PEC innovation最新文献

Measuring professionals' attitudes toward persistent somatic symptoms: Development, validation, and reliability of the professionals' Attitude to Persistent Somatic Symptoms Questionnaire (PAPSS) 测量专业人员对持续性躯体症状的态度：专业人员对持续性躯体症状的态度问卷 (PAPSS) 的开发、验证和可靠性

PEC innovation

Pub Date : 2024-11-22 DOI: 10.1016/j.pecinn.2024.100359

Denise J.C. Hanssen , Charlotte A. Spiertz , Lineke M. Tak , Judith G.M. Rosmalen

Objective

The healthcare professional's attitude toward persistent somatic symptoms (PSS) seems to play an important role in access to and quality of care for patients with PSS. To encourage research on PSS attitude, we developed and validated the Professionals' Attitude to Persistent Somatic Symptoms Questionnaire (PAPSS).

Methods

A list of items was developed through theory and a focus group with PSS experts, with response categories on a 5-point Likert scale ranging from “strongly disagree” to “strongly agree”. These items were then validated through a sample (N = 411) consisting of medical specialists, general practitioners, and psychologists. Subscales of the PAPSS were constructed using repeated factor analyses and reliability analyses.

Results

Exploratory factor analyses resulted in a 15-item questionnaire with four subscales: “Perceived burden” and “Affinity” showed good reliability rates; “Perceived professional competence” and “Openness to patient-centered care” had questionable reliability rates. In general, psychologists had the most pronounced scores on subscales compared to medical specialists and general practitioners.

Innovation

The PAPSS is the first questionnaire for exploring the role of the professional's attitude toward PSS; it offers opportunities for further research on the influence of attitude on treatment of PSS.

Conclusions

The PAPPS is a relatively short questionnaire that can be used in both quantitative research and clinical care. However, it requires further research on psychometric qualities, including the validation of the translated versions of this questionnaire.

目标医疗保健专业人员对持续性躯体症状（PSS）的态度似乎对 PSS 患者的就医和医疗质量起着重要作用。为了鼓励对 PSS 态度的研究，我们开发并验证了 "专业人员对顽固性躯体症状的态度问卷"（PAPSS）。然后，由医学专家、全科医生和心理学家组成的样本（N = 411）对这些项目进行了验证。通过重复因子分析和可靠性分析，构建了 PAPSS 的子量表："感知负担 "和 "亲和力 "显示出良好的可靠性；"感知专业能力 "和 "对以患者为中心的护理的开放性 "的可靠性值得怀疑。总体而言，与医学专家和全科医生相比，心理学家在各分量表上的得分最为明显。创新PAPSS是第一份探索专业人员对PSS态度作用的问卷；它为进一步研究态度对PSS治疗的影响提供了机会。结论PAPPS是一份相对简短的问卷，可用于定量研究和临床护理。然而，它还需要进一步的心理测量学研究，包括对该问卷的翻译版本进行验证。

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引用次数: 0

Single-encounter elicitation framework for diagnostic excellence patient-reported measures: SEE-Dx-PRM 卓越诊断患者报告测量的单次触发框架：SEE-Dx-PRM

PEC innovation

Pub Date : 2024-11-17 DOI: 10.1016/j.pecinn.2024.100357

Vadim Dukhanin , Kathryn M. McDonald , Susan K. Peterson , Kelly T. Gleason

Objective

To create a conceptual framework for assessing patient-reported diagnostic excellence of a single diagnostic encounter.

Methods

We held multiple expert panel meetings to prioritize a priori identified diagnostically relevant patient-reported experience and outcome domains. We combined and synthesized expert feedback with our experience in measure development and the reflections of a patient focus group. We then developed the framework, SEE-Dx-PRM (Single-Encounter Elicitation Framework for Diagnostic Excellence Patient-Reported Measures).

