Using the consolidated framework for implementation research to identify challenges and opportunities for implementing a reproductive health education program into sickle cell disease care

IF 2.7 3区 心理学 Q2 PSYCHOLOGY, DEVELOPMENTAL Journal of Pediatric Psychology Pub Date : 2024-05-03 DOI:10.1093/jpepsy/jsae031
Zachary A Colton, Sophia M Liles, Megan M Griffith, Charis J Stanek, Joseph Walden, Allison King, Toyetta Barnard-Kirk, Susan Creary, Leena Nahata
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Abstract

Background As survival rates for individuals with sickle cell disease (SCD) increase, calls have been made to improve their reproductive healthcare and outcomes. The research team created a web-based program entitled Fertility edUcaTion to Understand ReproductivE health in Sickle cell disease (FUTURES). The study aim was to use the Consolidated Framework for Implementation Research (CFIR) during pre-implementation to identify challenges and opportunities from the individual to systems level of implementation to ultimately optimize the integration of FUTURES into clinical practice. Methods Semi-structured interviews were conducted with clinicians, research team members, and adolescent and young adult (AYA) males with SCD and their caregivers who participated in pilot testing. Interviews (N = 31) were coded inductively and then mapped onto CFIR domains (i.e., outer setting, inner setting, characteristics of individuals, and intervention characteristics). Results Research team interviews indicated the lack of universal guidelines for reproductive care in this population and gaps in reproductive health knowledge as key reasons for developing FUTURES, also highlighting the importance of collaboration with community members during development. Clinicians reported intraorganizational communication as essential to implementing FUTURES and discussed challenges in addressing reproductive health due to competing priorities. Clinicians, AYAs, and caregivers reported positive views of FUTURES regarding length, engagement, accessibility, and content. Suggestions for the best setting and timing for implementation varied. Conclusions Using CFIR during the pre-implementation phase highlighted challenges and opportunities regarding integrating this program into SCD care. These findings will inform adaptation and further testing of FUTURES to ensure effective implementation of this novel education program.
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利用实施研究的综合框架,确定在镰状细胞病护理中实施生殖健康教育计划的挑战和机遇
背景 随着镰状细胞病 (SCD) 患者存活率的提高,人们呼吁改善他们的生殖保健和结果。研究小组创建了一个名为 "了解镰状细胞病生殖健康的生育教育"(FUTURES)的网络项目。研究目的是在实施前使用实施研究综合框架 (CFIR),识别从个人到系统层面实施过程中的挑战和机遇,最终优化 FUTURES 与临床实践的整合。方法 对参与试点测试的临床医生、研究团队成员、患有 SCD 的青少年男性患者及其照顾者进行了半结构化访谈。对访谈(N = 31)进行归纳编码,然后映射到 CFIR 领域(即外部环境、内部环境、个人特征和干预特征)。研究小组的访谈结果表明,缺乏针对该人群的生殖保健通用指南和生殖健康知识缺口是开发 FUTURES 的主要原因,同时还强调了在开发过程中与社区成员合作的重要性。临床医生表示,组织内部的沟通对于实施 FUTURES 至关重要,他们还讨论了因优先事项相互竞争而在解决生殖健康问题方面面临的挑战。临床医生、青壮年和护理人员对 FUTURES 的时间长度、参与度、可及性和内容表示肯定。关于实施的最佳环境和时机的建议各不相同。结论 在预实施阶段使用 CFIR 凸显了将该计划纳入 SCD 护理的挑战和机遇。这些发现将为 FUTURES 的调整和进一步测试提供依据,以确保这一新型教育计划的有效实施。
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来源期刊
Journal of Pediatric Psychology
Journal of Pediatric Psychology PSYCHOLOGY, DEVELOPMENTAL-
CiteScore
6.00
自引率
11.10%
发文量
89
期刊介绍: The Journal of Pediatric Psychology is the official journal of the Society of Pediatric Psychology, Division 54 of the American Psychological Association. The Journal of Pediatric Psychology publishes articles related to theory, research, and professional practice in pediatric psychology. Pediatric psychology is an integrated field of science and practice in which the principles of psychology are applied within the context of pediatric health. The field aims to promote the health and development of children, adolescents, and their families through use of evidence-based methods.
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