Journal of Patient Experience最新文献

Patients with frequent dizzy attacks will report dissatisfaction with current diagnostic tools and express interest in a wearable at-home dizzy attack monitor. Existing diagnostic approaches for recurrent dizziness are often inadequate, particularly for episodic events that occur outside clinical settings. This study aimed to evaluate patient perspectives on current diagnostic and treatment methods and assess interest in a proposed at-home dizzy attack monitoring device. A cross-sectional survey was administered to 250 adults with self-reported dizzy attacks between December 2021 and January 2022 via Survey Healthcare Global. The survey included expert-reviewed items covering attack frequency, diagnostic experiences, treatment satisfaction, and responses to a conceptual wearable monitor. Of the 250 participants (32% male, 68% female), 43% were dissatisfied with diagnostic tools and 44% with treatments. Dissatisfaction was highest among those experiencing weekly (47% diagnostic, 48% treatment) and daily (46% diagnostic, 54% treatment) attacks. Interest in the hypothetical wearable monitor was reported by 79% overall, increasing to 86% among weekly and 85% among daily attack groups. Patients with frequent dizzy attacks report significant dissatisfaction with current standards of care and show strong interest in novel technology that enables real-time, at-home capture of symptoms to support more accurate diagnosis.

Research shows that using a patient's preferred language is vital for effective healthcare communication. Consultations in a second language can lead to treatment delays and misdiagnoses. In Wales, while Welsh and English have equal status in the public sector, independent primary care providers like General Practices (GPs) are not fully bound by Welsh Language Standards (WLS), resulting in inconsistent bilingual provision. This mixed methods study combined focus groups and a survey of 361 Welsh speakers to explore awareness of WLS and experiences of bilingual GP care. Analysis revealed low awareness (27%) of the WLS and significant unmet language needs. 71% had never been offered a Welsh-language consultation and 57% with English-speaking GPs said they would feel more comfortable having Welsh-medium consultations. In high Welsh-speaking areas, 32% felt restricted by not being able to use their first language during GP appointments. There was strong support for recording language preference in health records. Findings highlight both the need and desire for Welsh-language provision in primary care, and the importance of policy changes to support an "active offer" approach.

Scalable approaches for collecting patient-reported outcome and experience measures (PROMs/PREMs) are essential to operationalize value-based healthcare (VBHC). This paper presents implementation insights from MomCare, a digital pregnancy care bundle in Kenya and Tanzania that scaled phone-based PROM/PREM collection to over 7000 women. It describes implications of its implementation approach on patient reach, data quality, and cost. It highlights how design choices, such as standardization, contextualization, and automation, contribute to enhancing feasibility and generating value. Transitioning from SMS surveys to computer-assisted telephone interviewing enabled increased patient reach and improved data quality, while costs lowered with scale. These findings indicate that phone-based PROM/PREM collection is scalable in resource-constrained health systems. Lessons from MomCare offer actionable insights for embedding patient voices into quality improvement and VBHC models, providing practical recommendations for strengthening patient-centered care in low- and middle-income countries.

Patient satisfaction is a key determinant of healthcare quality; however, its assessment in stroke prevention clinics (SPCs) remains inadequate. This quality improvement (QI) project aimed to establish a baseline for patient experience at an SPC in Northeastern Ontario. Our QI team developed a satisfaction survey based on the Donabedian Model. Conducted over 30 days in July 2025, 43 of 51 invited patients completed the survey, resulting in an 84% response rate. Qualitative feedback was gathered for the thematic analysis. Patients reported high satisfaction across the Donabedian framework domains, with over 90% understanding their care steps and feeling dignified. Pareto analysis identified discharge education as a key area for improvement. Despite an 88% satisfaction rate, this domain was prioritized to enhance post-discharge patient preparedness, potentially reducing readmission risk. A limitation of this study was the small, single-site, and brief data collection period. This initiative established a baseline for patient experience and highlighted post-discharge education as a critical area of improvement.

Systemic autoimmune rheumatic diseases (SARDs), like rheumatoid arthritis and systemic lupus erythematosus, impose significant burdens on patients. This cross-sectional survey explores knowledge sources about SARDs, emotional and practical support from family and peers, and willingness to disclose their condition publicly, particularly through social media, among a Middle Eastern population. A descriptive, cross-sectional study was conducted at the University Hospital (Abha), the University Hospital (Makkah), and Alhabib Private Hospital (Jeddah), involving 301 adults aged 18 to 50 with SARDs. A structured questionnaire assessed sociodemographic data, clinical information, support systems, and disclosure practices. Data were analyzed using SPSS v25.0 (P < .05). In total, 84.7% of participants received disease information from their treating physicians, while 50.2% turned to social media. Over half (55.1%) felt supported by families, and 49.5% noted workplace cooperation. However, 32.2% cited fear of stigma, and 14.6% felt like a burden as barriers to disclosure. Enhancing patient education, expanding support groups, and raising awareness about autoimmune diseases are vital for improving social support and encouraging disclosure without stigma.