Results

We defined the SEE-Dx-PRM's scope as intended for a single diagnostic encounter in emergency or urgent care, prospective and agnostic of the health condition, and with a timeframe of within several days up to a month from the encounter. The SEE-Dx-PRM's diagnostic excellence outcomes are: (1) accurate diagnosis and (2) either final, or working diagnosis, or specific next steps to establish diagnosis that were communicated and comprehended by patients. SEE-Dx-PRM encompasses 2 domains associated with accurate diagnosis, 5 domains of patient perception of iterative diagnostic process, 5 domains associated with communication and comprehension, and a domain associated with uncertainty.

Conclusion

SEE-Dx-PRM-informed measures might support quality improvement, prompt system response, and research on diagnostic excellence.

Innovation

SEE-Dx-PRM presents a novel patient-centered framework for the emerging diagnostic excellence construct and its measurement.

方法我们召开了多次专家小组会议，对事先确定的与诊断相关的患者报告体验和结果领域进行优先排序。我们将专家的反馈意见与我们在措施开发方面的经验以及患者焦点小组的反思相结合并进行了综合。结果我们将 SEE-Dx-PRM 的范围定义为急诊或紧急护理中的单次诊断，具有前瞻性且与健康状况无关，时间范围为就诊后几天到一个月内。SEE-Dx-PRM 的卓越诊断结果包括(1) 诊断准确；(2) 最终诊断或工作诊断，或与患者沟通并让患者理解的下一步诊断具体步骤。SEE-Dx-PRM包含2个与准确诊断相关的领域、5个与患者对迭代诊断过程的感知相关的领域、5个与沟通和理解相关的领域以及1个与不确定性相关的领域。创新SEE-Dx-PRM为新兴的卓越诊断构建及其测量提供了一个以患者为中心的新框架。

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引用次数: 0

Tech + touch: A pilot study to facilitate access to health information technology for Spanish-speaking parents 技术+触摸：促进讲西班牙语的父母使用健康信息技术的试点研究

PEC innovation

Pub Date : 2024-11-17 DOI: 10.1016/j.pecinn.2024.100358

Jennifer C. Gutierrez-Wu , Jennifer Pilotos McBride , Allison Pittman , Yumei Yang , Feng-Chang Lin , Kori B. Flower

Objectives

As Spanish-speaking parents face many barriers to care, we sought to: (1) understand HIT experiences and preferences; (2) pilot test a tablet/navigator intervention; (3) understand HIT uses and barriers.

Methods

Prospective, uncontrolled, non-randomized, pilot intervention examining facilitated access to a patient portal for Spanish-speaking parents. Parents were recruited from pediatric specialty clinics in an academic center. Parents received an electronic tablet pre-populated with health resources, plus 2 telephone calls from a navigator. Surveys assessed HIT perceptions/use; portal activation was assessed through electronic records.

Results

Twenty-five Spanish-speaking parents were enrolled. All parents wished they knew more about their child's health and that doctors knew them better. Most parents endorsed interest in HIT, however only 12% activated portals. Post-intervention, there were non-significant increases in using portals to make appointments, receive reminders, send/receive messages, and view labs/instructions. Uses of study tablets included video visits (56%), health/COVID information (16%), and schoolwork (16%).

Innovation

Spanish-speaking parents express high interest in HIT. Provision of tablets may augment electronic capacity and facilitate video visits. Greater Spanish-language support is needed for Spanish-speaking parents to meaningfully use portals.

