Shining a Light: Advancing Health Equity in Overlooked Epilepsy Communities

Elaine T. Kiriakopoulos, Rebecca García Sosa, Leah Blank, Emily L. Johnson, Camilo Gutierrez
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Abstract

Achieving equitable health in epilepsy requires addressing systemic barriers and social determinants of health to ensure that every person with epilepsy has the opportunity to attain their highest level of health. We review the literature on disparities that affect several minoritized groups living with epilepsy. Early solutions with the potential for modeling towards replication for low socioeconomic status population, non-English language preference communities, sexual and gender minorities, and rural and underserved communities with high social determinants of health burden are shared as examples to catalyze stakeholder investment in identifying and addressing health disparities across the spectrum of epilepsy at both the provider and health systems level. Further support for innovative research is needed to better delineate epilepsy prevalence, treatment access, and health outcomes among diverse populations. These data are essential for enabling the development and testing of evidence-based approaches that lessen disparities and support health equity for individuals impacted by epilepsy.
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闪耀光芒:在被忽视的癫痫社区促进健康公平
实现癫痫患者的公平健康需要解决系统性障碍和健康的社会决定因素,以确保每个癫痫患者都有机会达到最高的健康水平。我们回顾了有关影响几个少数癫痫患者群体的差异的文献。我们以社会经济地位低的人群、非英语语言偏好社区、性和性别少数群体以及健康社会决定因素高的农村和服务不足的社区为例,分享了有可能进行示范推广的早期解决方案,以促进利益相关者在提供者和医疗系统层面投资于识别和解决整个癫痫领域的健康差异。需要进一步支持创新研究,以更好地界定不同人群中的癫痫患病率、治疗机会和健康结果。这些数据对于开发和测试循证方法至关重要,这些方法可以减少差异并支持受癫痫影响的个人的健康公平。
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