measured by the Social Responsiveness Scale. Overall, lower physical activity may impair sleep and worsen the core features of autism. Interventional studies aimed to increase physical activity may improve the qu
自闭症是一种遗传性的神经发育疾病,其特征是社会交往障碍、重复行为和共同发生的疾病。睡眠障碍在自闭症患者中很常见。这项研究使用低成本的可穿戴设备来比较自闭症成年人和他们非自闭症亲属的睡眠、身体活动和昼夜节律行为。我们招募了318名自闭症患者和130名自闭症家庭成员,在3周(8249天)的时间里收集加速度计数据。使用数据驱动的方法,我们确定了与自闭症相关的活动衍生特征。我们使用弹性网络算法和线性混合效应回归分析了308个性状。我们确定了52项与自闭症相关的活动测量(曲线下面积:0.812;置信区间:0.761-0.862),并在一个测试集中得到验证(曲线下面积:0.756;置信区间:0.700-0.813)。在几项测量中(例如,久坐的时间,总轻度体力活动),平均和日常变化都与自闭症有关。在自闭症个体中,与非自闭症亲属相比,醒着时体力活动减少与睡眠时间缩短的关系更为密切(似然比:41.6;p = 1.13e-10)。根据社会反应量表(social Responsiveness Scale)的测量,自闭症患者体力活动的减少与社交障碍的增加有关。长时间不活动和较低的体力活动水平与自闭症有关,与睡眠不足和晚睡有关。需要进行干预性研究,以探索改善睡眠和体育活动是否能改善自闭症患者的生活质量。自闭症患者经常报告他们的睡眠问题,尽管睡眠的哪些方面受影响最大还不清楚。在这项研究中,我们招募了318名没有智力障碍的成年自闭症参与者和130名他们的非自闭症家庭成员来测量他们的睡眠、身体活动和日常生活。研究参与者连续三周佩戴基于加速计的腕带设备来记录他们的运动和活动。总共有154种不同的身体活动、睡眠和行为特征从录音中被识别出来,其中52种被发现与自闭症有关。这些特征中的许多都与身体活动有关,自闭症患者更有可能长时间不活跃,整体身体活动水平也较低。长时间不活动也与睡眠不足有关,在自闭症患者中这种关联更强。例如,每一个小时的不活动,自闭症参与者平均少睡23分钟,而他们的家庭成员平均少睡17分钟。根据社会反应能力量表的测量,身体活动水平较低的自闭症患者表现出较高的社会障碍。总的来说,较低的体力活动可能会损害睡眠,使自闭症的核心特征恶化。旨在增加身体活动的干预性研究可能会改善自闭症患者的生活质量。
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引用次数: 0
Discrepancies between feeling and expressing: Perceptions of autistic and non-autistic emotional expressions by non-autistic observers. 感觉和表达之间的差异:非自闭症观察者对自闭症和非自闭症情绪表达的感知。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-03 DOI: 10.1177/13623613251415129
Sarah J Foster, Danny Dunn, Siddhi Patel, Amy E Pinkham, Robert A Ackerman, Noah J Sasson
<p><p>Non-autistic observers often interpret autistic emotional expressions more negatively, though it is unclear whether this reflects observer bias or genuine differences in autistic people's emotional experience and expression. To examine this, 20 autistic and 20 non-autistic adults reported the intensity of their felt emotion while re-experiencing video-recorded events eliciting mild and strong happiness, sadness, and anger. A total of 379 non-autistic observers, half blind to diagnostic status, viewed the recordings and identified the emotion and its intensity. iMotions emotion recognition software also classified the emotional valence of the expressions. Overall, autistic and non-autistic participants reported comparable levels of felt emotion, although differences emerged in how their expressions were perceived. Observers more accurately identified happiness in non-autistic participants and sadness and anger in autistic participants. They also judged autistic participants as expressing sadness and anger more intensely. Informing observers of the diagnostic status of participants largely did not modulate effects. iMotions more often classified mild autistic expressions as neutral and mild non-autistic expressions as positive. Because observer and iMotion findings emerged despite autistic and non-autistic participants not differing in felt emotion, they suggest that non-autistic observers and emotion recognition algorithms differentially interpret authentic autistic and non-autistic emotional expressions, which may contribute to misinterpretations of autistic people.Lay AbstractAutistic people may express emotions in ways that differ from non-autistic people, and non-autistic people sometimes misinterpret them as flat, overly intense, or hard to read. This misunderstanding can affect how autistic people are judged in everyday life, including in job interviews, friendships, and other important situations. In this study, we wanted to know how well non-autistic people-and emotion recognition software-can identify emotions on the faces of autistic and non-autistic people when they are actually feeling emotion. To do this, autistic and non-autistic adults were videotaped while recounting personal experiences that made them feel mild and strong happiness, sadness, and anger. They rated how strongly they felt each emotion during the videotaping. Later, short video clips of their facial expressions were shown (without sound) to a large group of non-autistic viewers, who identified the emotion and rated its intensity. Some viewers were told whether the person in the video was autistic or not. We found that autistic and non-autistic people reported feeling emotions at comparable levels, but non-autistic viewers were better at recognizing happy expressions in non-autistic people compared to autistic people, and better at recognizing sad and angry expressions in autistic people compared to non-autistic people. Viewers tended to rate autistic expressions
