Chun-Yi Lin , Yi-Lun Wu , Yi-Ling Chien , Susan Shur-Fen Gau
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引用次数: 0
Abstract
Background
Quality of life (QoL) has been suggested as an indicator of outcomes in autistic adults. Factors associated with QoL in autistic individuals remain unclear. This study aims to examine the subjective QoL for autistic adults in Taiwan and investigate the determinants for different domains of QoL.
Methods
The study comprised 90 autistic adults (aged 26.9, SD 7.3; males, 80.9%). We used Taiwanese version of World Health Organization Quality of Life-BREF to measure QoL. Four domains of QoL were compared with 61 non-autistic controls, including physical, psychological, social, and environment. To identify the correlates of QoL domains, we assessed IQ, personality trait, family support, anxiety/depressive symptoms, autistic severity, and sensory symptoms by various questionnaires, and assessed their association with QoL by correlation analyses and model selection.
Results
Our results showed that autistic adults reported lower QoL on the World Health Organization Quality of Life (WHOQOL)-BREF across all domains. QoL was significantly associated with autistic symptom severity, harm avoidance, family support, sensory symptoms, anxiety, and depression, but not intelligence. Model selections revealed male sex, poor paternal support, autism severity, depression, anxiety, and sensory symptoms were associated with specific QoL domains.
Conclusion
Findings supported lower QoL in autistic adults. Modifying the QoL correlates may improve life quality in autistic adults. Furthermore, our findings revealed the importance of sensory symptoms and paternal support in QoL of autistic adults, which was a novel finding in this population.
背景:生活质量(QoL)被认为是衡量成年自闭症患者疗效的一个指标。与自闭症患者生活质量相关的因素仍不明确。本研究旨在探讨台湾成年自闭症患者的主观生活质量,并调查不同生活质量领域的决定因素:研究对象包括 90 名成年自闭症患者(年龄 26.9 岁,SD 7.3;男性占 80.9%)。我们使用台湾版的世界卫生组织生活质量标准来测量自闭症患者的生活质量。我们将 QoL 的四个领域与 61 名非自闭症对照者进行了比较,包括身体、心理、社交和环境。为了确定 QoL 领域的相关因素,我们通过各种问卷评估了智商、人格特质、家庭支持、焦虑/抑郁症状、自闭症严重程度和感官症状,并通过相关分析和模型选择评估了它们与 QoL 的关联:结果表明,自闭症成人在世界卫生组织生活质量(WHOQOL)-BREF 各领域的 QoL 均较低。生活质量与自闭症症状严重程度、伤害回避、家庭支持、感官症状、焦虑和抑郁有明显关联,但与智力无关。模型选择显示,男性性别、父亲支持不足、自闭症严重程度、抑郁、焦虑和感官症状与特定的 QoL 领域相关:结论:研究结果表明,成人自闭症患者的 QoL 较低。结论:研究结果表明,成年自闭症患者的 QoL 较低,改变 QoL 相关因素可提高成年自闭症患者的生活质量。此外,我们的研究结果还揭示了感官症状和父亲的支持对自闭症成人生活质量的重要性,这在自闭症人群中是一项新发现。
期刊介绍:
Journal of the Formosan Medical Association (JFMA), published continuously since 1902, is an open access international general medical journal of the Formosan Medical Association based in Taipei, Taiwan. It is indexed in Current Contents/ Clinical Medicine, Medline, ciSearch, CAB Abstracts, Embase, SIIC Data Bases, Research Alert, BIOSIS, Biological Abstracts, Scopus and ScienceDirect.
As a general medical journal, research related to clinical practice and research in all fields of medicine and related disciplines are considered for publication. Article types considered include perspectives, reviews, original papers, case reports, brief communications, correspondence and letters to the editor.