Evaluation of NCI-Designated Cancer Center and Comprehensive Cancer Center Survivorship-Focused Websites: Information Provided and Accessibility.

IF 14.8 2区 医学 Q1 ONCOLOGY Journal of the National Comprehensive Cancer Network Pub Date : 2024-08-16 DOI:10.6004/jnccn.2024.7017
Rachel T Kurtzman, Lisa Mikesell, Benjamin F Crabtree
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Abstract

Background: Individuals with a history of cancer increasingly seek health information from online resources, including NCI-designated Cancer Center websites. Centers receive NCI designation because they provide excellent care and engage in cutting-edge research. However, the information presented on these webpages and their accessibility is unknown. An evaluation of the survivorship-focused webpages from NCI-designated Cancer Centers is needed to assess survivorship information and accessibility of these webpages.

Methods: We conducted an evaluation of the survivorship-focused webpages from 64 NCI-designated Cancer Centers. We evaluated where survivorship-focused webpages were housed, if there was a survivorship clinic or program, target audience of the webpage, how cancer survivor was defined, contact methods, and available resources. Accessibility outcomes included readability, font type, font size, color scheme, and alternative text (alt text) descriptors. An artificial intelligence (AI) audit was conducted to assess if the webpage was compliant with national accessibility guidelines.

Results: Most cancer centers had a survivorship-focused webpage, with 72% located on the cancer center's website and 28% on a health system website. Survivorship information available varied considerably and was often lacking in detail. Although three-quarters of webpages targeted patients only, variable definitions of cancer survivor were observed. Accessibility issues identified included inconsistent use of alt text descriptors, font size smaller than 15 points, and color schemes without adequate contrast. The average reading-level of information presented was above 12th grade. Only 9% of webpages were compliant with online accessibility guidelines; 72% semicompliant and 21% were noncompliant.

Conclusions: Information presented on NCI-designated Cancer Center survivorship-focused webpages was inconsistent, often lacking, and inaccessible. NCI-designated Cancer Centers are role models for cancer research in the United States and have an obligation to provide survivorship information. Changes to content and website design are needed to provide better information for individuals seeking resources and health information relative to their cancer and care.

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对 NCI 指定癌症中心和综合癌症中心幸存者网站的评估:提供的信息和可访问性。
背景:有癌症病史的人越来越多地从网上资源(包括 NCI 指定的癌症中心网站)寻求健康信息。这些中心之所以能获得 NCI 的指定,是因为它们能提供出色的医疗服务并从事前沿研究。然而,这些网页上提供的信息及其可访问性却不为人知。我们需要对NCI指定癌症中心的幸存者网页进行评估,以评估幸存者信息和这些网页的可访问性:我们对64个NCI指定癌症中心的幸存者网页进行了评估。方法:我们对 64 个 NCI 指定癌症中心的幸存者网页进行了评估。我们评估了幸存者网页的存放地点、是否有幸存者诊所或项目、网页的目标受众、如何定义癌症幸存者、联系方法以及可用资源。可访问性结果包括可读性、字体类型、字体大小、配色方案和替代文本(alt text)描述。还进行了人工智能(AI)审计,以评估网页是否符合国家可访问性指南:结果:大多数癌症中心都有以幸存者为重点的网页,其中 72% 位于癌症中心的网站上,28% 位于医疗系统的网站上。所提供的幸存者信息差异很大,而且往往不够详细。尽管四分之三的网页只针对患者,但对癌症幸存者的定义却各不相同。发现的可访问性问题包括:alt 文本描述符的使用不一致、字体大小小于 15 点、配色方案没有足够的对比度。所提供信息的平均阅读水平高于 12 年级。只有 9% 的网页符合在线可访问性指南;72% 半符合,21% 不符合:结论:NCI指定的癌症中心以幸存者为重点的网页所提供的信息不一致,经常缺乏信息,而且无法访问。NCI指定癌症中心是美国癌症研究的典范,有义务提供幸存者信息。需要对内容和网站设计进行修改,以便为寻求与癌症和护理相关的资源和健康信息的个人提供更好的信息。
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来源期刊
CiteScore
20.20
自引率
0.00%
发文量
388
审稿时长
4-8 weeks
期刊介绍: JNCCN—Journal of the National Comprehensive Cancer Network is a peer-reviewed medical journal read by over 25,000 oncologists and cancer care professionals nationwide. This indexed publication delivers the latest insights into best clinical practices, oncology health services research, and translational medicine. Notably, JNCCN provides updates on the NCCN Clinical Practice Guidelines in Oncology® (NCCN Guidelines®), review articles elaborating on guideline recommendations, health services research, and case reports that spotlight molecular insights in patient care. Guided by its vision, JNCCN seeks to advance the mission of NCCN by serving as the primary resource for information on NCCN Guidelines®, innovation in translational medicine, and scientific studies related to oncology health services research. This encompasses quality care and value, bioethics, comparative and cost effectiveness, public policy, and interventional research on supportive care and survivorship. JNCCN boasts indexing by prominent databases such as MEDLINE/PubMed, Chemical Abstracts, Embase, EmCare, and Scopus, reinforcing its standing as a reputable source for comprehensive information in the field of oncology.
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