非自闭症观察者往往更消极地解读自闭症患者的情绪表达,尽管尚不清楚这是否反映了观察者的偏见,还是自闭症患者的情绪体验和表达的真正差异。为了验证这一点,20名自闭症和20名非自闭症的成年人报告了他们在重新体验视频记录的事件时感受到的情绪强度,这些事件引发了轻微和强烈的快乐、悲伤和愤怒。共有379名非自闭症观察者,对诊断状态半盲,观看记录并识别情绪及其强度。imotion情绪识别软件还对表情的情绪效价进行了分类。总体而言,自闭症和非自闭症参与者报告的情绪感受水平相当,尽管他们的表达方式有所不同。观察者更准确地识别出非自闭症参与者的快乐和自闭症参与者的悲伤和愤怒。他们还认为自闭症参与者更强烈地表达悲伤和愤怒。告知观察者参与者的诊断状态在很大程度上没有调节效果。imotion更常将轻度自闭症的表达归类为中性,而将轻度非自闭症的表达归类为积极。尽管自闭症和非自闭症参与者的感受情绪没有差异,但观察者和iMotion的研究结果表明,非自闭症观察者和情绪识别算法对自闭症和非自闭症真实情绪表达的解读存在差异,这可能导致对自闭症患者的误解。自闭症患者表达情感的方式可能与非自闭症患者不同,而非自闭症患者有时会将其误解为平淡、过于强烈或难以阅读。这种误解会影响人们在日常生活中对自闭症患者的评价,包括在工作面试、友谊和其他重要场合。在这项研究中,我们想知道非自闭症患者和情绪识别软件在自闭症患者和非自闭症患者真正感受到情绪时,能在多大程度上识别出他们脸上的情绪。为了做到这一点,自闭症和非自闭症的成年人在讲述个人经历时被录了下来,这些经历使他们感到轻微和强烈的快乐、悲伤和愤怒。他们对自己在录像过程中感受到的每种情绪的强烈程度进行了评分。之后,他们的面部表情的短视频片段(没有声音)被播放给一大群非自闭症的观众,他们识别出这种情绪并对其强度进行评级。一些观众被告知视频中的人是否患有自闭症。我们发现,自闭症患者和非自闭症患者报告的情绪感受水平相当,但与自闭症患者相比,非自闭症患者的观众更善于识别非自闭症患者的快乐表情,而与非自闭症患者相比,非自闭症患者更善于识别自闭症患者的悲伤和愤怒表情。观众倾向于认为自闭症患者的表情,尤其是悲伤和愤怒,比非自闭症患者的表情更强烈,尽管计算机软件认为自闭症患者的表情比非自闭症患者的表情更中性。这些结果表明,自闭症患者的情感感受与非自闭症患者一样深刻,但表达方式和非自闭症患者偏见的差异可能导致误解。这些发现突出表明,需要更多地认识到自闭症患者的沟通差异,并减少对自闭症患者的误解。
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引用次数: 0
Transgender and gender-diverse autistic adolescents are at elevated risk of depression. 跨性别和性别多样化的自闭症青少年患抑郁症的风险较高。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-01 Epub Date: 2025-12-06 DOI: 10.1177/13623613251396712
Joseph Pereira, Natalia Ramos, LeeAnne Green Snyder, Jeremy Veenstra-VanderWeele, Amandeep Jutla
<p><p>Autistic people are more likely to be transgender and gender diverse than the general population. Furthermore, co-occurring trait-level autism and transgender and gender-diverse identity are associated with symptoms of depression and anxiety, and autistic adolescents who identify as transgender and gender diverse have more internalizing behaviors than both non-transgender and gender-diverse autistic adolescents and non-autistic transgender and gender-diverse adolescents. However, no study has yet examined the extent to which transgender and gender-diverse identity predicts specific co-occurring mental health diagnoses in autistic adolescents. In a sample of 9027 autistic adolescents aged 13 to 17 drawn from the Simons Powering Autism Research for Knowledge cohort, 36 of whom we identified as transgender and gender diverse, we estimated univariate models of transgender and gender-diverse identity as a predictor of individual diagnoses. Depression, but no other diagnosis, remained statistically significant after adjustment for multiple comparisons. In a multiple regression model that incorporated known risk factors for adolescent depression (e.g. language impairment and disturbed sleep), transgender and gender-diverse identity remained a significant predictor (odds ratio: 4.01, 95% confidence interval: 1.87-8.67, <i>p</i> = 5.94 × 10<sup>-4</sup>) with an effect size at least as strong as that of a depression family history. This suggests transgender and gender-diverse autistic adolescents, who often face stigma and discrimination, are particularly vulnerable to depression.Lay abstract"Transgender and gender diverse" (TGD) people have gender identities that differ from the sex they were assigned at birth. Many autistic people have a TGD identity. Autistic adolescents who are TGD have more "internalizing symptoms," which include symptoms of depression and anxiety, than autistic adolescents who are not TGD. In this study, we examined a group of 9027 autistic adolescents, 36 of whom had a TGD identity, to determine which, if any, mental health diagnoses would be associated with TGD identity, and whether those associations would remain even after accounting for known risk factors for a diagnosis. We found that depression, but no other diagnosis, was associated with TGD identity. This association remained even when accounting for known risk factors for depression, and in fact, TGD identity was associated with depression at least as strongly as a family history of that diagnosis. This strong association is perhaps not surprising. TGD adolescents often face stigma, social rejection, and discrimination, which can lead to depression. Autistic adolescents can face similar difficulties. Autistic youth who also have a TGD identity may therefore be at particular risk of developing depression. Our study highlights that providers who work with autistic youth in the community should be aware of this risk so they can identify and treat depression when it is p
与一般人群相比,自闭症患者更有可能是跨性别者和性别多样化者。此外,共同发生的特质水平自闭症、跨性别和性别多元化认同与抑郁和焦虑症状相关,并且自认为跨性别和性别多元化的自闭症青少年比非跨性别和性别多元化的自闭症青少年和非自闭症跨性别和性别多元化的自闭症青少年有更多的内化行为。然而,目前还没有研究调查跨性别和性别多元化身份在多大程度上预测自闭症青少年中共同发生的特定心理健康诊断。从Simons Powering Autism Research for Knowledge队列中抽取了9027名13至17岁的自闭症青少年样本,其中36人被确定为跨性别和性别多元化,我们估计跨性别和性别多元化身份的单变量模型可以作为个体诊断的预测因子。在多重比较调整后,抑郁症,但没有其他诊断,仍然具有统计学意义。在纳入已知青少年抑郁症危险因素(如语言障碍和睡眠障碍)的多元回归模型中,跨性别和性别多元认同仍然是一个显著的预测因子(优势比:4.01,95%置信区间:1.87-8.67,p = 5.94 × 10-4),其效应大小至少与抑郁症家族史一样强。这表明,经常面临耻辱和歧视的跨性别和性别多样化自闭症青少年特别容易患抑郁症。“跨性别者和多元性别”(TGD)人的性别认同与他们出生时的性别不同。许多自闭症患者都有TGD身份。与非TGD的自闭症青少年相比,患有TGD的自闭症青少年有更多的“内化症状”,包括抑郁和焦虑症状。在这项研究中,我们检查了9027名自闭症青少年,其中36人有TGD身份,以确定哪些(如果有的话)心理健康诊断与TGD身份相关,以及即使在考虑了已知的诊断风险因素后,这些关联是否仍然存在。我们发现抑郁症与TGD身份有关,但没有其他诊断。即使考虑到已知的抑郁症风险因素,这种关联仍然存在,事实上,TGD身份与抑郁症的相关性至少与该诊断的家族史一样强。这种强烈的联系也许并不令人惊讶。TGD青少年经常面临耻辱、社会排斥和歧视,这可能导致抑郁。自闭症青少年也会面临类似的困难。因此,具有TGD身份的自闭症青少年可能特别容易患抑郁症。我们的研究强调,在社区中与自闭症青少年一起工作的提供者应该意识到这种风险,这样他们就可以在抑郁症出现时识别和治疗抑郁症。未来的研究应该进一步调查自闭症患者抑郁和TGD身份之间的关系,以确定提供者和照顾者如何支持这些年轻人。
