The Connected We St@nd programme: A feasibility pilot study of an online self-management intervention for adults on in-centre haemodialysis and family caregivers

IF 3.5 2区心理学 Q1 PSYCHOLOGY, CLINICAL British Journal of Health Psychology Pub Date : 2024-02-15 DOI:10.1111/bjhp.12715

Helena Sousa, Oscar Ribeiro, Ana Bártolo, Elísio Costa, Fernando Ribeiro, Mário Rodrigues, Constança Paúl, Daniela Figueiredo

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Abstract

Objective

The ‘Connected We St@nd’ is an online self-management intervention programme for people receiving in-centre haemodialysis and family caregivers that combines an educational and psychosocial support component. This study aimed to evaluate its feasibility and acceptability before proceeding to a large-scale trial.

Design

This was a pre-post single-arm feasibility pilot study conducted with adults undergoing in-centre haemodialysis and family caregivers.

Methods

Feasibility was based on eligibility, consent, retention, completion and intervention adherence rates, while acceptability was assessed in post-intervention focus group interviews.

Results

Twenty-six people (16 adults on haemodialysis and 10 family caregivers) recruited through social networks completed the intervention. Consent, retention and completion rates were excellent (>90%) and eligibility (77.5%) and intervention adherence were satisfactory (69% for the psychosocial support sessions). Qualitative findings revealed that participants shared positive feelings regarding their participation in the programme. The valuable interactions with group peers and health psychologists during the support sessions, the perception of the adequacy and coherence of the programme's contents and materials and the participants' confidence in using the platform developed to deliver the intervention were some of the aspects highlighted as facilitators of intervention acceptability. Additionally, people on haemodialysis and caregivers reported that participation in the programme brought several educational and emotional benefits (e.g., additional disease-related knowledge, improved communication and coping skills, greater confidence in managing dialysis complications or caregiving demands) that helped increase their self-management skills and psychosocial adjustment to the demands of kidney failure and renal therapies.

Conclusions

The results suggested that the ‘Connected We St@nd’ programme is likely to be feasible and acceptable for adults on haemodialysis and family caregivers, thus representing a promising resource for the future of interdisciplinary renal rehabilitation. Suggestions were made to fine-tune the intervention design to proceed with a large-scale trial.

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Connected We St@nd 计划：针对中心血液透析成人和家庭护理人员的在线自我管理干预可行性试点研究。

目标：Connected We St@nd "是一项针对中心血液透析患者和家庭护理人员的在线自我管理干预计划，该计划结合了教育和社会心理支持内容。本研究旨在评估其可行性和可接受性，然后再进行大规模试验：设计：这是一项前-后单臂可行性试点研究，对象是接受中心血液透析的成人和家庭护理人员：方法：可行性基于资格、同意、保留、完成和干预坚持率，而可接受性则通过干预后的焦点小组访谈进行评估：通过社交网络招募的 26 人（16 名接受血液透析的成年人和 10 名家庭护理人员）完成了干预。同意率、保留率和完成率都非常高（大于 90%），干预资格（77.5%）和干预坚持率都令人满意（心理支持课程的坚持率为 69%）。定性研究结果显示，参与者对参与该计划都有积极的感受。在支持环节中与小组同伴和健康心理学家进行的宝贵互动、对计划内容和材料的充分性和连贯性的看法，以及参与者对使用为实施干预而开发的平台的信心，都是促进干预可接受性的一些方面。此外，血液透析患者和护理人员表示，参与该项目带来了一些教育和情感方面的益处（如增加了与疾病相关的知识、提高了沟通和应对技能、增强了处理透析并发症或护理需求的信心），有助于提高他们的自我管理技能和心理社会适应能力，以满足肾衰竭和肾脏治疗的需求：结论：研究结果表明，"Connected We St@nd "计划对于接受血液透析的成年人和家庭护理人员来说是可行的，也是可以接受的，因此是未来跨学科肾脏康复的一种有前途的资源。建议对干预设计进行微调，以便开展大规模试验。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

British Journal of Health Psychology PSYCHOLOGY, CLINICAL-

CiteScore

14.10

自引率

1.30%

发文量

期刊介绍： The focus of the British Journal of Health Psychology is to publish original research on various aspects of psychology that are related to health, health-related behavior, and illness throughout a person's life. The journal specifically seeks articles that are based on health psychology theory or discuss theoretical matters within the field.