SRNT Health Equity Network Survey on Authentic Health Disparity/Equity Research

Merideth A. Addicott, Josephine Hinds, Vita Mithi, George Kypriotakis, Wura Jacobs, Sydney Martinez, Rachel Denlinger-Apte, Lilianna Phan, Douglas Levy, Olatokunbo Osibogun, Kavita Mosalpuria, Danusha Kumar, Lauren Czaplicki, Andy Tan
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Abstract

The Society for Research on Nicotine and Tobacco (SRNT) Health Equity Network (HEN) Evaluation Subcommittee members conducted an open-ended survey regarding what should be considered authentic health disparity/equity (HD/E) research and how the SRNT community defines this term. Anonymous surveys were emailed to over 300 SRNT HEN members, and invitees were asked to complete the survey if they conducted HD/E research or engaged in HD/E research in some other way. A total of 26 usable survey responses were collected and qualitatively coded. Respondents were asked to describe authentic HD/E research, challenges in their field, and indicators of good and poor quality HD/E research. Respondents expressed that authentic HD/E research investigates disparities/inequalities in health outcomes or access to healthcare services that are specific to communities defined by a social or demographic characteristic. Challenges included lack of funding, a slow rate of recruiting minority populations, and an under-valuation of HD/E research among funders and scientific journals. Indicators of good quality HD/E research were community involvement and a social justice context. Respondents also expressed concerns that poor quality HD/E research could inadvertently harm minoritized communities. As this field grows, we feel it is necessary for experts to set standards for the appropriate conduct of HD/E research, set benchmarks for success, and voice their concerns about the potentially negative impacts of poorly conducted HD/E research.
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SRNT 健康公平网络关于真实健康差距/公平研究的调查
尼古丁和烟草研究学会(SRNT)健康公平网络(HEN)评估小组委员会成员就什么应被视为真正的健康差异/公平(HD/E)研究以及 SRNT 社区如何定义这一术语进行了一次开放式调查。匿名调查通过电子邮件发送给了 300 多名 SRNT HEN 成员,并要求受邀者在开展 HD/E 研究或以其他方式参与 HD/E 研究时完成调查。共收集到 26 份可用的调查回复,并进行了定性编码。受访者被要求描述真实的人类发展教育研究、其领域所面临的挑战以及人类发展教育研究质量好坏的指标。受访者表示,真正的人类发展/教育研究是调查由社会或人口特征界定的社区在健康结果或获得医疗保健服务方面的差距/不平等。面临的挑战包括缺乏资金、招募少数民族人口的速度缓慢,以及资助者和科学杂志对人类发展/教育研究的评估不足。优质人类发展/教育研究的指标是社区参与和社会正义背景。受访者还表示担心,劣质的人类发展/教育研究可能会无意中伤害到少数群体。随着这一领域的发展,我们认为专家们有必要为适当开展人类 HD/E 研究制定标准,设定成功的基准,并表达他们对不良人类 HD/E 研究可能产生的负面影响的担忧。
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