{"title":"Transgender and gender-diverse autistic adolescents are at elevated risk of depression.","authors":"Joseph Pereira, Natalia Ramos, LeeAnne Green Snyder, Jeremy Veenstra-VanderWeele, Amandeep Jutla","doi":"10.1177/13623613251396712","DOIUrl":"10.1177/13623613251396712","url":null,"abstract":"&lt;p&gt;&lt;p&gt;Autistic people are more likely to be transgender and gender diverse than the general population. Furthermore, co-occurring trait-level autism and transgender and gender-diverse identity are associated with symptoms of depression and anxiety, and autistic adolescents who identify as transgender and gender diverse have more internalizing behaviors than both non-transgender and gender-diverse autistic adolescents and non-autistic transgender and gender-diverse adolescents. However, no study has yet examined the extent to which transgender and gender-diverse identity predicts specific co-occurring mental health diagnoses in autistic adolescents. In a sample of 9027 autistic adolescents aged 13 to 17 drawn from the Simons Powering Autism Research for Knowledge cohort, 36 of whom we identified as transgender and gender diverse, we estimated univariate models of transgender and gender-diverse identity as a predictor of individual diagnoses. Depression, but no other diagnosis, remained statistically significant after adjustment for multiple comparisons. In a multiple regression model that incorporated known risk factors for adolescent depression (e.g. language impairment and disturbed sleep), transgender and gender-diverse identity remained a significant predictor (odds ratio: 4.01, 95% confidence interval: 1.87-8.67, &lt;i&gt;p&lt;/i&gt; = 5.94 × 10&lt;sup&gt;-4&lt;/sup&gt;) with an effect size at least as strong as that of a depression family history. This suggests transgender and gender-diverse autistic adolescents, who often face stigma and discrimination, are particularly vulnerable to depression.Lay abstract\"Transgender and gender diverse\" (TGD) people have gender identities that differ from the sex they were assigned at birth. Many autistic people have a TGD identity. Autistic adolescents who are TGD have more \"internalizing symptoms,\" which include symptoms of depression and anxiety, than autistic adolescents who are not TGD. In this study, we examined a group of 9027 autistic adolescents, 36 of whom had a TGD identity, to determine which, if any, mental health diagnoses would be associated with TGD identity, and whether those associations would remain even after accounting for known risk factors for a diagnosis. We found that depression, but no other diagnosis, was associated with TGD identity. This association remained even when accounting for known risk factors for depression, and in fact, TGD identity was associated with depression at least as strongly as a family history of that diagnosis. This strong association is perhaps not surprising. TGD adolescents often face stigma, social rejection, and discrimination, which can lead to depression. Autistic adolescents can face similar difficulties. Autistic youth who also have a TGD identity may therefore be at particular risk of developing depression. Our study highlights that providers who work with autistic youth in the community should be aware of this risk so they can identify and treat depression when it is p","PeriodicalId":8724,"journal":{"name":"Autism","volume":" ","pages":"316-328"},"PeriodicalIF":5.6,"publicationDate":"2026-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12694976/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145686545","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"心理学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Schools Unified in Neurodiversity Collaborative: Co-designing a program to enhance educator knowledge and efficacy supporting children with neurodevelopmental disabilities. 学校神经多样性合作:共同设计一个项目,以提高教育工作者的知识和效力,支持有神经发育障碍的儿童。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-01 Epub Date: 2025-11-13 DOI: 10.1177/13623613251388627
Kelly B Beck, Amy Ionadi, Timothy Wagner, Daniel Beck, Rachel Harris, Stephen Edwards, Donna Westbrooks-Martin, Jamie Upshaw, Andre Rhone, Taylor Kesich, Allie Kleinschmidt, Carla A Mazefsky
