Régine Placide Reaves, Giovanna De Oliveira, Angel Johann Solorzano Martinez
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引用次数: 0
Abstract
Purpose: Caring for a child or youth with special health care needs (CYSHCN) can be overwhelming. Parents and caregivers may experience psychosocial distress, such as depression, frustration, and hopelessness. The purpose of the current study was to gain further insight into families' perspectives on the psychosocial impacts of caring for CYSHCN to identify gaps in health care systems and strengthen systems of support.
Method: A qualitative descriptive design was used in 16 parents and caregivers. Colaizzi's method of analysis and semi-structured interviews were used.
Results: Six themes emerged from this study: (1) Stigma and Isolation, (2) Religion as a Coping Mechanism, (3) Financial Challenges, (4) Bearing the Burden, (5) Familial Denial, and (6) System-Related Concerns.
Conclusion: Psychiatric-mental health nurses (PMHNs) are in a pivotal position to use their knowledge, skills, and experiences to guide families. PMHNs can also engage communities and enhance mental health promotion to break the stigma associated with having a CYSHCN. [Journal of Psychosocial Nursing and Mental Health Services, 62(9), 37-46.].
期刊介绍：
The Journal of Psychosocial Nursing and Mental Health Services is a peer-reviewed, monthly journal for psychosocial and mental health nurses in a variety of community and institutional settings. For more than 50 years, the Journal has provided the most up-to-date, practical information available for today’s psychosocial-mental health nurse, including short contributions about psychopharmacology, mental health care of older adults, addictive behaviors and diagnoses, and child/adolescent disorders and issues. Begin to explore the Journal and all of its great benefits such as:
• Monthly feature, “Clip & Save: Drug Chart,” a one-page resource of up-to-date information on current medications for various psychiatric illnesses
• Access to current articles, as well as several years of archived content
• Articles posted online just 2 months after acceptance
• Continuing Nursing Education credits available each month
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