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Altruistic kidney donation following the death of a loved one-a coincidence or a post-traumatic growth? 亲人去世后的利他捐肾--巧合还是创伤后的成长?
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-23 DOI: 10.1080/07481187.2024.2432283
Rivi Frei-Landau, Jonathan Guez, Lifshitz Etty

The aim of this study was to examine the case of altruistic kidney donation (AKD) following loss, in light of PTG theory. Loss may facilitate trauma alongside post-traumatic growth (PTG). Although much is known about the motivation for AKD in general, less is known about the motives of bereaved individuals who chose to altruistically donate their kidney post-loss. Employing a narrative approach, 10 bereaved individuals who altruistically donated a kidney were interviewed about their perceptions of the connection between the loss and their decision to donate a kidney post-loss. Content analysis revealed three types of bereaved AKD's perceived connection between the loss and the donation: explicitly direct, indirect, and implicit. Donation post-loss was characterized by aspects of PTG in three domains: self, other and worldviews. The findings are discussed in light of PTG theory and highlight the possible role of AKD in processes of coping and growth following grief.

本研究的目的是根据创伤后成长(PTG)理论,研究失去亲人后的利他主义肾脏捐赠(AKD)案例。在创伤后成长(PTG)的同时,失去可能会促进创伤。尽管人们对捐肾的一般动机有很多了解,但对失去亲人后选择利他捐肾的人的动机却知之甚少。我们采用叙事方法,采访了 10 名利他捐肾的丧亲者,了解他们对丧亲与丧亲后捐肾决定之间关系的看法。内容分析表明,失去亲人的 AKD 认为失去亲人与捐肾之间存在三种类型的联系:明确的直接联系、间接联系和隐含联系。丧亲后捐肾的特点表现在三个方面:自我、他人和世界观。研究结果根据PTG理论进行了讨论,并强调了AKD在悲伤后的应对和成长过程中可能扮演的角色。
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引用次数: 0
In the wake of a boat: The politics of mourning the 18th of April 2015 shipwreck. 在一艘船之后:悼念 2015 年 4 月 18 日沉船事故的政治。
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-12 DOI: 10.1080/07481187.2024.2424027
Giorgia Mirto

On April 18, 2015, a fishing vessel was shipwrecked between Libya and Italy. The tragedy was the result of Italian and European border policies. More than 1,100 people (from across Africa and the Indian subcontinent) lost their lives in the vessel, making it the largest recorded civilian massacre to have occurred in the Mediterranean Sea. Beyond the huge number of dead, what distinguishes the shipwreck are the processes of the "translation" of its human and material remains, involving their displacement, material transformation and re-signification. In this paper, I summarize these processes in four stages, intertwining the vessel and the bodies of those who died inside it: their exhumation, naming, wake (whether artistic or forensic) and, finally, burial. By analyzing the work of translating the boat and bodies, and exploring what can be expressed through their different materialities, I show their intense social and political life, which led various actors involved to claim ownership over mourning. By delineating the mirrored relationship between the bodies and the boat, this article demonstrates the contribution death studies can make to the analysis of migration debris on the one hand, and, on the other, how tracing the social life of boats in the aftermath of migrant shipwrecks can enrich an analysis of the political life of border deaths.

2015 年 4 月 18 日,一艘渔船在利比亚和意大利之间遇难。这场悲剧是意大利和欧洲边境政策造成的。船上有 1100 多人(来自非洲和印度次大陆)丧生,成为地中海有记录以来最大的平民屠杀事件。除了巨大的死亡人数,沉船的与众不同之处还在于其人类和物质遗骸的 "翻译 "过程,包括遗骸的迁移、物质转化和重新标识。在本文中,我将这些过程概括为四个阶段,将沉船和船中死者的遗体交织在一起:挖掘、命名、守灵(无论是艺术守灵还是法医守灵)以及最后的埋葬。通过分析翻译船只和尸体的工作,以及探索通过其不同的物质性所能表达的内容,我展示了其紧张的社会和政治生活,这导致参与其中的不同参与者要求对哀悼的所有权。通过描绘尸体与船只之间的镜像关系,本文一方面展示了死亡研究对移民残骸分析的贡献,另一方面也展示了在移民沉船事故后追踪船只的社会生活如何丰富对边境死亡政治生活的分析。
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引用次数: 0
Boxing up death: The use of symbolic-material devices to address gestational and perinatal mourning in hospitals and families in Catalonia (Spain). 将死亡装箱:在加泰罗尼亚(西班牙)的医院和家庭中使用象征性物质装置来解决妊娠和围产期哀悼问题。
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-11 DOI: 10.1080/07481187.2024.2423732
María Esther Fernández-Mostaza, Wilson Muñoz-Henríquez