<p><p>Autistic and other neurodivergent youth face social, sensory, and environmental challenges at school that negatively impact learning and well-being. Yet, most educators are not trained in neurodevelopmental disabilities, leaving them with outdated knowledge and limited confidence about how to support neurodivergent youth at school. In a two-phase project, we sought to (1) co-design a comprehensive professional development training for school educators and (2) pilot test this training in one US public school district. First, we used community-based participatory research methods to form an interdisciplinary team of neurodivergent educators and autistic community members. We then used human-centered design methods to iteratively design the Schools Unified in Neurodiversity professional development training for US K-12 educators. In Phase 2, we demonstrated feasibility and acceptability of the resulting training in a sample of 192 educators, grades K-12. Significant improvements were noted in educator knowledge and self-efficacy in pre- to post-assessments. Together, community-based participatory research and human-centered design provided a promising community-driven approach to development, resulting in a training that was well received and conducive to implementation. Future work will test the effects of the Schools Unified in Neurodiversity training on youth outcomes and explore the role of professional learning communities to support implementation and sustain change.Lay AbstractNeurodivergent children are children who have neurodevelopmental or cognitive disabilities (e.g. autism spectrum disorder, attention deficit hyperactivity disorder, brain injury, dyslexia, Tourette's, and other neurological disorders). Neurodivergent children have heightened risk for mental health problems and poor learning outcomes compared to their peers. Sadly, school experiences contribute to these poor outcomes. Every day, neurodivergent children face a multitude of barriers and negative events at school that exacerbate their neurocognitive, sensory, and social communication differences, and even make them feel unsafe. Educators do not have the knowledge of how to support neurodivergent children and cannot practically provide individualized supports to each neurodivergent child in their classroom. A new approach is needed to ensure that school is a positive, enriching experience instead of the stressful, negative experience that it is for most neurodivergent students. This project aimed to transform schools for neurodivergent children by giving public school educators the knowledge they need to create a safe and inclusive school climate for all children. We developed the Schools Unified in Neurodiversity training with a group of researchers, teachers, counselors, principals, administrators, and advocates all with personal connections to neurodiversity. The Schools Unified in Neurodiversity training program teaches a series of practical tools to design classro
自闭症和其他神经分化青少年在学校面临着社会、感官和环境方面的挑战,这些挑战对学习和健康产生了负面影响。然而,大多数教育工作者没有接受过神经发育障碍方面的培训,这使得他们对如何在学校支持神经分化青少年的知识过时,信心有限。在一个分两阶段的项目中,我们试图(1)为学校教育工作者共同设计一个全面的专业发展培训,(2)在一个美国公立学区对该培训进行试点测试。首先,我们采用基于社区的参与式研究方法,组建了一个由神经发散性教育者和自闭症社区成员组成的跨学科团队。然后,我们使用以人为本的设计方法迭代设计了美国K-12教育工作者的神经多样性专业发展培训学校统一。在第二阶段,我们对192名K-12年级的教育工作者样本进行了可行性和可接受性的论证。教育工作者的知识和自我效能感在前后评估中均有显著提高。以社区为基础的参与性研究和以人为本的设计共同提供了一种有希望的社区驱动的发展方法,从而产生了一种广受欢迎并有助于实施的培训。未来的工作将测试“统一学校神经多样性培训”对青年成果的影响,并探索专业学习社区在支持实施和维持变革方面的作用。神经发散性儿童是指有神经发育或认知障碍的儿童(如自闭症谱系障碍、注意缺陷多动障碍、脑损伤、阅读障碍、妥瑞氏症和其他神经系统疾病)。与同龄人相比,神经分化儿童患心理健康问题和学习成绩差的风险更高。可悲的是,学校经历导致了这些糟糕的结果。每天,神经分化儿童在学校面临着大量的障碍和负面事件,这些障碍和负面事件加剧了他们的神经认知、感官和社会沟通差异,甚至使他们感到不安全。教育工作者不知道如何支持神经分化儿童,也无法在课堂上为每个神经分化儿童提供个性化的支持。我们需要一种新的方法来确保学校是一个积极的、丰富的经历,而不是像大多数神经分化的学生那样充满压力、消极的经历。该项目旨在通过向公立学校教育工作者提供为所有儿童创造安全和包容的学校环境所需的知识,为神经分化儿童改造学校。我们与一群研究人员、教师、辅导员、校长、管理人员和倡导者一起开发了“神经多样性联合学校”培训,他们都与神经多样性有个人联系。“神经多样性学校统一”培训项目教授了一系列实用工具,以消除不必要的障碍的方式设计教室和教学,使神经多样性儿童在学校取得成功。我们在一个学区测试了联合学校的神经多样性培训项目,有192名教育工作者参加。结果表明,该方案是令人满意的,并提高了他们的知识和信心,以支持他们的神经分化的孩子。未来的工作将测试“学校统一神经多样性培训计划”如何直接帮助神经分化的青少年,以及教师能否在知识和信心方面维持这些积极的变化。
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引用次数: 0
The role of social drivers of health in communication abilities of autistic adolescents and young adults. 健康的社会驱动因素在自闭症青少年和青壮年沟通能力中的作用。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-01 Epub Date: 2025-11-10 DOI: 10.1177/13623613251380448
Teresa Girolamo, Alicia Escobedo, Lindsay Butler, Caroline A Larson, Iván Campos, Kyle Greene-Pendelton

Despite their relevance to outcomes in autism, little is known about how social drivers of health affect communication, especially in transition-aged autistic adolescents and young adults with structural language impairment. This knowledge gap limits our understanding of developmental trajectories and the ability to develop supports. This cross-sectional study examined the role of social drivers of health in the communication abilities of autistic individuals ages 13-30. Participants (N = 73) completed language, nonverbal cognitive assessments, and social drivers of health (sense of community, unmet services, barriers to services) measures. Data were analyzed descriptively and using mixed-effects modeling. More unmet service needs, more barriers to services, and a lower sense of community were associated with greater social communication impairment. In turn, both unmet service needs and barriers to services were negatively associated with functional communication. In regression modeling, language scores contributed to functional