目标由于讲西班牙语的父母在护理方面面临许多障碍，我们试图(1) 了解 HIT 体验和偏好；(2) 试点测试平板电脑/导航仪干预措施；(3) 了解 HIT 使用情况和障碍。家长是从一家学术中心的儿科专科诊所招募的。家长们会收到一个预先填充了健康资源的电子平板电脑，以及导航员的两次电话指导。调查评估了对 HIT 的看法/使用情况；通过电子记录评估了门户网站的激活情况。所有家长都希望他们能更多地了解孩子的健康状况，希望医生能更了解他们。大多数家长表示对 HIT 感兴趣，但只有 12% 的家长激活了门户网站。干预后，使用门户网站进行预约、接收提醒、发送/接收信息以及查看化验单/说明书的次数均有非显著性增长。学习平板电脑的用途包括视频访问（56%）、健康/COVID 信息（16%）和学校作业（16%）。提供平板电脑可增强电子能力并促进视频探访。需要为讲西班牙语的家长提供更多的西班牙语支持，使他们能够有意义地使用门户网站。

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引用次数: 0

The effectiveness of integrating making every contact count into an undergraduate medical curriculum 将 "重视每次接触 "纳入医学本科课程的有效性

PEC innovation

Pub Date : 2024-11-15 DOI: 10.1016/j.pecinn.2024.100356

Robyn Fletcher , Alexander Hammant , Rebecca Symes , Andrew Turvey , Andy Ward , Ary Mahdzir , Bharathy Kumaravel

Objective

To evaluate the feasibility and effectiveness of integrating Making Every Contact Count (MECC) using Healthy Conversation Skills (HCS) into an undergraduate medical curriculum and test the performance of an associated assessment.

Methods

Concepts were introduced to second year students through lectures, small group seminars, role-plays and a new Objective Structured Clinical Examination (OSCE).

station. Students' feedback was gathered and their examination performance was analysed.

Results

MECC/HCS was integrated into the undergraduate medical curriculum at Leicester Medical School. Teaching had a positive impact on the students' self-reported confidence in carrying out MECC (7/10 to 9/10, p > 0.001) and in their self-reported likelihood of doing so (7/10 to 9/10, p > 0.001). The MECC OSCE station was good at discriminating between students' abilities (group discrimination metric 4.36–4.44). The small negative alpha differences for the MECC/HCS station (−0.032 and − 0.028) indicated this station positively contributed to the overall reliability of the assessment.

Conclusion

It was feasible to integrate MECC/HCS into an undergraduate medical curriculum, with a positive impact on students' confidence.

Innovation

In addition to teaching, this study describes the development and testing of OSCE stations to assess students' MECC skills in simulated clinical scenarios.

方法通过讲座、小组研讨会、角色扮演和新的客观结构化临床考试（OSCE）向二年级学生介绍相关概念。收集了学生的反馈意见，并对他们的考试成绩进行了分析。教学对学生自我报告的进行 MECC 的信心（7/10 到 9/10，p >；0.001）和自我报告的进行 MECC 的可能性（7/10 到 9/10，p >；0.001）产生了积极影响。MECC OSCE 考试站在区分学生能力方面表现出色（小组区分度指标为 4.36-4.44）。结论将 MECC/HCS 纳入医学本科课程是可行的，并对学生的自信心产生了积极的影响。

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引用次数: 0

How often are patients recording their healthcare consultations in Australia and why? An online survey 在澳大利亚，患者记录医疗咨询的频率如何？在线调查

PEC innovation

Pub Date : 2024-11-08 DOI: 10.1016/j.pecinn.2024.100355

Megan Prictor , Glyn Elwyn , Amelia Hyatt

Purpose

Recording important healthcare consultations can benefit patients. Technological developments enable recordings by patients and health professionals, as well as real-time ‘listening’ by AI scribes. Not enough is known about whether and why patients record their consultations.

Objective

To investigate people's experiences and preferences regarding consultation recording in Australia.

Methods

A 21-item online survey available for all Australians aged 18+ was distributed via social media and professional networks in 2022. Items explored recording behaviour (past and planned), and reasons for recording and sharing. Quantitative data were analysed descriptively; qualitative content analysis was used to analyse open-text items.

