Increasing trend in patients with life-limiting and complex chronic conditions

Javier Ochoa-Brezmes , Pablo del Villar Guerra , Jesús Andrés de Llano , Jesús Manuel Marugán de Miguelsanz
{"title":"Increasing trend in patients with life-limiting and complex chronic conditions","authors":"Javier Ochoa-Brezmes ,&nbsp;Pablo del Villar Guerra ,&nbsp;Jesús Andrés de Llano ,&nbsp;Jesús Manuel Marugán de Miguelsanz","doi":"10.1016/j.anpede.2024.07.008","DOIUrl":null,"url":null,"abstract":"<div><h3>Introduction and objectives</h3><p>To estimate the frequency of patients with diagnoses associated with life-limiting conditions (LLCs) or complex chronic conditions (CCCs).</p></div><div><h3>Methods</h3><p>Retrospective mixed population-based and hospital-based cohort study. Study universe consisted of the population aged less than 18 years of an autonomous community in Spain in the 2001–2021 period; the cases were patients admitted to hospital with a diagnosis associated with LLC or CCC during this period. We estimated age-adjusted annual prevalences and analysed changes in trends using joinpoint regression.</p></div><div><h3>Results</h3><p>The prevalence of LLCs increased significantly from 20.7 per 10 000 inhabitants under 18 years in 2001 to 51.3 per 10 000 in 2019. There was also a significant increase in CCCs from 39.9 per 10 000 in 2001 to 54.4 per 10 000 in 2019. The prevalence of patients with any of these conditions rose from 45 per 10 000 in 2001 to 86.8 per 10 000 in 2019; 30.3% of these patients had conditions of both types. There was a turning point in this increasing trend between 2019 and 2020, coinciding with the COVID-19 pandemic.</p></div><div><h3>Conclusions</h3><p>The prevalence of patients requiring specialized care has increased progressively in the last 20 years, similar to what has happened in other countries. The magnitude of the affected population must be taken into account when planning specialized paediatric palliative care and complex chronic care services.</p></div>","PeriodicalId":93868,"journal":{"name":"Anales de pediatria","volume":"101 2","pages":"Pages 95-103"},"PeriodicalIF":0.0000,"publicationDate":"2024-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2341287924001984/pdfft?md5=be5bb6fa0084daafef64d28b08f2ec79&pid=1-s2.0-S2341287924001984-main.pdf","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Anales de pediatria","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2341287924001984","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0

Abstract

Introduction and objectives

To estimate the frequency of patients with diagnoses associated with life-limiting conditions (LLCs) or complex chronic conditions (CCCs).

Methods

Retrospective mixed population-based and hospital-based cohort study. Study universe consisted of the population aged less than 18 years of an autonomous community in Spain in the 2001–2021 period; the cases were patients admitted to hospital with a diagnosis associated with LLC or CCC during this period. We estimated age-adjusted annual prevalences and analysed changes in trends using joinpoint regression.

Results

The prevalence of LLCs increased significantly from 20.7 per 10 000 inhabitants under 18 years in 2001 to 51.3 per 10 000 in 2019. There was also a significant increase in CCCs from 39.9 per 10 000 in 2001 to 54.4 per 10 000 in 2019. The prevalence of patients with any of these conditions rose from 45 per 10 000 in 2001 to 86.8 per 10 000 in 2019; 30.3% of these patients had conditions of both types. There was a turning point in this increasing trend between 2019 and 2020, coinciding with the COVID-19 pandemic.

Conclusions

The prevalence of patients requiring specialized care has increased progressively in the last 20 years, similar to what has happened in other countries. The magnitude of the affected population must be taken into account when planning specialized paediatric palliative care and complex chronic care services.

Abstract Image

查看原文
分享 分享
微信好友 朋友圈 QQ好友 复制链接
本刊更多论文
患有危及生命和复杂慢性病的患者人数呈上升趋势。
导言和目标:估算被诊断出患有限制生命疾病(LLCs)或复杂慢性疾病(CCCs)的患者频率:方法:基于人口和医院的回顾性混合队列研究。研究范围包括2001-2021年期间西班牙一个自治区内18岁以下的人口;病例为在此期间因诊断为LLC或CCC而入院的患者。我们估算了经年龄调整后的年度患病率,并采用连接点回归法分析了患病趋势的变化:LLC的发病率从2001年的每万名18岁以下居民20.7例大幅上升至2019年的每万名居民51.3例。CCC的发病率也从2001年的每10 000人中有39.9人明显增加到2019年的每10 000人中有54.4人。患有上述任何一种疾病的患者比例从 2001 年的每 10 000 人中有 45 人上升到 2019 年的每 10 000 人中有 86.8 人;其中 30.3% 的患者同时患有两种类型的疾病。在2019年至2020年期间,这一增长趋势出现了一个转折点,恰逢COVID-19大流行:结论:在过去 20 年中,需要特殊护理的患者人数逐渐增加,这与其他国家的情况类似。在规划专门的儿科姑息关怀和复杂慢性病护理服务时,必须考虑到受影响人群的规模。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
求助全文
约1分钟内获得全文 去求助
来源期刊
自引率
0.00%
发文量
0
审稿时长
20 weeks
期刊最新文献
Neutrophil CD64 expression increases in infants aged less than 3 months with fever without source: pilot study in the paediatric emergency care setting. Physical, social, and emotional impact on patients with congenital heart disease undergoing cardiac catheterization. If triage works, the ED works. Oral blistering mucositis in adolescent. Metabolopathy with characteristic clinical triad: Sengers syndrome.
×
引用
GB/T 7714-2015
复制
MLA
复制
APA
复制
导出至
BibTeX EndNote RefMan NoteFirst NoteExpress
×
×
提示
您的信息不完整,为了账户安全,请先补充。
现在去补充
×
提示
您因"违规操作"
具体请查看互助需知
我知道了
×
提示
现在去查看 取消
×
提示
确定
0
微信
客服QQ
Book学术公众号 扫码关注我们
反馈
×
意见反馈
请填写您的意见或建议
请填写您的手机或邮箱
已复制链接
已复制链接
快去分享给好友吧!
我知道了
×
扫码分享
扫码分享
Book学术官方微信
Book学术文献互助
Book学术文献互助群
群 号:481959085
Book学术
文献互助 智能选刊 最新文献 互助须知 联系我们:info@booksci.cn
Book学术提供免费学术资源搜索服务,方便国内外学者检索中英文文献。致力于提供最便捷和优质的服务体验。
Copyright © 2023 Book学术 All rights reserved.
ghs 京公网安备 11010802042870号 京ICP备2023020795号-1