communication, and sense of community to social communication impairment. Findings support the relevance of language and social drivers of health in communication. Future work should focus on possible bidirectional relationships between these variables and explore and real-world translation.Lay AbstractWhere people live, work, and spend their time is important. Environments can have more or less services or differ in how much they help people feel like they belong to their community. These parts of the environment are called social drivers of health. Social drivers of health are important for outcomes in autism, but we do not know much about them in autistic teens or young adults. We recruited 73 autistic teens and young adults (ages 13-30 years) and 52 caregivers to our study. Autistic teens and young adults did language and NVIQ tests on Zoom. Autistic teens, young adults, and caregivers also answered questionnaires. Sense of community was important for social communication impairment, and language was important for real-world communication. These findings tell us two things. First, thinking about how to create supportive communication environments for autistic teens and adults is important. Second, understanding how social drivers of health shape outcomes is important. In the future, we should focus on how improving environments can help autistic teens and adults meet their communication goals.

尽管它们与自闭症的结果相关,但人们对健康的社会驱动因素如何影响沟通知之甚少,特别是在过渡年龄的自闭症青少年和患有结构性语言障碍的年轻人中。这种知识差距限制了我们对发展轨迹和发展支持能力的理解。本横断面研究考察了13-30岁自闭症个体的社会健康驱动因素在沟通能力中的作用。参与者(N = 73)完成了语言、非语言认知评估和健康的社会驱动因素(社区意识、未满足的服务、服务障碍)措施。对数据进行描述性分析,并使用混合效应建模。更多未满足的服务需求、更多的服务障碍和较低的社区意识与更严重的社会沟通障碍有关。反过来,未满足的服务需求和服务障碍都与功能性沟通负相关。在回归模型中,语言分数对功能性沟通有促进作用,社区意识对社交沟通障碍有促进作用。研究结果支持语言与健康的社会驱动因素在沟通中的相关性。未来的工作应侧重于这些变量之间可能的双向关系,并探索与现实世界的翻译。人们生活、工作和花费时间的地方很重要。环境可以提供或多或少的服务,或者在帮助人们感觉自己属于社区的程度上有所不同。环境的这些部分被称为健康的社会驱动因素。健康的社会驱动因素对自闭症的结果很重要,但我们对自闭症青少年或年轻人的健康驱动因素知之甚少。我们招募了73名自闭症青少年和年轻人(13-30岁)和52名护理人员参与我们的研究。自闭症青少年和年轻人在Zoom上做了语言和NVIQ测试。自闭症青少年、年轻人和照顾者也回答了问卷。社区意识对社会沟通障碍很重要,语言对现实世界的沟通很重要。这些发现告诉我们两件事。首先,思考如何为自闭症青少年和成年人创造支持性的交流环境是很重要的。其次,了解健康的社会驱动因素如何影响结果很重要。在未来,我们应该关注如何改善环境来帮助自闭症青少年和成年人实现他们的交流目标。
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引用次数: 0
Increased prosocial value orientation in autistic adults. 自闭症成人的亲社会价值取向增加。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-01 Epub Date: 2025-10-28 DOI: 10.1177/13623613251385029
Paul Ag Forbes, Gillian Hughes, Leonhard Schilbach, Sarah White, Tobias Kalenscher

Social discounting describes the tendency to give fewer resources to those we feel less close to. Previous work suggests autistic individuals show a flatter decline in generosity towards socially distant others compared with non-autistic participants. We investigated whether this enhanced prosociality towards socially distant others in autism was driven by genuinely higher prosociality or instead a preference for repetitive responding. We measured prosocial preferences in 37 autistic and 38 non-autistic adults using the social value orientation questionnaire, where participants allocated money between themselves and people at six different social distances (e.g. friend vs stranger). We replicated previous findings by showing that autistic adults were more prosocial than non-autistic adults towards more socially distant others. Crucially, these effects were not driven by more repetitive responding in autism, nor by differences in attitudes to money. While autistic people often face challenges navigating their social worlds, our findings reinforce the view that autism is also associated with more prosociality. We argue that differences in fairness norms could drive more prosociality in autism, but this remains to be tested in future work.Lay abstractSharing and giving to others are important for our social relationships. Previous studies show that when given opportunities to share money, autistic and non-autistic people give the same amount of money to people they feel close to, like their friends. However, compared with non-autistic people, autistic people give more money to people they feel less close to, like strangers. In this study, we replicated this finding. Compared with non-autistic participants, autistic participants were more generous to people they did not feel close to. We also found that this increased generosity in autism was not the result of autistic participants responding more repetitively in the task. Autistic and non-autistic participants also showed similar attitudes towards money. We propose that some autistic people could be more generous because they show differences in how they think about fairness. But future studies will need to look at this more closely. We hope that our results can help to change the way people think about social behaviour in autism. While autistic people often face challenges navigating their social worlds, autism can also be associated with more generosity.

