The costs and cost-effectiveness of different service models of palliative care, focusing on end of life care: A rapid review

Llinos Haf Spencer, Bethany Fern Anthony, Jacob Davies, Kalpa Pisavadia, Elizabeth Gillen, Jane Noyes, Deborah Fitzsimmons, Ruth Lewis, Alison Cooper, Dyfrig Hughes, Rhiannon Tudor Edwards, Adrian Edwards
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Abstract

Some people receive palliative or end of life care at home, others in hospitals or hospices, or a combination of home and hospice/home and hospital models. This rapid review aims to determine the costs and cost-effectiveness of different service models of palliative care or end of life care. These studies are mostly conducted from the perspective of the healthcare system, disregarding costs related to patients/caregivers economic burden (Perea-Bello et al., 2023). Research Implications and Evidence Gaps: More UK research is needed on cost impacts of new services such as Enhanced Supported Care (ESC). Future research should consider which methods are most appropriate to evaluate palliative care models. Standard methodology, such as the calculation of quality-adjusted life years (QALYs), may not be most appropriate for this end of life population. Improving QALYs may not be the intended aim of palliative care or end of life interventions, and prolonging death may be inconsistent with patient preferences and wishes. The quality and applicability of the evidence we found in our rapid review were variable, and therefore, uncertainty remains, especially when the perspective of analysis was not stated clearly. Therefore, it was difficult to ascertain whether all relevant costs were considered. Assumptions on costs were not varied in many studies, and most studies had different time horizons. Policy and Practice Implications: This rapid review has shown that hospital-based palliative care costs are higher than hospice or home-based palliative care. This suggests that home-based palliative care should be available to all patients in a recognisable end of life phase who desire to remain and die at home. Healthcare planners should aim to reduce hospitalisation at the end of life but only if access to quality home care at the end of life is guaranteed. Patients should have a choice about where they prefer to die without moving the costs from the healthcare system to the home caregivers, rendering the costs invisible.
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不同姑息关怀服务模式的成本和成本效益,重点是生命末期关怀:快速审查
有些人在家中接受姑息关怀或生命末期关怀,有些人在医院或临终关怀机构接受姑息关怀或生命末期关怀,有些人则将家庭与临终关怀机构/家庭与医院模式结合起来接受姑息关怀或生命末期关怀。本快速综述旨在确定姑息关怀或生命末期关怀的不同服务模式的成本和成本效益。这些研究大多从医疗保健系统的角度出发,忽略了与患者/护理人员经济负担相关的成本(Perea-Bello 等人,2023 年)。研究意义和证据差距:英国需要对增强型支持护理(ESC)等新服务的成本影响进行更多研究。未来的研究应考虑哪些方法最适合评估姑息关怀模式。标准方法,如计算质量调整生命年(QALYs),可能并不最适合这一生命末期人群。提高 QALYs 可能并不是姑息关怀或生命末期干预的预期目标,延长死亡时间也可能不符合患者的偏好和意愿。我们在快速综述中发现的证据的质量和适用性参差不齐,因此仍存在不确定性,尤其是在分析角度没有明确说明的情况下。因此,很难确定是否考虑了所有相关成本。许多研究对成本的假设不尽相同,而且大多数研究的时间跨度不同。政策与实践意义:本次快速综述显示,医院姑息关怀的成本高于临终关怀或居家姑息关怀。这表明,居家姑息关怀应适用于所有处于生命末期、希望留在家中或在家中去世的病人。医疗保健规划者应致力于减少生命末期的住院治疗,但前提是必须保证患者在生命末期能够获得高质量的居家姑息关怀服务。病人应该可以选择自己喜欢的死亡地点,而不需要将费用从医疗系统转移到家庭护理人员身上,从而使费用无形化。
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