Results

A total of 486 responses were received, of which 236 responses were analysed. Of these, 26 % had openly recorded a healthcare consultation, and 15 % had recorded covertly. The majority (71 %) of participants would consider recording a visit and would like their clinic to allow this (56 %). Participants strongly opposed the idea of sharing a recording on social media (84 %). Open-text responses indicated participants valued the health professional's consent, and protecting their own privacy by not oversharing recordings.

Conclusion

Recording of consultations in Australia is common, usually to enhance patients' knowledge, understanding, and participation in their care. Patients value the possibility of recording, especially when they are experiencing vulnerability. Recording can help people navigate the impacts of disability and barriers to information access. Privacy and fairness remain paramount.

Innovation

This is the first survey of recording practices in Australia and is highly-relevant given recent technological developments. The findings indicate that changes in policy, law and technologies themselves are needed, to clarify parties' rights and responsibilities and to ensure the benefits of consultation recording are realised.

目的记录重要的医疗咨询可使患者受益。随着技术的发展，患者和医疗专业人员可以进行记录，人工智能抄写员也可以进行实时 "监听"。方法 2022年，通过社交媒体和专业网络向所有18岁以上的澳大利亚人发放了一份包含21个项目的在线调查。调查项目探讨了记录行为（过去和计划中）以及记录和分享的原因。对定量数据进行了描述性分析；对开放文本项目进行了定性内容分析。结果共收到 486 份回复，对其中 236 份回复进行了分析。其中 26% 的人公开记录过医疗咨询，15% 的人秘密记录过。大多数参与者（71%）会考虑对就诊过程进行录音，并希望所在诊所允许这样做（56%）。参与者强烈反对在社交媒体上分享录音（84%）。开放文本回复表明，参与者重视医务人员的同意，并通过不过度分享录音来保护自己的隐私。患者非常重视录音的可能性，尤其是在他们感到脆弱的时候。录音可以帮助人们克服残疾的影响和获取信息的障碍。这是首次对澳大利亚的记录实践进行调查，与最近的技术发展密切相关。调查结果表明，需要对政策、法律和技术本身进行改革，以明确各方的权利和责任，确保实现咨询记录的益处。

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引用次数: 0

Improving communication to increase uptake of high-risk breast cancer prevention appointments: Building a better letter 改善沟通，提高高危乳腺癌预防预约的接受率：建立一封更好的信

PEC innovation

Pub Date : 2024-11-06 DOI: 10.1016/j.pecinn.2024.100354

Evan K. Perrault , Maria K. Venetis , Tarah J. Ballinger

Objective

Mailed letters to women identified as being at high-risk for developing breast cancer were not having the desired effect for encouraging appointments with prevention-focused providers at a large Midwest healthcare system. A partnership with communication scholars sought to revise the letter to increase awareness, intentions, and appointments.

Methods

Guided by the Extended Parallel Process Model, survey responses were collected from letter recipients over the course of two years, both pre and post letter revision. Appointments attributed to letters were also tracked.

Results

Recipients of the revised letter had increased knowledge regarding the length of prevention appointments and indicated greater self-efficacy and intentions to make and attend appointments compared to those who received the non-revised letter. A greater percentage who received the revised letter also made appointments.

Conclusion

Partnering with communication scholars helped with improving a letter mailed to thousands of patients each year. Finding ways to increase response-efficacy of breast cancer prevention activities within communications may assist in increasing appointments.

Innovation

Cross-disciplinary partnerships across the medical and social sciences – while not quick or simple – are essential for finding ways to improve patient wellbeing and hopefully reducing the prevalence of preventable diseases in the future.