One of the strategies used by Spanish hospitals to address gestational and perinatal mourning is the "memory box." This box contains various elements that refer to the child who has died and seeks to help parents to move through the mourning process. This secular strategy has its historical roots in a popular ritual practice that has fallen into disuse called the "velorio del angelito" (the angel's wake). The purpose of this article is to analyze the role that the memory box plays in addressing mourning associated with perinatal or gestational death for affected families, highlighting how it aligns with and represents a departure from the angel's wake. Using a qualitative methodology that includes the analysis of hospital protocols-guidelines, interviews with key informants and a literature review, the authors demonstrate the similarities and differences that each one of these practices configures at the symbolic, material and social levels.

西班牙医院在处理妊娠和围产期哀悼问题时使用的策略之一是 "记忆盒"。记忆盒内装有与逝去孩子有关的各种元素,旨在帮助父母度过哀悼过程。这种世俗策略的历史渊源来自于一种已被废弃的流行仪式--"velorio del angelito"(天使守灵)。本文旨在分析记忆盒在解决受影响家庭与围产期或妊娠期死亡相关的哀悼问题方面所起的作用,强调记忆盒如何与天使守灵相一致,又如何与天使守灵相区别。作者采用定性方法,包括分析医院规程指南、采访主要信息提供者和文献综述,展示了这些做法在象征、物质和社会层面的异同。
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引用次数: 0
The evidentiary potential of art after genocide. 种族灭绝后艺术的证据潜力。
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-11 DOI: 10.1080/07481187.2024.2424029
Caroline Bennett

Documentary archives, human remains, and witness testimony are often critical to transitional justice court proceedings and peace-building projects after mass violence. But what happens when those forms of evidence are missing? Can art stand in for the dead? Considering the use of art in Vann Nath's testimony in the trial of Kaing Guek Eav (Duch) in the Extraordinary Chambers in the Courts of Cambodia, in this paper, I argue that in the first case for the ECCC, Vann Nath's art performed a similar role to that of human remains in other trials, providing evidence and proof of human rights violations including torture, cruel and inhuman treatment, arbitrary detention, and mass killing, while also activating affect (drawing on Hughes). As such, it provided a form of social proof, in a way similar to the human remains retained from the genocide and displayed across Cambodia. Both human remains and art draw on materiality and emotion as a means of proving violence. Positioning it as such prompts a reconsideration of the role of art in transitional justice: as well as being needed in cases where other visual evidence does not exist, art, with its ability to mobilize and communicate linguistically incommunicable affect, can be part of the evidentiary infrastructure in and of itself. Considering the place of art in trials after mass violence makes us rethink what evidence is and does. Ultimately, my argument is that to those who survive genocide or other mass violence social proof of atrocities, as provided by art, is as important as evidence deemed legally admissible to court.

文件档案、遗骸和证人证词往往是大规模暴力事件后过渡时期司法法庭诉讼和和平建设项目的关键。但是,当这些证据缺失时会发生什么?艺术可以代替死者吗?考虑到在柬埔寨法院特别法庭审判Kaing Guek Eav (Duch)一案中,Vann Nath的证词中使用了艺术,在本文中,我认为在柬埔寨法院特别法庭的第一个案件中,Vann Nath的艺术发挥了与其他审判中遗骸类似的作用,提供了侵犯人权行为的证据和证明,包括酷刑、残忍和不人道的待遇、任意拘留和大规模屠杀,同时也激活了情感(借鉴休斯的观点)。因此,它提供了一种社会证明,其方式与保留下来并在柬埔寨各地展示的种族灭绝遗骸类似。遗骸和艺术都利用物质和情感作为证明暴力的手段。这样的定位促使我们重新考虑艺术在过渡时期司法中的作用:在没有其他视觉证据的情况下,艺术不仅是必要的,而且由于其能够调动和传达语言上无法沟通的情感,其本身就可以成为证据基础设施的一部分。考虑到艺术在大规模暴力事件后的审判中的地位,我们需要重新思考证据的含义和作用。归根结底,我的论点是,对于那些在种族灭绝或其他大规模暴力事件中幸存下来的人来说,艺术所提供的暴行的社会证明,与法庭依法采信的证据同样重要。
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引用次数: 0
Proof of life: Human remains and memory in the Philippine Drug War. 生命的证明:菲律宾毒品战争中的遗骸与记忆。
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-11 DOI: 10.1080/07481187.2024.2424026
Kar-Yen Leong