社会折扣指的是给那些我们感觉不那么亲近的人提供更少资源的倾向。先前的研究表明,与非自闭症患者相比,自闭症患者对社会疏远的人的慷慨程度下降得更明显。我们调查了自闭症患者对社交距离较远的他人的这种增强的亲社会性是由真正更高的亲社会性驱动的,还是由重复反应的偏好驱动的。我们使用社会价值取向问卷测量了37名自闭症成年人和38名非自闭症成年人的亲社会偏好,参与者在他们自己和六种不同社会距离的人之间分配金钱(例如朋友和陌生人)。我们重复了之前的研究结果,表明自闭症成年人比非自闭症成年人对社交距离更远的人更亲社会。关键是,这些影响不是由自闭症患者更多的重复反应所驱动的,也不是由对金钱态度的差异所驱动的。虽然自闭症患者在社交世界中经常面临挑战,但我们的研究结果强化了自闭症也与更亲社会有关的观点。我们认为,公平规范的差异可能会促使自闭症患者产生更多的亲社会行为,但这仍有待在未来的工作中进行测试。分享和给予对我们的社会关系很重要。先前的研究表明,当有机会分享金钱时,自闭症患者和非自闭症患者给他们感觉亲近的人的钱是一样的,比如他们的朋友。然而,与非自闭症患者相比,自闭症患者会把更多的钱给他们感觉不那么亲近的人,比如陌生人。在这项研究中,我们重复了这一发现。与非自闭症参与者相比,自闭症参与者对他们感觉不亲近的人更慷慨。我们还发现,自闭症患者的慷慨程度增加并不是因为自闭症参与者在任务中做出了更多的重复反应。自闭症和非自闭症参与者对金钱的态度也相似。我们认为,一些自闭症患者可能更慷慨,因为他们对公平的看法有所不同。但未来的研究需要更密切地关注这一点。我们希望我们的研究结果可以帮助改变人们对自闭症患者社会行为的看法。虽然自闭症患者在社交世界中经常面临挑战,但自闭症也可能与更慷慨有关。
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引用次数: 0
Intersectional effects of race and gender on first impressions of Black and White autistic adults. 种族和性别对黑人和白人自闭症成人第一印象的交叉影响。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-01 Epub Date: 2025-11-14 DOI: 10.1177/13623613251389291
Desiree R Jones, Noah J Sasson

Non-autistic adults often harbor negative attitudes about autism and show a reluctance to interact with autistic people. For autistic people with multiple marginalized identities, the compounding effects of stigma based on race and disability may worsen peer attitudes. This study investigated first impressions of Black and White autistic adults made by non-autistic observers. Autistic adults (N = 29) stratified by race (15 Black, 14 White) completed a videotaped semi-structured conversation, and non-autistic raters provided their first impressions of each participant. Black autistic people were rated as more likable and trustworthy, and raters endorsed a greater interest in interacting with them, compared to White autistic people. Evidence of intersectional effects of race, gender, and autism was also observed. White autistic men, but not Black autistic men, were evaluated less favorably than non-male autistic participants, with Black autistic men being evaluated more favorably on some items. These results suggest that the intersection of race and autism may, in some cases, counter stereotypes about Blackness and autism, and that holding multiple marginalized identities can modify the characteristics of peer stigma toward autistic adults.Lay abstractMany non-autistic adults have negative feelings about autism and may not want to interact with autistic people. For people who face more than one kind of discrimination, like being part of a racial minority and being disabled, a combination of racism and ableism might make others' opinions even more negative. This study looked at how people's race, gender, and how others judge them are connected when people view videos of Black and White autistic adults. In the first part of the study, 29 autistic adults (15 Black, 14 White) had a conversation with the main researcher, which was recorded on video. In the second part, people who were not autistic watched these videos and shared their thoughts about each person. The results showed that Black autistic people were seen as more likable and trustworthy, and the people watching the videos were more interested in getting to know them compared to White autistic people. The study also found that race, gender, and autism together influenced how people were judged. Black autistic men were often judged similarly to, or better than, non-male participants, while White autistic men were judged less positively than non-male participants. This means that having more than one identity that is discriminated against can change the ways that people view autistic adults, such as allowing Black autistic men to avoid common stereotypes.

