Everyday life for patients with schizophrenia and severely impaired social functioning

Nanna Yosser Ben Høier, Ida-Marie Molstrom, A. Urfer-Parnas, M. G. Henriksen, J. Nordgaard
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Abstract

A structure of everyday life creates routines and a sense of familiarity, which provides a recognizable basis for being and acting in the world. A structure of everyday life reduces stress, and daily stress has consistently been associated with higher levels of psychiatric symptoms. Little is known about how patients with schizophrenia and severe social impairment structure their lives. Thus, we aimed to explore the everyday lives of this group of patients, looking for structuring elements.In this qualitative study, we included patients diagnosed with schizophrenia who were either homeless or had difficulties reporting for treatment and, thus, needed treatment from an outreach team.17 participants were included in the study. We found only few structuring elements across all participants in the qualitative analyses. We identified five themes in our sample that serve as structuring elements in the everyday life: social interactions, volunteering to assist with basic tasks, self-initiated routines such as going for a walk daily, exoskeleton (structure provided by others), and having pets. None of the participants reported much activity during the day, and for most of them, social interactions were minimal.All the participants had very little structure and routines in their everyday life. The shelters provided the homeless participants with some structuring elements, whereas the domiciled participants had no external structuring elements. The findings have important implications for psychosocial treatment of severe social impairment in schizophrenia. The lack of structure in these patients’ everyday lives highlights the need for targeted interventions that could facilitate such structures and guide social involvement and personal recovery.
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精神分裂症和社会功能严重受损患者的日常生活
日常生活的结构创造了常规和熟悉感,为在世界上的存在和行动提供了可识别的基础。日常生活的结构可以减轻压力,而日常压力一直与较高程度的精神症状有关。人们对精神分裂症患者和严重社交障碍患者如何安排自己的生活知之甚少。在这项定性研究中,我们纳入了 17 名被诊断为精神分裂症的患者,他们要么无家可归,要么难以报到接受治疗,因此需要外展团队的治疗。在定性分析中,我们发现所有参与者的结构元素都很少。在我们的样本中,我们发现有五个主题可作为日常生活中的结构性元素:社会交往、自愿协助完成基本任务、自我发起的例行活动(如每天散步)、外骨骼(由他人提供的结构)和养宠物。所有参与者的日常生活都非常缺乏条理和常规。收容所为无家可归的参与者提供了一些结构性元素,而有家的参与者则没有任何外部结构性元素。这些发现对精神分裂症患者严重社交障碍的心理治疗具有重要意义。这些患者的日常生活缺乏结构性,这突出表明有必要采取有针对性的干预措施,以促进这种结构,并引导他们参与社会和实现个人康复。
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