This paper examines the aftermath of the Philippine government's anti-drug campaign under President Rodrigo Duterte, focusing on the impact on families of victims of extrajudicial killings (EJKs). Drawing on fieldwork conducted in Manila, the research explores how these families navigate loss and attempt to reclaim dignity and humanity for their loved ones. The study reveals the formation of a community of "necro-activists" comprising journalists, religious figures, and medical professionals who support victims' families in seeking justice and remembrance. Through interviews with photojournalists and victims' families. This paper highlights the transformative role of human remains in asserting the victims' agency beyond death. The research shows how forensic processes and religious rituals contribute to the reclamation of individual identities and challenge the state's dehumanizing narratives. By examining the evolving meanings of EJK victims' remains, this study sheds light on the broader socio-political implications of state violence and memory-making in the Philippines. The analysis situates this research within a global context of human rights and memory studies, drawing parallels with other regions affected by state-sponsored violence. Ultimately, this paper argues that the remains of EJK victims serve as powerful symbols that challenge state impunity and embody the resilience of communities seeking accountability and dignity amid pervasive violence.

本文探讨了菲律宾政府在罗德里戈-杜特尔特总统领导下开展的反毒品运动的后果,重点关注法外处决(EJKs)受害者家属受到的影响。本研究利用在马尼拉进行的实地调查,探讨了这些家庭如何应对失去亲人的痛苦,并试图为亲人找回尊严和人性。研究揭示了一个由记者、宗教人士和医疗专业人士组成的 "亡灵活动家 "社区的形成,他们支持受害者家属寻求正义和纪念。通过对摄影记者和受害者家属的采访。本文强调了遗骸在维护受害者超越死亡的能动性方面的变革作用。研究表明,法医鉴定过程和宗教仪式如何有助于恢复个人身份,并挑战国家的非人化叙事。通过研究东瀛受害者遗骸不断演变的意义,本研究揭示了菲律宾国家暴力和记忆制造的广泛社会政治影响。分析将本研究置于人权和记忆研究的全球背景下,与其他受国家暴力影响的地区进行比较。最后,本文认为,菲律宾东正教受害者的遗骸是一种强有力的象征,它挑战了国家的有罪不罚现象,体现了在普遍暴力中寻求问责和尊严的社区的韧性。
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引用次数: 0
Factors associated with attitudes toward death and dying in the second half of life: A scoping review. 与后半生对死亡和濒死的态度相关的因素:范围综述。
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-09 DOI: 10.1080/07481187.2024.2414248
Alana Officer, Matthew Prina, Andreea Badache, Barbara Broers, Sam Gnanapragasam, Sophie Pautex

How we think and feel about death and dying affects how we live our lives and our opportunities for healthy aging. This scoping review, using the PRISMA guidelines and drawing on the World Health Organizations public health framework for healthy aging, examined the personal, health and environmental factors associated with attitudes toward death and dying in persons 50 years and older. Most of the 74 eligible studies focused only on negative attitudes to death and few studies investigated the comprehensive range of factors that influence attitudes to death and dying. In the context of population aging and the United Nations Decade of healthy aging (2021-2030) attention to death attitudes and the factors that influence them are imperative to enable current and future generations to age and die well.

