A family affair: Repeated interviews with people with dementia and a euthanasia wish and their families.

IF 2.1 4区医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Death Studies Pub Date : 2024-07-25 DOI:10.1080/07481187.2024.2376819

Trijntje M Scheeres-Feitsma, Petruschka Schaafsma, Jenny T van der Steen

引用次数: 0

Abstract

This study examines the reasons of people with dementia request euthanasia and how these reasons change over time with a special focus on reasons related to family. In addition, it examines how family relates to their loved one's euthanasia wish. Seven people with dementia and a euthanasia wish in the Netherlands were interviewed, and three years later, two of them and five family members were interviewed again. Four themes were identified using thematic analyses: (1) Protecting the relationship from the impact of dementia; (2) Private domain as the primary setting to discuss euthanasia; (3) Implicit expectation to respect and agree with the euthanasia wish; (4) Experienced responsibilities of family regarding the euthanasia wish. Professionals should be aware of the position of family and the interrelatedness of the person's concern for family happiness and families' moral commitment to agree and support the wish.

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家庭事务：对痴呆症患者和希望安乐死者及其家人的反复访谈。

本研究探讨了痴呆症患者要求安乐死的原因，以及这些原因是如何随着时间的推移而变化的，并特别关注与家人有关的原因。此外，本研究还探讨了家人与其亲人的安乐死愿望之间的关系。本研究访问了荷兰七名有安乐死愿望的痴呆症患者，并在三年后再次访问了其中两名患者和五名家属。通过主题分析确定了四个主题：（1）保护双方关系不受痴呆症的影响；（2）私人领域是讨论安乐死的主要场合；（3）尊重和同意安乐死愿望的隐含期望；（4）家人在安乐死愿望方面的经验责任。专业人员应了解家属的立场，以及当事人对家庭幸福的关注与家属同意和支持该愿望的道德承诺之间的相互关系。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Death Studies Multiple-

CiteScore

8.30

自引率

7.90%

发文量

期刊介绍： Now published ten times each year, this acclaimed journal provides refereed papers on significant research, scholarship, and practical approaches in the fast growing areas of bereavement and loss, grief therapy, death attitudes, suicide, and death education. It provides an international interdisciplinary forum in which a variety of professionals share results of research and practice, with the aim of better understanding the human encounter with death and assisting those who work with the dying and their families.

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