目标向被确定为乳腺癌高危人群的妇女邮寄信件，在鼓励她们与中西部一家大型医疗保健系统中以预防为重点的医疗服务提供者预约方面没有达到预期效果。我们与传播学者合作，对信件进行了修订，以提高人们对信件的认知度、意向和预约率。方法在扩展平行过程模型的指导下，我们在信件修订前后的两年时间里收集了收信人的调查回复。结果与未收到修订版信件的人相比，收到修订版信件的人对预防预约时间的了解有所增加，并表示有更强的自我效能感和预约及参加预约的意愿。结论与传播学者合作有助于改进每年邮寄给数千名患者的信件。创新医学和社会科学之间的跨学科合作--虽然不是一蹴而就或简单易行的--对于找到改善患者福祉的方法以及希望在未来减少可预防疾病的流行至关重要。

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引用次数: 0

Factors contributing to implementation of a father-friendly neonatal intensive care unit in Denmark 丹麦实施父亲友好型新生儿重症监护病房的因素

PEC innovation

Pub Date : 2024-10-28 DOI: 10.1016/j.pecinn.2024.100353

Betty Noergaard , Karin Yde Waidtløw , Poul-Erik Kofoed , Signe Valkvist

Objective

Although family-centred care (FCC) is recommended in neonatal intensive care units (NICUs), barriers still exist. This study aimed to identify and understand and nurse-related factors contributing to the implementation of a father-friendly NICU (FF-NICU).

Methods

Eleven pre- and post-implementation focus groups were conducted with 21 nurses. Data were analysed using meaning condensation.

Results

Four pre-implementation themes emerged: 1) fathers' limited presence, 2) worries, vulnerability, and emotions, 3) types of fathers, and 4) involvement of fathers.

Eight themes contributed to the implementation of FF-NICU: 1) Advantage for the infant/family, 2) Presence of fathers, 3) Less work for the nurses, 4) Daily work routines, 5) Taking something from the mother, 6) Different approaches, 7) Creativity and flexibility, and 8) Implementation process.

Conclusion

Important for the implementation of FF-NICU were that the change was necessary, advantageous for the nurses, and beneficial for the families. Still, nurses needed to be flexible and creative in the care of the fathers/families.

Innovation

This study focused on fathers - an underexposed target group. Examining key factors for those executing the intervention and discussing the findings using the theoretical framework of John P. Kotter's implementation strategy, we contribute to a better understanding of implementation processes.

目的虽然新生儿重症监护病房（NICU）推荐使用以家庭为中心的护理（FCC），但仍存在障碍。本研究旨在识别和了解有助于实施父亲友好型新生儿重症监护病房（FF-NICU）的护士相关因素。方法对 21 名护士进行了 7 次实施前和实施后的焦点小组讨论。结果实施前出现了四个主题：1）父亲的有限存在；2）忧虑、脆弱和情绪；3）父亲的类型；4）父亲的参与：1) 对婴儿/家庭有利；2) 父亲的存在；3) 减少护士的工作；4) 日常工作常规；5) 从母亲那里获取一些东西；6) 不同的方法；7) 创造性和灵活性；8) 实施过程。但是，护士在照顾父亲/家属时仍需要灵活和创新。我们研究了执行干预措施的关键因素，并使用约翰-科特（John P. Kotter）的实施战略理论框架对研究结果进行了讨论，从而有助于更好地理解实施过程。

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引用次数: 0

Patients' and health professionals' perspectives regarding shared decision making in the psychiatric inpatient setting – A multiple qualitative case study 病人和医护人员对精神病住院患者共同决策的看法--一项多重定性案例研究

PEC innovation

Pub Date : 2024-10-21 DOI: 10.1016/j.pecinn.2024.100352

Caroline Gurtner , Jos M.G.A. Schols , Christa Lohrmann , Sabine Hahn

Objective

Shared decision-making is one promising approach to promoting recovery and person-centred care but seems challenging for implementation in clinical practice. This study aimed to explore how patients and health professionals experience shared decision-making and its facilitators and barriers.

Methods

A multiple qualitative case study design was chosen, using a constant comparative method. Multiple data sources were used, including individual interviews, observation, document analysis and a focus group.

