Alice Bacherini, Laura E. Gómez, Giulia Balboni, Susan M. Havercamp
{"title":"Health and health care are essential to the quality of life of people with intellectual disability","authors":"Alice Bacherini, Laura E. Gómez, Giulia Balboni, Susan M. Havercamp","doi":"10.1111/jppi.12504","DOIUrl":null,"url":null,"abstract":"<p>Health represents the dynamic balance of physical, mental, social, and existential well-being in adapting to conditions of life and the environment. Health is essential for the quality of life (QoL) of all individuals, including those with intellectual disability (ID). People with ID experience health inequities and barriers to quality health care that must be addressed to foster the QoL of this population. This paper illustrates how poor health negatively impacts each of the eight domains of the QoL model proposed by Shalock and Verdugo (2002) (e.g., health conditions limit work performance, decreasing opportunities for <i>personal development</i> and <i>self-determination</i>). Suggestions for healthcare practices and behaviors that would improve the quality of healthcare provided to people with ID, and thus their health and QoL, are offered (e.g., engaging people with ID in the medical conversation, talking to them in plain language and without jargon enhances the <i>personal development</i>, <i>self-determination, interpersonal relationships</i>, and <i>social inclusion</i> domains of QoL). Finally, we suggest actions that people with ID and their families might implement to maximize their health and wellness (e.g., maintaining a healthy lifestyle, and using the health promotion resources provided by disability organizations).</p>","PeriodicalId":47236,"journal":{"name":"Journal of Policy and Practice in Intellectual Disabilities","volume":"21 2","pages":""},"PeriodicalIF":2.5000,"publicationDate":"2024-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Policy and Practice in Intellectual Disabilities","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/jppi.12504","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"HEALTH POLICY & SERVICES","Score":null,"Total":0}
引用次数: 0
Abstract
Health represents the dynamic balance of physical, mental, social, and existential well-being in adapting to conditions of life and the environment. Health is essential for the quality of life (QoL) of all individuals, including those with intellectual disability (ID). People with ID experience health inequities and barriers to quality health care that must be addressed to foster the QoL of this population. This paper illustrates how poor health negatively impacts each of the eight domains of the QoL model proposed by Shalock and Verdugo (2002) (e.g., health conditions limit work performance, decreasing opportunities for personal development and self-determination). Suggestions for healthcare practices and behaviors that would improve the quality of healthcare provided to people with ID, and thus their health and QoL, are offered (e.g., engaging people with ID in the medical conversation, talking to them in plain language and without jargon enhances the personal development, self-determination, interpersonal relationships, and social inclusion domains of QoL). Finally, we suggest actions that people with ID and their families might implement to maximize their health and wellness (e.g., maintaining a healthy lifestyle, and using the health promotion resources provided by disability organizations).
健康是指在适应生活条件和环境的过程中,身体、精神、社会和生存福祉的动态平衡。健康对包括智障人士在内的所有人的生活质量(QoL)都至关重要。智障人士在享受优质医疗保健服务时会遇到健康不公平现象和障碍,要提高这一群体的生活质量,就必须解决这些问题。本文阐述了健康状况不佳如何对 Shalock 和 Verdugo(2002 年)提出的 QoL 模型的八个领域中的每一个领域产生负面影响(例如,健康状况限制了工作表现,减少了个人发展和自我决定的机会)。我们还就医疗保健实践和行为提出了建议,以提高为智障人士提供的医疗保健服务的质量,从而改善他们的健康状况和 QoL(例如,让智障人士参与医疗对话,用通俗易懂的语言与他们交谈,不使用专业术语,从而提高 QoL 的个人发展、自我决定、人际关系和社会包容等方面)。最后,我们提出了智障人士及其家人可以采取的行动,以最大限度地提高他们的健康水平(例如,保持健康的生活方式,利用残障组织提供的健康促进资源)。