[Multimodal Treatment Strategies for Homebound Patients with Severe ME/CFS: A Scoping Review].

IF 0.7 4区 医学 Q4 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Gesundheitswesen Pub Date : 2024-10-01 Epub Date: 2024-05-10 DOI:10.1055/a-2323-4108
Sandra Mayer-Huber, Alissa Kircher, Maria Eberhartinger, Silvia Stojanov, Uta Behrends
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引用次数: 0

Abstract

Purpose: This scoping review aims to provide an overview of previously published treatment strategies that are multimodal, rather than purely drug-based and may be considered for home- or bedbound ME/CFS patients. Thus, the focus lies upon the analyses of telemedicine as well as home treatment elements. In addition, the evaluation and assessment methods used in these studies will be further discussed.

Methods: Using the scoping review method, a literature analysis was conducted resulting in a total of 14 publications which met the predefined criteria. Inclusion was based on models applicable to housebound individuals with ME/CFS, focusing on social medicine and psychological support services rather than individual drug strategies.

Results: The analysis demonstrated that the appropriate treatment methods were predominantly home visits (n=5) or a telemedicine format (n=7). Studies which used alternative settings were included if conversion to a telemedicine format was viable. The important factors highlighted in several studies (n=8), when considering this patient group, were individualisation and flexibility of the treatment methods, and thus the ability to address the day-to-day levels of impairment. The explicit involvement of families in the treatment plan were described in a total of six studies. In ten articles, the treatment concept was additionally evaluated, predominantly using questionnaires (n=7), whilst the questionnaires used were not consistent. Qualitative evaluations were invariably conducted using Brown and Clarke's thematic analysis (n=3).

Conclusion: Publications on multimodal treatment strategies for homebound ME/CFS patients are rare. However approaches using home visits or telemedicine are described. The majority of identified publications addressed the need for individualised as well as flexible patient care, whilst some were dedicated to the added value of involving the patients' family. The data outline the specific challenges associated with the care of severely affected ME/CFS patients that should also be considered in the context of research.

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针对居家的重度 ME/CFS 患者的多模式治疗策略:范围界定综述。
目的:本范围综述旨在概述以前发表的治疗策略,这些策略是多模式的,而不是纯粹以药物为基础的,可考虑用于居家或卧床的 ME/CFS 患者。因此,重点在于对远程医疗和家庭治疗要素的分析。此外,还将进一步讨论这些研究中使用的评价和评估方法:采用范围界定综述法进行文献分析,结果共有 14 篇出版物符合预定标准。纳入研究的基础是适用于居家的 ME/CFS 患者的模式,重点是社会医学和心理支持服务,而不是个人药物策略:分析表明,适当的治疗方法主要是家访(5 篇)或远程医疗形式(7 篇)。如果改用远程医疗形式是可行的,那么使用其他环境的研究也包括在内。在考虑这一患者群体时,一些研究(n=8)强调的重要因素是治疗方法的个性化和灵活性,从而能够解决日常的障碍程度。共有六项研究介绍了家属明确参与治疗计划的情况。在十篇文章中,对治疗理念进行了额外评估,主要采用问卷调查(7 篇),但所使用的问卷并不一致。定性评估一律采用布朗和克拉克的主题分析法(3 篇):有关针对居家 ME/CFS 患者的多模式治疗策略的文献很少。不过,有文章介绍了使用家访或远程医疗的方法。大多数已确认的出版物都论述了对患者进行个体化和灵活护理的必要性,还有一些专门论述了患者家属参与的附加价值。这些数据概述了与严重受影响的 ME/CFS 患者护理相关的具体挑战,在研究中也应考虑到这些挑战。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Gesundheitswesen
Gesundheitswesen PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH-
CiteScore
1.90
自引率
18.20%
发文量
308
期刊介绍: The health service informs you comprehensively and up-to-date about the most important topics of the health care system. In addition to guidelines, overviews and comments, you will find current research results and contributions to CME-certified continuing education and training. The journal offers a scientific discussion forum and a platform for communications from professional societies. The content quality is ensured by a publisher body, the expert advisory board and other experts in the peer review process.
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