Results

Through first a within-case analysis and then second a cross-case analysis, four patient profiles and their potential for shared decision-making were constructed. The results indicate that in the daily routine of the psychiatric inpatient setting different forms of decision making are used, even though health professionals advocate shared decision-making as the favored approach. Patients also have varying expectations and perceptions regarding shared decision-making, which is reflected in the degree of their involvement.

Conclusion

Shared decision-making could be enhanced in the future by a more proactive communication style and the proactive provision of information on the part of health professionals, in order to enhance patient participation in decision-making.

Innovation

The study identified different forms of decision-making within the acute psychiatric inpatient setting, highlighting the gap between the advocated SDM approach and its practical implementation. This divergence is a key aspect, as it underlines the complexity of implementing SDM in real clinical settings.

目的共同决策是促进康复和以人为本的护理的一种有前途的方法，但在临床实践中实施起来似乎具有挑战性。本研究旨在探讨患者和医护人员如何体验共同决策，以及其促进因素和障碍。研究方法：本研究选择了多重定性案例研究设计，并采用了恒定比较法。研究使用了多种数据来源，包括个人访谈、观察、文件分析和焦点小组。结果通过首先进行病例内部分析，然后进行交叉分析，构建了四种病人特征及其共同决策的可能性。结果表明，在精神科住院病人的日常生活中，尽管医护人员主张共同决策是最受欢迎的方法，但他们还是采用了不同的决策形式。患者对共同决策的期望和看法也各不相同，这反映在他们的参与程度上。创新该研究发现了急诊精神病住院环境中的不同决策形式，凸显了所倡导的 SDM 方法与其实际执行之间的差距。这种差异是一个关键方面，因为它强调了在实际临床环境中实施 SDM 的复杂性。

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引用次数: 0

Uneasiness in interdisciplinary research and the importance of metaphors: A case story on building an interdisciplinary chronic pain research team 跨学科研究的不确定性和隐喻的重要性：建立跨学科慢性疼痛研究团队的案例故事

PEC innovation

Pub Date : 2024-10-20 DOI: 10.1016/j.pecinn.2024.100350

T.C. Van Charldorp , M.A. Strick , J.C. de Grauw , S. Brugman , Y. Van de Burgt , L.H.H. Winkens , F.J. Meye , M. Rijsdijk , H.L.D.M. Willemen

Interdisciplinary research is increasingly recognized as a key method to tackle complex societal challenges and stimulate creativity to find innovative solutions. Our key goal when starting our collaboration was to come to innovative ways of treating chronic pain. An ambitious goal that requires out-of-the-box and high-risk-high-gain research. However, interdisciplinary research in practice can be uneasy and will not always be successful. This paper describes a case story focussing on the challenges we faced building an interdisciplinary team. One of the most important lessons is that researchers from different disciplines may think they speak a universal ‘language of science’, but a thorough understanding of each other's ways of working, research paradigms, methods, and concepts is necessary before they can start working together on solving scientific questions. In fact, if researchers cannot understand each other's language, they cannot expect patients to understand scientific language either. Lastly, for academics to engage with a non-scientific audience and vice-versa, we need to find and create places to meet and find ways to interact effectively. Language is the medium through which all these interactions take place. It is therefore essential that language takes a central place in the process of collaboration across disciplines, interdisciplinary research, patient participation and public engagement. In this case story, we share our experiences in creating a common language, summarized in five steps (1: creating the team; 2: metaphor-forced introduction to disciplines; 3: creating common ground; 4: outreach; 5: integration). Metaphors play an important role in this process. We will demonstrate how we reflectively progressed through these steps while enhancing interdisciplinarity, (scientific) innovation and public engagement. This five-step journey can be used as a process-tool for any other high-risk-high-gain research team seeking to innovate through interdisciplinarity – with the risk of becoming a brilliant failure.

