Parents, Grandparents and Siblings: A Pilot Psychological Intervention Study in Pediatric Palliative Care

IF 1 Q3 PSYCHOLOGY, CLINICAL CONTEMPORARY FAMILY THERAPY Pub Date : 2024-05-18 DOI:10.1007/s10591-024-09704-0

A. J. Nogueira, M. T. Ribeiro

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Abstract

Portugal has approximately 8,000 children with life-limiting conditions. A need to psychological support has been identified, so an innovative online intervention study for families was developed. The aim is to explore potential effects of three intervention programs on the psychological experience of parents, grandparents and siblings respectively. The pilot study has a quasi-experimental, before-after study design with a mixed methods approach. Family members were allocated, not-randomly, to a comparison group or an experimental group. 12 parents, 6 grandparents and 6 siblings were included in this study. Semi-structured interviews and questionnaires were used pre- and post-intervention. For parents, significant improvements were found in the Coping Health scores. The anxiety also decreased, and all participants described a more positive perspective towards the illness, hope and more skills development. The grandparents reduced their anxiety, stress and depression in a clinically relevant way. In the qualitative feedback, grandparents began to recognize their resilience and joy. Pilot results also indicate positive responses from siblings, related to perception of normality in family context, and a lower trait anxiety. Despite the positive outcomes, the small sample size needs to be considered. Further studies would be required to confirm these findings.

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父母、祖父母和兄弟姐妹：儿科姑息治疗中的试点心理干预研究

葡萄牙约有 8,000 名儿童患有危及生命的疾病。他们需要心理支持，因此，一项针对家庭的创新在线干预研究应运而生。目的是探索三个干预项目分别对父母、祖父母和兄弟姐妹心理体验的潜在影响。试点研究采用了混合方法的准实验、前后研究设计。家庭成员被非随机地分配到对比组或实验组。共有 12 名父母、6 名祖父母和 6 名兄弟姐妹参与了这项研究。干预前后采用了半结构式访谈和问卷调查。结果发现，父母的应对健康评分有了明显改善。焦虑也有所减轻，所有参与者都表示对疾病有了更积极的认识，对生活充满希望，并掌握了更多技能。祖父母的焦虑、压力和抑郁程度都有了临床意义上的减轻。在定性反馈中，祖父母们开始认识到自己的韧性和快乐。试点结果还表明，兄弟姐妹也做出了积极反应，认为家庭环境正常，特质焦虑降低。尽管取得了积极成果，但仍需考虑样本量较小的问题。还需要进一步的研究来证实这些结果。

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来源期刊

CONTEMPORARY FAMILY THERAPY PSYCHOLOGY, CLINICAL-

CiteScore

2.50

自引率

7.70%

发文量

期刊介绍： Contemporary Family Therapy: An International Journal (COFT) is is a quarterly, peer-reviewed publication that presents the latest developments in research, practice, theory, and training in couple and family therapy. COFT publishes applied and basic research with implications for systemic theory, treatment, and policy. COFT appreciates a multidisciplinary approach, and welcomes manuscripts which address processes and outcomes in systemic treatment across modalities and within broader social contexts. The journal’s content is relevant to systemic therapy practitioners and researchers, as well as marriage and family therapists, family psychologists, clinical social workers, and social policy specialists.