Tessa S. Folkertsma, Reinhard Bos, Robert M. Vodegel, Sjaak Bloem, Aad R. Liefveld, Greetje J. Tack
{"title":"Personalizing supportive healthcare for patients with immunological disorders","authors":"Tessa S. Folkertsma, Reinhard Bos, Robert M. Vodegel, Sjaak Bloem, Aad R. Liefveld, Greetje J. Tack","doi":"10.1101/2024.04.25.24306403","DOIUrl":null,"url":null,"abstract":"Current insights to personalize supportive care for patients with immunological disorders, especially in the context of medical treatments, remain inadequate. Delivering and guiding supportive care unquestionably contributes to a higher quality of life and better overall healthcare. The ‘Subjective Health Experience (SHE) Model’ provides a general framework, comprising four segments, to differentiate supportive healthcare in a quick and practical approach. In this report both health care workers and patients tailored the unique needs of patients with immunological disorders to improve their supportive care.","PeriodicalId":501556,"journal":{"name":"medRxiv - Health Systems and Quality Improvement","volume":"61 1","pages":""},"PeriodicalIF":0.0000,"publicationDate":"2024-04-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"medRxiv - Health Systems and Quality Improvement","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1101/2024.04.25.24306403","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
Current insights to personalize supportive care for patients with immunological disorders, especially in the context of medical treatments, remain inadequate. Delivering and guiding supportive care unquestionably contributes to a higher quality of life and better overall healthcare. The ‘Subjective Health Experience (SHE) Model’ provides a general framework, comprising four segments, to differentiate supportive healthcare in a quick and practical approach. In this report both health care workers and patients tailored the unique needs of patients with immunological disorders to improve their supportive care.