Evaluating iSibWorks: A virtual cognitive-behavioural intervention for siblings of children with disabilities

Kylie D. Mallory , Hiba Al-Hakeem , Shazeen Alam , Sandy Brassel , Tamiko Isaacs , Sonya Basarke , Marie Hooper , Andrea Hickling , Shannon E. Scratch
{"title":"Evaluating iSibWorks: A virtual cognitive-behavioural intervention for siblings of children with disabilities","authors":"Kylie D. Mallory ,&nbsp;Hiba Al-Hakeem ,&nbsp;Shazeen Alam ,&nbsp;Sandy Brassel ,&nbsp;Tamiko Isaacs ,&nbsp;Sonya Basarke ,&nbsp;Marie Hooper ,&nbsp;Andrea Hickling ,&nbsp;Shannon E. Scratch","doi":"10.1016/j.pecinn.2024.100326","DOIUrl":null,"url":null,"abstract":"<div><h3>Objectives</h3><p>1) Examine if participation in <em>iSibWorks</em>, a group-based virtual intervention for siblings of children with disabilities, impacted siblings' perception of quality of life (QoL) and social support; and 2) Explore siblings' feedback on <em>iSibWorks</em>.</p></div><div><h3>Methods</h3><p>Thirty-eight children participated in <em>iSibWorks</em> and completed questionnaires (Pediatric Quality of Life [PedsQL™], Social Support Scale for Children [SSSC]) one week pre- and post-intervention. Conventional content analysis was used to explore siblings' open-ended responses on a post-participation feedback form.</p></div><div><h3>Results</h3><p>No significant differences in PedsQL™ and SSSC scores were observed after participating in <em>iSibWorks</em>. Despite this, siblings had positive feedback about <em>iSibWorks</em> and discussed: 1) Engaging in group learning and activities, 2) Meeting other siblings, and 3) Applying <em>iSibWorks</em> content to their daily life.</p></div><div><h3>Conclusion</h3><p>Factors related to the COVID-19 pandemic such as family stress, school closures, virtual learning, and social distancing likely impacted study results. Although there were no significant changes in QoL and social support, siblings found <em>iSibWorks</em> to be fun, meaningful, and engaging.</p></div><div><h3>Innovation</h3><p>Siblings of children with disabilities can experience psychosocial challenges and there are few virtual interventions designed for this population. <em>iSibWorks</em> was adapted to address this gap and increase access and support for siblings of children with disabilities.</p></div>","PeriodicalId":74407,"journal":{"name":"PEC innovation","volume":"5 ","pages":"Article 100326"},"PeriodicalIF":0.0000,"publicationDate":"2024-07-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2772628224000748/pdfft?md5=fd071caa805cf7a124660d435c3938f7&pid=1-s2.0-S2772628224000748-main.pdf","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"PEC innovation","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2772628224000748","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

Abstract

Objectives

1) Examine if participation in iSibWorks, a group-based virtual intervention for siblings of children with disabilities, impacted siblings' perception of quality of life (QoL) and social support; and 2) Explore siblings' feedback on iSibWorks.

Methods

Thirty-eight children participated in iSibWorks and completed questionnaires (Pediatric Quality of Life [PedsQL™], Social Support Scale for Children [SSSC]) one week pre- and post-intervention. Conventional content analysis was used to explore siblings' open-ended responses on a post-participation feedback form.

Results

No significant differences in PedsQL™ and SSSC scores were observed after participating in iSibWorks. Despite this, siblings had positive feedback about iSibWorks and discussed: 1) Engaging in group learning and activities, 2) Meeting other siblings, and 3) Applying iSibWorks content to their daily life.

Conclusion

Factors related to the COVID-19 pandemic such as family stress, school closures, virtual learning, and social distancing likely impacted study results. Although there were no significant changes in QoL and social support, siblings found iSibWorks to be fun, meaningful, and engaging.

Innovation

Siblings of children with disabilities can experience psychosocial challenges and there are few virtual interventions designed for this population. iSibWorks was adapted to address this gap and increase access and support for siblings of children with disabilities.

查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
评估 iSibWorks:针对残疾儿童兄弟姐妹的虚拟认知行为干预措施
方法38名儿童参加了iSibWorks,并在干预前后一周完成了调查问卷(儿科生活质量[PedsQL™]、儿童社会支持量表[SSSC])。结果参加 iSibWorks 后,PedsQL™ 和 SSSC 分数没有明显差异。尽管如此,兄弟姐妹们对 iSibWorks 仍有积极的反馈,并讨论了以下问题:结论与 COVID-19 大流行相关的因素,如家庭压力、学校关闭、虚拟学习和社会疏远可能会影响研究结果。尽管在 QoL 和社会支持方面没有发生重大变化,但兄弟姐妹们认为 iSibWorks 非常有趣、有意义且引人入胜。创新残疾儿童的兄弟姐妹可能会面临社会心理挑战,而针对这一人群设计的虚拟干预措施却很少。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 去求助
来源期刊
PEC innovation
PEC innovation Medicine and Dentistry (General)
CiteScore
0.80
自引率
0.00%
发文量
0
审稿时长
147 days
期刊最新文献
Measuring professionals' attitudes toward persistent somatic symptoms: Development, validation, and reliability of the professionals' Attitude to Persistent Somatic Symptoms Questionnaire (PAPSS) Tech + touch: A pilot study to facilitate access to health information technology for Spanish-speaking parents Single-encounter elicitation framework for diagnostic excellence patient-reported measures: SEE-Dx-PRM The effectiveness of integrating making every contact count into an undergraduate medical curriculum How often are patients recording their healthcare consultations in Australia and why? An online survey
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1