非自闭症的成年人通常对自闭症持消极态度,不愿与自闭症患者互动。对于具有多重边缘身份的自闭症患者来说,基于种族和残疾的耻辱的复合效应可能会使同伴态度恶化。本研究调查了非自闭症观察者对黑人和白人自闭症成年人的第一印象。29名自闭症成年人(15名黑人,14名白人)按种族分层,完成了一段半结构化的谈话录像,非自闭症评分者提供了他们对每个参与者的第一印象。与白人自闭症患者相比,黑人自闭症患者被认为更可爱、更值得信赖,评分者认为与他们互动更有兴趣。种族、性别和自闭症交叉影响的证据也被观察到。白人自闭症男性,而非黑人自闭症男性,比非男性自闭症参与者的评价差,黑人自闭症男性在某些项目上的评价更有利。这些结果表明,在某些情况下,种族和自闭症的交集可能会推翻关于黑人和自闭症的刻板印象,并且拥有多个边缘身份可以改变对自闭症成年人的同伴耻辱特征。许多非自闭症的成年人对自闭症有负面的感觉,可能不想与自闭症患者交往。对于那些面临不止一种歧视的人来说,比如作为少数民族的一员和残疾人,种族主义和残疾主义的结合可能会让别人的看法更加负面。这项研究着眼于当人们观看黑人和白人自闭症成年人的视频时,人们的种族、性别以及他人对他们的评价是如何联系在一起的。在研究的第一部分,29名自闭症成年人(15名黑人,14名白人)与主要研究人员进行了对话,并录制了视频。在第二部分,非自闭症患者观看了这些视频,并分享了他们对每个人的看法。结果显示,黑人自闭症患者被认为更可爱、更值得信赖,观看视频的人比白人自闭症患者更有兴趣了解他们。该研究还发现,种族、性别和自闭症共同影响了人们如何被评判。黑人自闭症患者通常被认为与非男性参与者相似,或者比非男性参与者更好,而白人自闭症患者被认为不如非男性参与者积极。这意味着拥有不止一种被歧视的身份可以改变人们看待自闭症成年人的方式,例如允许黑人自闭症男性避免常见的刻板印象。
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引用次数: 0
Is neurodiversity a Global Northern White paradigm? 神经多样性是全球北方白人的范式吗?
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-01 Epub Date: 2024-09-21 DOI: 10.1177/13623613241280835
Vishnu Kk Nair, Warda Farah, Mildred Boveda
<p><p>In this article, we engage in a critical conversation with scholars of neurodiversity. We emphasize the transformative role neurodiversity has in creating a crucial space for scholarship to emerge within the academy centering autistic voices. Despite this advancement, research addressing neurodiversity has overlooked and failed to engage with important issues of geography (Global South) and intersectionality (racialized neurodivergent other in the Global North). The first issue of geography relates to the marginalization of Global Southern epistemologies in the neurodiversity scholarship. We ask, why has neurodiversity failed to acknowledge Indigenous and Southern epistemologies and consider the evolution of relatively new Northern scholarship as the epicenter of knowledge production? Second, we highlight how intersectional experiences of the racialized other within the Global North are underrepresented and excluded from the neurodiversity scholarship. Homogenization of neurodiversity as "White Neurodiversity Movement" destabilizes the social justice and emancipatory goals of the movement. In highlighting these issues, we call attention toward knowledge systems that exist within the Global South, marginalization of scholarship and voices within neurodiversity scholarship and accentuate the need for this academic community to commit to a serious scholarship rooted and the intersectional experiences of racialized neurodivergent individuals.Lay AbstractScholarship addressing neurodiversity has made enormous progress in challenging and providing alternative narratives to the dominant frameworks of medical model. Although this is a necessary and important development, scholars need to think and act beyond the immediate local context of theory generation (Global North-mainly the United Kingdom and the United States) and examine its impact on the racialized neurodivergent individuals of the Global Majority. This article will provide a decolonial framework that has been missing in the neurodiversity scholarship. The arguments presented in the article aligns well with the goals of critical autism studies and will further inform the knowledge in this area. Through a decolonial lens, this article brings the crucial issue of knowledge production outside of Global Northern countries, specifically, knowledge systems from the Global South that have parallels with neurodiversity. The article frames neurodiversity as part of an interconnected knowledge continuum rather than considering Global North alone as the only loci of knowledge production. Furthermore, it highlights the lack of focus on the intersections between racialisation and neurodivergence and the implications of this for the racialized neurodivergent individuals of the global majority. The article provides new avenues for theoretical discourses to emerge within the academy. It will have important research implications in relation to how neurodiversity will be viewed and framed outside Global No
内容提要:针对神经多样性的学术研究在挑战主流医学模式框架并提供替代叙述方面取得了巨大进步。尽管这是一个必要且重要的发展,但学者们的思考和行动需要超越理论产生的直接本地背景(全球北方--主要是英国和美国),并审视其对全球多数种族化的神经变异个体的影响。本文将提供神经多样性学术研究中一直缺失的非殖民框架。文章中提出的论点与批判性自闭症研究的目标不谋而合,并将进一步丰富该领域的知识。通过非殖民主义视角,本文提出了全球北方国家以外知识生产的关键问题,特别是与神经多样性有相似之处的全球南方国家的知识体系。文章将神经多样性视为相互关联的知识连续体的一部分,而不是将全球北方国家单独视为知识生产的唯一地点。此外,文章还强调了缺乏对种族化与神经变异之间交叉关系的关注,以及这种交叉关系对全球大多数种族化神经变异个体的影响。这篇文章为学术界的理论论述提供了新的途径。它将对研究如何看待神经多样性以及如何在全球北方国家之外构建神经多样性框架产生重要影响。文章强调了参与交叉和跨学科研究以及与神经多样性、批判性自闭症研究和残疾批判性种族研究的学者建立重要联系的重要性。
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引用次数: 0