我们对死亡和临终的看法和感受会影响我们的生活方式和健康老龄化的机会。本范围界定综述采用了 PRISMA 指南,并借鉴了世界卫生组织的健康老龄化公共卫生框架,研究了与 50 岁及以上人群对死亡和临终的态度相关的个人、健康和环境因素。在 74 项符合条件的研究中,大多数只关注了对死亡的消极态度,很少有研究调查了影响死亡和临终态度的综合因素。在人口老龄化和联合国健康老龄化十年(2021-2030 年)的背景下,关注死亡态度和影响死亡态度的因素是使当代人和后代人能够安享晚年和健康死亡的当务之急。
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引用次数: 0
Measuring the outcomes of support provided to people after a suicide or other sudden bereavement: A scoping review. 衡量为自杀或其他突然丧亲后的人提供支持的结果:范围综述。
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-07 DOI: 10.1080/07481187.2024.2419618
Bess Jackson, Sarah Wayland, Shelley-Anne Ball, Alexis Lamperd, Alexandra Potter, Myfanwy Maple

Systematic collection of outcome measures within suicide bereavement support is vital in building the sector's evidence base. However, there is currently limited understanding around the appropriate and sensitive use of outcome measures. Following the scoping review methodology, a literature review was undertaken to map how programs and interventions that assist individuals bereaved by suicide or other sudden, traumatic deaths gather outcome measures. The search strategy identified 1145 papers, of which 49 met the inclusion criteria. The review identified many ways that outcomes are captured, with custom tools being commonplace. Among standardized tools, the Grief Experience Questionnaire (GEQ) and Beck Depression Inventory (BDI-II) emerged as frequently used. Most articles provided some form of justification for their chosen outcome measure methodology, often citing psychometric robustness over consideration of the impact on service users. The review underscores the need for careful consideration when selecting outcome measure tools or approaches in sudden death bereavement interventions.

在自杀丧亲支持中系统地收集结果衡量标准,对于建立该部门的证据基础至关重要。然而,目前人们对如何恰当、敏感地使用结果测量的理解还很有限。根据范围界定综述方法,我们进行了一次文献综述,以了解帮助因自杀或其他突发性、创伤性死亡而丧亲的个人的计划和干预措施是如何收集结果测量指标的。搜索策略共发现了 1145 篇论文,其中 49 篇符合纳入标准。综述发现了许多收集结果的方法,其中定制工具很常见。在标准化工具中,经常使用的是悲伤体验问卷(GEQ)和贝克抑郁量表(BDI-II)。大多数文章都为其所选的结果测量方法提供了某种形式的理由,通常都是以心理测量的稳健性为由,而不是考虑对服务使用者的影响。综述强调,在选择猝死丧亲干预的结果测量工具或方法时,需要慎重考虑。
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引用次数: 0
Transformations and transitions: The social and political life of the dead. 转变与过渡:死者的社会和政治生活。
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-07 DOI: 10.1080/07481187.2024.2424030
Lia Kent, Caroline Bennett, Jessica Auchter

Death is often considered the end of the story, and indeed the end of politics. The papers in this special issue demonstrate however that this is far from the case. They probe the transformations and transitions of the dead across varying cultural and social contexts, and time periods, and reckon with how human remains are repurposed, mobilized, represented, and integrated into larger narratives, including evidentiary, memorial, political, and emotional. They also understand the dead as complex and lively actors in the various ways they provoke the living and impact the way we think about larger political, cultural, and ethical questions. Collectively, the papers raise critical questions about how we understand the social, cultural, communal, religious, and political significance of human remains and of what remains in the aftermath of violence.

死亡往往被认为是故事的终结,甚至是政治的终结。然而,本特刊中的论文表明,事实远非如此。这些论文探讨了死者在不同文化和社会背景下以及不同时期的转变和过渡,并探讨了人类遗骸如何被重新利用、动员、表现和融入更大的叙事中,包括证据、纪念、政治和情感叙事。他们还将死者理解为复杂而生动的角色,他们以各种方式激起生者的思考,并影响我们思考更大的政治、文化和伦理问题的方式。总之,这些论文就我们如何理解人类遗骸的社会、文化、社区、宗教和政治意义以及暴力事件后的遗骸提出了重要问题。
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引用次数: 0
Toward a better assessment of coping with bereavement: Applicability to diverse experiences and conceptual structure of the coping with bereavement questionnaire. 为更好地评估如何应对丧亲之痛而努力:应对丧亲之痛问卷对不同经历的适用性和概念结构。
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-06 DOI: 10.1080/07481187.2024.2420875
Camille Boever, Emmanuelle Zech, Jacques Cherblanc

