The Untapped Power of "We Don't Know": Epistemological Humility in the Era of COVID-19.

IF 1.6 Q3 HEALTH CARE SCIENCES & SERVICES Journal of Patient Experience Pub Date : 2024-05-16 eCollection Date: 2024-01-01 DOI:10.1177/23743735241252475
Jolaade Kalinowski, Elizabeth A Hintz, Chigozirim Izeogu
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Abstract

The SARS-CoV-2 (COVID-19) pandemic introduced many challenges and nuances that have transformed medical practice and research. The uncertainty caused by COVID-19 led to inevitable challenges to patient-provider relationships. The ever-changing landscape of COVID-19 research and policy proved to be challenging for the medical community and patients. These challenges also exacerbated long-standing issues regarding patient-provider communication and trust. On the other hand, these challenges gave voice to a burgeoning patient advocacy community. Through social media, advocacy and patient organizing, patients harnessed their power and organized over challenges relating to COVID-19 fears and concerns, ramifications of "Long COVID," and much more. During this unprecedented pandemic, there was a realization that the science and research surrounding COVID-19 is evolving and that there may be a benefit to embracing the dynamic nature of research and the scientific process. We propose that providers and the medical community should consider epistemological humility, which acknowledges insufficiencies related to the state of medical knowledge with a sense of understanding and respect for not having all of the answers. We argue that there is untapped potential in saying, "We don't know" and explaining why. There is an implicit culture that providers should be responsible for knowing everything and solving every problem. Epistemological humility challenges this culture, and inherently gives credence and voice to patient perspectives. We assert that epistemological humility is necessity when addressing contemporary health challenges such as COVID-19.

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我们不知道 "的力量尚未开发:COVID-19 时代认识论上的谦逊。
SARS-CoV-2(COVID-19)大流行带来了许多挑战和细微差别,改变了医疗实践和研究。COVID-19 带来的不确定性不可避免地给患者与医疗服务提供者之间的关系带来了挑战。事实证明,COVID-19 研究和政策的不断变化对医学界和患者都是一个挑战。这些挑战也加剧了长期存在的患者与医疗服务提供者之间的沟通和信任问题。另一方面,这些挑战也为蓬勃发展的患者权益团体提供了机会。通过社交媒体、宣传和患者组织,患者利用自己的力量组织起来,应对 COVID-19 的恐惧和担忧、"长 COVID "的影响等挑战。在这场史无前例的大流行中,人们意识到围绕 COVID-19 的科学和研究正在不断发展,接受研究和科学过程的动态性质可能会带来益处。我们建议医疗服务提供者和医学界应考虑认识论上的谦逊,即承认医学知识的不足,并理解和尊重不掌握所有答案的现状。我们认为,说 "我们不知道 "并解释原因的做法具有尚未开发的潜力。有一种隐含的文化认为,医疗服务提供者应负责了解一切,解决一切问题。认识论上的谦逊是对这种文化的挑战,它从本质上赋予了患者观点以可信度和发言权。我们认为,在应对 COVID-19 等当代健康挑战时,认识论上的谦逊是必要的。
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来源期刊
Journal of Patient Experience
Journal of Patient Experience HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.00
自引率
6.70%
发文量
178
审稿时长
15 weeks
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