跨学科研究越来越被认为是应对复杂社会挑战和激发创造力以找到创新解决方案的重要方法。我们开始合作时的主要目标是找到治疗慢性疼痛的创新方法。这是一个雄心勃勃的目标，需要打破常规、高风险高收益的研究。然而，跨学科研究在实践中可能会遇到困难，也不一定总能取得成功。本文介绍了一个案例，重点阐述了我们在组建跨学科团队时面临的挑战。其中最重要的一条经验是，来自不同学科的研究人员可能会认为他们说的是一种通用的 "科学语言"，但在开始合作解决科学问题之前，他们必须对彼此的工作方式、研究范式、方法和概念有透彻的了解。事实上，如果研究人员不能理解对方的语言，就不能指望患者也能理解科学语言。最后，学术界要与非科学界的受众接触，反之亦然，我们需要找到并创造会面的场所，找到有效互动的方式。语言是进行所有这些互动的媒介。因此，在跨学科合作、跨学科研究、患者参与和公众参与的过程中，语言必须占据中心位置。在本案例故事中，我们分享了创建共同语言的经验，并将其总结为五个步骤（1：创建团队；2：以隐喻为基础的学科介绍；3：创建共同点；4：外联；5：整合）。隐喻在这一过程中发挥了重要作用。我们将展示如何通过这些步骤取得反思性进展，同时加强跨学科性、（科学）创新和公众参与。这五步旅程可作为任何其他高风险、高收益研究团队寻求通过跨学科进行创新的过程工具--冒着成为辉煌失败者的风险。

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引用次数: 0

Helping children cope with a mother's breast cancer diagnosis: ‘The telling box’ – A pilot study 帮助儿童应对母亲的乳腺癌诊断："倾诉箱"--一项试点研究

PEC innovation

Pub Date : 2024-10-18 DOI: 10.1016/j.pecinn.2024.100351

Joyce M.J. de Vos-Houben , Femke Bruls , Christel Heiyerjans , Rianne Roijen , Trijntje Völlink , Esther C. Bakker

Objective

Discussing cancer with children presents challenges. Evidence underscores the importance of transparent communication in aiding children's coping mechanisms amidst a parent's diagnosis. ‘The telling box’ intervention was developed to assist mothers in discussing cancer with their children. This study aimed to explore nurses' and mothers' perspectives on the ‘telling box’.

Methods

Semi-structured interviews were conducted with six oncology nurses and five mothers diagnosed with breast cancer to assess their experiences and opinions regarding ‘the telling box’.

Results and conclusion

Both nurses and mothers emphasize the significance of open communication with children. Nurses identified ‘the telling box’ as a valuable resource for starting discussions about cancer with children, but lack of time and knowledge were factors preventing them from distributing the boxes. The current design of the box did not meet the mothers' needs, and the timing of its distribution was suboptimal. We recommend education of nurses on the use of ‘the telling box’ and customizing its content based on the child's age and treatment stage of the mother.

Innovation

This study offers important insights from both patients and healthcare professionals. ‘The telling box’ was developed through collaborative efforts involving healthcare professionals and patients.

目标与儿童讨论癌症是一项挑战。有证据表明，在父母被诊断出患有癌症时，透明的沟通对于帮助儿童建立应对机制非常重要。我们开发了 "倾诉箱 "干预措施，以帮助母亲与子女讨论癌症问题。本研究旨在探讨护士和母亲对 "倾诉箱 "的看法。方法对六名肿瘤科护士和五名确诊为乳腺癌的母亲进行了半结构式访谈，以评估她们对 "倾诉箱 "的经验和看法。护士们认为 "倾诉箱 "是与儿童开始讨论癌症问题的宝贵资源，但缺乏时间和知识是阻碍她们分发 "倾诉箱 "的因素。目前的 "倾诉箱 "设计不能满足母亲们的需求，而且分发的时机也不理想。我们建议对护士进行有关使用'倾诉箱'的教育，并根据儿童的年龄和母亲的治疗阶段定制其内容。倾诉箱 "是在医护人员和患者的共同努力下开发出来的。

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引用次数: 0