Coping strategies are key adjustable elements mediating the relationship between risk factors and grief outcomes. It is essential to assess coping correctly. Scales based on the Dual Process Model of Coping with Bereavement have tended to confuse coping strategies and symptoms. The Coping with Bereavement Questionnaire was created to address such shortcomings. This article uses two datasets from Belgian studies to assess the applicability of the items as well as the factor structure of the scale. Logistic regressions revealed nine items as less applicable to a more diverse bereaved sample than people who lost their intimate partner, leading to their exclusion. Factor analyses revealed and confirmed a three-factor structure of coping strategies describing the bereaved's efforts to (1) accept the death and look to the future, (2) avoid thoughts and feelings, and (3) maintain the bond with the deceased. Theoretical issues related to the DPM are discussed.

应对策略是调节风险因素与悲伤结果之间关系的关键因素。正确评估应对策略至关重要。以应对丧亲之痛的双重过程模型为基础的量表往往会混淆应对策略和症状。应对丧亲之痛问卷就是为了解决这些问题而设计的。本文利用比利时研究的两个数据集来评估项目的适用性以及量表的因子结构。逻辑回归显示,与失去亲密伴侣的人相比,有九个项目不太适用于更多样化的丧亲样本,因此被排除在外。因子分析显示并确认了应对策略的三因子结构,该结构描述了丧亲者在以下方面所做的努力:(1)接受死亡并展望未来;(2)回避想法和感受;(3)保持与逝者的联系。本文讨论了与 DPM 相关的理论问题。
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引用次数: 0
Missing pieces and body parts: On bodily integrity and political violence. 缺失的碎片和肢体:关于身体完整性和政治暴力。
IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Pub Date : 2024-11-05 DOI: 10.1080/07481187.2024.2424028
Jessica Auchter

While much attention is paid to what happens to dead bodies after political violence, disaster, or atrocity, less attention has been paid to body parts, despite the wide-ranging efforts, both material (often forensic) and discursive, to reconstitute or resuscitate the whole dead body. Materializing the whole body is often considered key to truth-telling mechanisms and for closure for family members of the missing and dead, thus the body part is often posited as a problem in need of a solution. We are seeing, largely due to advances in forensic technologies, an increasing belief that all body parts can be identified and distinguished from other materials, and should, therefore, be recovered and repatriated to the whole body in its death. To explore this dynamic, I make two key arguments. First, I suggest that reassembling bodies is framed as a mechanism of re-subjectification that is key to reconciliation and justice after political violence. A body part is an object, but a dead body is in most contexts still considered a subject, even dead, so putting a dead body back together is considered re-humanizing and gives the dead body back its political agency. Second, I suggest that when this cannot be done materially due to the obstacles posed by modern warfare, we often see governance techniques that seek to do so discursively.

政治暴力、灾难或暴行发生后,尸体的去向备受关注,但对尸体部分的关注却较少,尽管人们在物质(通常是法医)和话语两方面做出了广泛努力,以重建或复活整个尸体。将整个尸体实体化通常被认为是真相说明机制的关键,也是失踪者和死者家属了结案件的关键,因此尸体部分通常被认为是一个需要解决的问题。我们看到,主要是由于法医技术的进步,越来越多的人相信,所有身体部位都可以被识别并与其他材料区分开来,因此,在尸体死亡后,应将其复原并归还给整个尸体。为了探讨这一动态,我提出了两个关键论点。首先,我认为重新组装身体是一种重新主体化的机制,是政治暴力后和解与正义的关键。身体的一部分是客体,但在大多数情况下,尸体仍被视为主体,甚至已经死亡,因此,将尸体重新组装在一起被视为重新人性化,使尸体重新获得政治能动性。其次,我认为,当由于现代战争造成的障碍而无法从物质上做到这一点时,我们经常看到一些治理技术试图从话语上做到这一点。
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引用次数: 0
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Death Studies
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