Technologies for Supporting Individuals and Caregivers Living With Fetal Alcohol Spectrum Disorder: Scoping Review.

IF 4.8 2区 医学 Q1 PSYCHIATRY Jmir Mental Health Pub Date : 2024-07-11 DOI:10.2196/51074
Joanna Ting Wai Chu, Holly Wilson, Cynthia Zhiyin Cai, Jessica C McCormack, David Newcombe, Chris Bullen
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Abstract

Background: Fetal alcohol spectrum disorder (FASD) is a common developmental disability that requires lifelong and ongoing support but is often difficult to find due to the lack of trained professionals, funding, and support available. Technology could provide cost-effective, accessible, and effective support to those living with FASD and their caregivers.

Objective: In this review, we aimed to explore the use of technology available for supporting people living with FASD and their caregivers.

Methods: We conducted a scoping review to identify studies that included technology for people with FASD or their caregivers; focused on FASD; used an empirical study design; were published since 2005; and used technology for assessment, diagnosis, monitoring, or support for people with FASD. We searched MEDLINE, Web of Science, Scopus, Embase, APA PsycINFO, ACM Digital Library, JMIR Publications journals, the Cochrane Library, EBSCOhost, IEEE, study references, and gray literature to find studies. Searches were conducted in November 2022 and updated in January 2024. Two reviewers (CZC and HW) independently completed study selection and data extraction.

Results: In total, 17 studies exploring technology available for people with FASD showed that technology could be effective at teaching skills, supporting caregivers, and helping people with FASD develop skills.

Conclusions: Technology could provide support for people affected by FASD; however, currently there is limited technology available, and the potential benefits are largely unexplored.

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支持胎儿酒精中毒综合症患者和护理人员的技术:范围审查。
背景:胎儿酒精谱系障碍(FASD)是一种常见的发育障碍,需要终身和持续的支持,但由于缺乏训练有素的专业人员、资金和支持,往往很难找到合适的支持。技术可以为 FASD 患者及其照顾者提供经济、方便、有效的支持:在本综述中,我们旨在探讨如何利用现有技术为 FASD 患者及其照顾者提供支持:我们进行了一次范围界定综述,以确定包含针对 FASD 患者或其照护者的技术的研究;重点关注 FASD;采用实证研究设计;自 2005 年以来发表;使用技术对 FASD 患者进行评估、诊断、监控或支持。我们检索了 MEDLINE、Web of Science、Scopus、Embase、APA PsycINFO、ACM Digital Library、JMIR Publications journals、Cochrane Library、EBSCOhost、IEEE、研究参考文献和灰色文献来查找研究。搜索于 2022 年 11 月进行,并于 2024 年 1 月更新。两位审稿人(CZC 和 HW)独立完成了研究选择和数据提取:共有 17 项研究探讨了 FASD 患者可用的技术,结果表明,技术可以有效地传授技能、支持照顾者并帮助 FASD 患者发展技能:技术可以为 FASD 患者提供支持;然而,目前可用的技术有限,潜在的益处也大多未被发掘。
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来源期刊
Jmir Mental Health
Jmir Mental Health Medicine-Psychiatry and Mental Health
CiteScore
10.80
自引率
3.80%
发文量
104
审稿时长
16 weeks
期刊介绍: JMIR Mental Health (JMH, ISSN 2368-7959) is a PubMed-indexed, peer-reviewed sister journal of JMIR, the leading eHealth journal (Impact Factor 2016: 5.175). JMIR Mental Health focusses on digital health and Internet interventions, technologies and electronic innovations (software and hardware) for mental health, addictions, online counselling and behaviour change. This includes formative evaluation and system descriptions, theoretical papers, review papers, viewpoint/vision papers, and rigorous evaluations.
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