Kylie D. Mallory , Hiba Al-Hakeem , Shazeen Alam , Sandy Brassel , Tamiko Isaacs , Sonya Basarke , Marie Hooper , Andrea Hickling , Shannon E. Scratch
{"title":"Evaluating iSibWorks: A virtual cognitive-behavioural intervention for siblings of children with disabilities","authors":"Kylie D. Mallory , Hiba Al-Hakeem , Shazeen Alam , Sandy Brassel , Tamiko Isaacs , Sonya Basarke , Marie Hooper , Andrea Hickling , Shannon E. Scratch","doi":"10.1016/j.pecinn.2024.100326","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><p>1) Examine if participation in <em>iSibWorks</em>, a group-based virtual intervention for siblings of children with disabilities, impacted siblings' perception of quality of life (QoL) and social support; and 2) Explore siblings' feedback on <em>iSibWorks</em>.</p></div><div><h3>Methods</h3><p>Thirty-eight children participated in <em>iSibWorks</em> and completed questionnaires (Pediatric Quality of Life [PedsQL™], Social Support Scale for Children [SSSC]) one week pre- and post-intervention. Conventional content analysis was used to explore siblings' open-ended responses on a post-participation feedback form.</p></div><div><h3>Results</h3><p>No significant differences in PedsQL™ and SSSC scores were observed after participating in <em>iSibWorks</em>. Despite this, siblings had positive feedback about <em>iSibWorks</em> and discussed: 1) Engaging in group learning and activities, 2) Meeting other siblings, and 3) Applying <em>iSibWorks</em> content to their daily life.</p></div><div><h3>Conclusion</h3><p>Factors related to the COVID-19 pandemic such as family stress, school closures, virtual learning, and social distancing likely impacted study results. Although there were no significant changes in QoL and social support, siblings found <em>iSibWorks</em> to be fun, meaningful, and engaging.</p></div><div><h3>Innovation</h3><p>Siblings of children with disabilities can experience psychosocial challenges and there are few virtual interventions designed for this population. <em>iSibWorks</em> was adapted to address this gap and increase access and support for siblings of children with disabilities.</p></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100326"},"PeriodicalIF":0.0000,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2772628224000748/pdfft?md5=fd071caa805cf7a124660d435c3938f7&pid=1-s2.0-S2772628224000748-main.pdf","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"PEC innovation","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2772628224000748","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
Objectives
1) Examine if participation in iSibWorks, a group-based virtual intervention for siblings of children with disabilities, impacted siblings' perception of quality of life (QoL) and social support; and 2) Explore siblings' feedback on iSibWorks.
Methods
Thirty-eight children participated in iSibWorks and completed questionnaires (Pediatric Quality of Life [PedsQL™], Social Support Scale for Children [SSSC]) one week pre- and post-intervention. Conventional content analysis was used to explore siblings' open-ended responses on a post-participation feedback form.
Results
No significant differences in PedsQL™ and SSSC scores were observed after participating in iSibWorks. Despite this, siblings had positive feedback about iSibWorks and discussed: 1) Engaging in group learning and activities, 2) Meeting other siblings, and 3) Applying iSibWorks content to their daily life.
Conclusion
Factors related to the COVID-19 pandemic such as family stress, school closures, virtual learning, and social distancing likely impacted study results. Although there were no significant changes in QoL and social support, siblings found iSibWorks to be fun, meaningful, and engaging.
Innovation
Siblings of children with disabilities can experience psychosocial challenges and there are few virtual interventions designed for this population. iSibWorks was adapted to address this gap and increase access and support for siblings of children with disabilities.