Understanding denture patient experiences is vital for improving care outcomes. This research explored the lived experiences of patients undergoing rehabilitation with removable complete dentures, a topic often overlooked in qualitative oral healthcare research. Using a constructivist grounded theory approach, 25 adults treated through the public health service in Tasmania's Southern Dental Clinic between 2017 and 2022 were interviewed to gain insight into their journeys. Semistructured, face-to-face interviews were recorded, transcribed, and analyzed using NVivo 12, following a structured coding and memoing process. The study uncovered a 4-phase progression: journeying to the unknown (confronting unfamiliar experiences), transitioning to knowing (developing understanding), deciding on the known (making informed choices), and living in the known (applying gained knowledge). These phases form the foundation of the substantive theory renormalizing the disrupted, which illustrates how patients continuously move between disruption and efforts to restore normalcy. This theory challenges the traditional view that denture rehabilitation ends with denture placement. It calls for interdisciplinary, person-centered support to address the emotional, psychological, and practical challenges patients face, ultimately improving long-term outcomes for those living with complete dentures.

In a randomized trial among people seeking musculoskeletal specialty care, 87 rated 9 items that quantify subjective health (discomfort, incapability, unhelpful thoughts, distress, and social health) with the results visually displayed (spider graph) to the patient and clinician. These 87 patients and 113 controls patients also completed brief measures of symptoms of anxiety and depression as part of the routine office intake that clinicians do not routinely review. In multivariable analysis, patient perceptions of physician empathy, level of involvement in decisions, and 6-week survey participation were not associated with measurement and display of symptom intensity and psychosocial factors. This suggests that brief measurement and visualization of the subjective aspects of health does not harm patient experience.

Surveillance for long-term complications in adults with congenital heart disease (ACHD) presently relies on outpatient visits. Self-monitoring is increasingly being utilised to reduce the burden of care. This study explores the experiences of ACHD patients undertaking self-monitoring using wearable technology. A prospective observational cohort study was undertaken with ACHD patients across the United Kingdom. A CardiacSense watch recording vital signs and user-initiated electrocardiograms (ECGs) was sent to participants via post. Watch activity was monitored, and participants completed a postmonitoring questionnaire. Fifty-three individuals were screened. Thirty-three eligible participants were sent watches, and 24 (75% female, median age 44.5 years) completed the study. Participants wore watches for 12.3 days (range 1.6-29.8). Younger age was associated with shorter duration of watch-wearing (R = 0.413, P = .05), and men tended to record more ECGs than women (P = .009). Factors affecting engagement included comfort, digital literacy, and reported levels of anxiety and depression. ACHD engaged well with self-monitoring. Several factors, such as age, comorbidities, and digital literacy, influenced patient participation. Recommendations, grounded in patient experience, are suggested to ensure optimal adoption of self-monitoring in this population.

UAB Medicine, a leading health system serving over 1.5 million patients annually, conducted a study to identify factors driving trust in primary care and family medicine. This joint initiative between UAB's Office of Patient Experience and Engagement, Department of Primary Care and Family Medicine, and the School of Health Professions aimed to measure trust and develop behavior-based guidelines to enhance patient interactions. Findings from the 2-phase study highlighted that clinicians who demonstrate concern, address patient questions, and remain fully present during encounters are significantly more likely to foster patient satisfaction. By operationalizing trust through observable clinician behaviors, this work extends beyond measurement to inform practical, scalable strategies for strengthening humanistic care. Building on these insights, UAB Medicine is expanding this work to examine trust-building across additional specialties to strengthen health outcomes.

Patient satisfaction is key in determining healthcare quality and essential in Saudi Arabia's Vision 2030 healthcare transformation. This study assessed outpatient satisfaction with healthcare services across Saudi Arabia. This is a secondary analysis of a nationwide, cross-sectional, standardized, self-administered Press-Ganey survey from various regions of Saudi Arabia. Patient satisfaction was measured across 10 domains across healthcare services with a 5-point Likert scale, which was then converted to a percentage-based mean score. Statistical analyses were done using SPSS, with results considered statistically significant at P < .05. Differences in patient satisfaction scores were observed. Males reported slightly higher satisfaction than females in 9 out of 10 domains, with mean scores of 78.6% for males and 77.3% for females. Adults over 65 years reported the highest overall satisfaction with a mean score of 81.1%. Regional differences were observed, with the Southern region reporting the highest satisfaction across all domains (82.6%) while the Western region reported the lowest (74.4%). Areas with the lowest satisfaction included waiting times, disabled patients' accessibility, and administrative support, although scores in these domains still reflected generally favorable patient experiences. This study reveals the impact of demographic and regional differences on patients' satisfaction with outpatient services across Saudi Arabia, with lower satisfaction among young adults and females.