Late bloomers: Exploring the emotional landscape of Australian women's experiences of a late Autism diagnosis. 大器晚成者:探索晚期自闭症诊断的澳大利亚女性经历的情感景观。
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-01 Epub Date: 2025-10-30 DOI: 10.1177/13623613251386983
Annie Pollock, Zoë Krupka
<p><p>Gendered expectations significantly influence how Autism is recognised in women, often contributing to misdiagnosis and delayed identification. This study explored the experiences of Autistic women diagnosed after 30 in Australia. Using a cross-sectional qualitative design, semi-structured interviews were conducted with 10 Autistic women with a median age of 47.5 years. Participants were recruited through purposive sampling on social media, and reflexive thematic analysis was used for data examination, with careful consideration of researcher reflexivity. Seven key emotionally centred themes were identified from the participants' diagnostic journeys: (1) Frustration at the Barriers Surrounding a Diagnosis, (2) Fear and Self-Doubt on the Path to Self-Acceptance, (3) The Grief of Revisiting the Past, (4) Shock of the New Self, (5) Anger at Being Dismissed, (6) The Relief of Authenticity, and (7) Pride and Belonging in Community. The findings revealed the significant impact of 'Autistic burnout' and the challenges of accessing practitioners knowledgeable about Autism in women. Participants expressed a range of emotions stemming from having the validity of their struggles questioned and receiving a notable lack of post-diagnostic support. This study highlights the critical need for inclusive, gender-sensitive diagnosis, as well as greater understanding of the nuanced experiences of Autistic women.Understanding the Emotional Experiences of Australian Autistic Women Diagnosed Later in LifeAutistic women often experience delayed recognition and understanding that they are Autistic due to gendered expectations and stereotypes about Autism. This study explored the experiences of women in Australia who received an Autism diagnosis after the age of 30. It aimed to uncover the challenges they faced and the emotional impact of their diagnostic journey.Ten women participated in interviews where they shared their stories. They described how difficult it was to find professionals who understood how Autism presents in women and discussed the associated emotional toll. The research identified seven key themes that highlight the emotional aspects of their journeys:1. Frustration with the challenges of getting a diagnosis2. Fear and uncertainty while trying to accept themselves3. Sadness and regret when looking back on their past4. Surprise and confusion at discovering new parts of their identity5. Anger at being ignored or dismissed by others6. Relief in understanding and accepting who they truly are7. A sense of pride and belonging within the Autistic communityMany participants described experiencing 'Autistic burnout', which is extreme physical, mental, and emotional exhaustion, often due to masking their Autism to meet societal expectations. They also reported feeling invalidated when their struggles were questioned and noted a lack of support after their diagnosis.This study highlights the need for diagnostic practices that consider gender differences and
性别期望显著影响女性对自闭症的认识,往往导致误诊和延迟识别。这项研究探讨了澳大利亚30岁以后被诊断为自闭症的女性的经历。采用横断面定性设计,对10名中位年龄为47.5岁的自闭症女性进行了半结构化访谈。通过社交媒体上的有目的抽样招募参与者,并在仔细考虑研究者反身性的情况下,使用反身性主题分析进行数据检验。从参与者的诊断旅程中确定了七个关键的情感中心主题:(1)对诊断障碍的沮丧,(2)自我接受道路上的恐惧和自我怀疑,(3)回顾过去的悲伤,(4)新自我的震惊,(5)被解雇的愤怒,(6)真实性的解脱,以及(7)自豪感和归属感。研究结果揭示了“自闭症倦怠”的重大影响,以及接触了解女性自闭症的从业人员的挑战。参与者表达了一系列的情绪,这些情绪源于他们挣扎的有效性受到质疑,并明显缺乏诊断后的支持。这项研究强调了对包容性、性别敏感的诊断的迫切需要,以及对自闭症女性微妙经历的更多理解。由于对自闭症的性别期望和刻板印象,患有自闭症的女性通常会延迟认识和理解自己是自闭症。这项研究探讨了澳大利亚30岁以后被诊断为自闭症的女性的经历。它旨在揭示他们所面临的挑战以及他们诊断过程中的情感影响。10位女性参加了采访,分享了她们的故事。他们描述了找到了解女性自闭症表现的专业人士并讨论相关的情感损失是多么困难。该研究确定了七个关键主题,突出了他们旅行中的情感方面:对诊断的挑战感到沮丧。在试着接受自己的时候感到恐惧和不确定。回顾过去时的悲伤和遗憾。在发现自己身份的新部分时感到惊讶和困惑。因被别人忽视或忽视而愤怒。在理解和接受真实的自己时得到解脱。在自闭症群体中的自豪感和归属感许多参与者描述了他们经历的“自闭症倦怠”,这是一种身体、精神和情感上的极度疲惫,通常是由于掩盖他们的自闭症以满足社会期望。他们还报告说,当他们的挣扎受到质疑时,他们会感到无助,并注意到诊断后缺乏支持。这项研究强调需要考虑到性别差异和社会影响的诊断实践,以及为新诊断的自闭症妇女提供更好的支持系统。改善这些领域有助于确保早期诊断并提供更好的护理,最终放大这个经常被忽视的群体的声音。
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引用次数: 0
Participatory systems mapping: Can this approach improve how services work for autistic people? 参与式系统绘图:这种方法能否改善为自闭症患者提供的服务?
IF 5.6 2区 心理学 Q1 PSYCHOLOGY, DEVELOPMENTAL Pub Date : 2026-02-01 Epub Date: 2025-12-15 DOI: 10.1177/13623613251399656
Megan Freeth, Daniel Poole, Victoria Newell, Kelly Scargill
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引用次数: 0
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Autism
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