Personalizing supportive healthcare for patients with immunological disorders

Tessa S. Folkertsma, Reinhard Bos, Robert M. Vodegel, Sjaak Bloem, Aad R. Liefveld, Greetje J. Tack
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Abstract

Current insights to personalize supportive care for patients with immunological disorders, especially in the context of medical treatments, remain inadequate. Delivering and guiding supportive care unquestionably contributes to a higher quality of life and better overall healthcare. The ‘Subjective Health Experience (SHE) Model’ provides a general framework, comprising four segments, to differentiate supportive healthcare in a quick and practical approach. In this report both health care workers and patients tailored the unique needs of patients with immunological disorders to improve their supportive care.
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为免疫性疾病患者提供个性化支持性医疗服务
目前,针对免疫性疾病患者的个性化支持性护理,尤其是在药物治疗方面,仍然缺乏足够的洞察力。提供和指导支持性护理无疑有助于提高生活质量和改善整体医疗保健。主观健康体验(SHE)模型 "提供了一个由四个部分组成的总体框架,以快速、实用的方法区分支持性医疗保健。在这份报告中,医护人员和患者都针对免疫性疾病患者的独特需求进行了定制,以改善他们的支持性护理。
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