Unmet Needs of Children with Chronic Life Limiting Illnesses: Palliative Care Nursing: A Reflective Learning

International Journal of Health Sciences and Research Pub Date : 2024-06-08 DOI:10.52403/ijhsr.20240617

Joemol P. Itteera, Malarvizhi S.

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Abstract

Context: Witnessing the chronic suffering of children with neuromuscular and other life-limiting illnesses is disheartening. A targeted and concentrated approach could enhance the quality of life for these children and their families, who are frequently overlooked by healthcare practitioners. The goal: This practice of "reflective learning" aims to heighten the focus and awareness of the plight of these suffering children, emphasizing the critical necessity for a personalized and family-centered approach to their care. Implications: This reflective experience underscores the significance of integrating palliative care education into the nursing curriculum, thereby empowering nurses with continuous education on palliative care and enhancing access to pediatric palliative care services for children and families. Conclusion: Incorporating palliative care in the ongoing care of children with chronic suffering can improve the quality of life for all involved. Key words: Palliative care, reflective learning, holistic care, physical, psychosocial, and spiritual.

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患有限制生命的慢性疾病的儿童未满足的需求：姑息护理：反思性学习

背景：目睹患有神经肌肉疾病和其他限制生命疾病的儿童长期遭受痛苦令人沮丧。目标：这一 "反思性学习 "实践旨在提高对这些受苦儿童困境的关注和认识，强调以家庭为中心的个性化护理方法的重要性：这一反思性体验强调了将姑息关怀教育纳入护理课程的重要性，从而增强护士在姑息关怀方面的持续教育能力，提高儿童和家庭获得儿科姑息关怀服务的机会：结论：将姑息关怀纳入慢性病患儿的持续护理中，可以提高所有相关人员的生活质量：姑息关怀、反思性学习、整体关怀、身体、社会心理和精神。

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International Journal of Health Sciences and Research

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