Measurement of health-related quality of life in patients with interstitial lung disease and autoimmune diseases

Claudia Mora , Alirio Rodrigo Bastidas Goyes , Lina Paola Fajardo Muriel , Cristian Felipe Rodríguez Yasno
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Abstract

Autoimmune diseases comprise a wide and diverse group of diseases, each with its own specific complications, and with common complications such as pulmonary involvement. Lung involvement is extensive and one of its complications is interstitial lung disease, which varies widely within each of the autoimmune diseases. Health-related quality of life is defined as all those aspects that reflect the impact of the disease and the perception of disability and daily functionality of the patient. Even though this concept is subjective, health researchers have sought to define it to serve as a tool in the evaluation of interventions in subjects with different types of pathologies, so much so that it has become a main outcome in program evaluation and clinical research. To date, we are not aware of tools designed with the objective of measuring quality of life specifically in lung involvement due to interstitial lung disease related to autoimmune diseases. The objective of this review will be to further explore the available information on the measurement of quality of life in these patients.

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测量间质性肺病和自身免疫性疾病患者的健康相关生活质量
自身免疫性疾病包括多种多样的疾病,每种疾病都有其特定的并发症,也有肺部受累等常见并发症。肺部受累范围很广,其并发症之一是间质性肺病,每种自身免疫性疾病的间质性肺病差异很大。与健康相关的生活质量被定义为反映疾病影响的所有方面,以及患者对残疾和日常功能的感知。尽管这一概念是主观的,但健康研究人员一直在努力对其进行定义,以作为评估针对不同病理类型受试者的干预措施的工具,以至于它已成为项目评估和临床研究的主要结果。迄今为止,我们还不知道有哪些工具是专门为测量与自身免疫性疾病相关的间质性肺病引起的肺部受累的生活质量而设计的。本综述的目的是进一步探讨现有的有关此类患者生活质量测量的信息。
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