Communications, engagement, and dissemination strategies for the HEALthy Brain and Child Development (HBCD) Study

IF 4.6 2区 医学 Q1 NEUROSCIENCES Developmental Cognitive Neuroscience Pub Date : 2024-08-13 DOI:10.1016/j.dcn.2024.101431
Katherine M. Cole , Chloe J. Jordan , Micaela Parkinson , Karla R. Estrada , Elizabeth A. Hoffman , Julie M. Croff , Michelle P. Freund , Katia D. Howlett , the HBCD Communications, Engagement, and Dissemination Committee
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Abstract

The HEALthy Brain and Child Development (HBCD) Study, a multi-site prospective longitudinal cohort study, will examine human brain, cognitive, behavioral, social, and emotional development beginning prenatally and planned through early childhood. Study success depends on the engagement and inclusion of diverse populations of pregnant participants and their children across the United States, including those at high and low risk for prenatal substance use. The Communications, Engagement, and Dissemination (CED) Committee is responsible for the development and implementation of a strategy to promote awareness about the study, encourage participation, and engage HBCD families, community partners, and collaborators. Initial work involved developing versatile recruitment and awareness materials with a consistent and inclusive message that reduces stigma and negative bias towards marginalized populations, including people with substance use and other mental health conditions. These efforts were shaped by an integrated product development workflow and early engagement with HBCD partners to address challenges. Ongoing work includes the expansion of HBCD outreach through newsletters and social media platforms with an emphasis on protecting participant privacy. Future activities will focus on disseminating scientific information through generation of infographics and webinars that will inform participants, families, and the public of discoveries generated from HBCD Study data.

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HEALthy Brain and Child Development (HBCD) 研究的交流、参与和传播战略
HEALthy Brain and Child Development (HBCD) 研究是一项多地点前瞻性纵向队列研究,将从产前开始并计划到幼儿期对人脑、认知、行为、社交和情感发育进行研究。研究的成功与否取决于全美不同怀孕参与者及其子女的参与和融入,包括产前药物使用的高风险和低风险人群。交流、参与和传播 (CED) 委员会负责制定和实施一项战略,以提高人们对该研究的认识,鼓励人们参与,并吸引 HBCD 家庭、社区合作伙伴和合作者的参与。最初的工作包括编制多用途的招募和宣传材料,这些材料应具有一致性和包容性,以减少对边缘化人群(包括药物滥用者和其他精神疾病患者)的污名化和负面偏见。这些工作是在综合产品开发工作流程和与 HBCD 合作伙伴的早期接触中形成的,以应对挑战。正在进行的工作包括通过通讯和社交媒体平台扩大 HBCD 的外联工作,重点是保护参与者的隐私。未来的活动将侧重于通过制作信息图表和网络研讨会传播科学信息,让参与者、家庭和公众了解 HBCD 研究数据中的发现。
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来源期刊
CiteScore
7.60
自引率
10.60%
发文量
124
审稿时长
6-12 weeks
期刊介绍: The journal publishes theoretical and research papers on cognitive brain development, from infancy through childhood and adolescence and into adulthood. It covers neurocognitive development and neurocognitive processing in both typical and atypical development, including social and affective aspects. Appropriate methodologies for the journal include, but are not limited to, functional neuroimaging (fMRI and MEG), electrophysiology (EEG and ERP), NIRS and transcranial magnetic stimulation, as well as other basic neuroscience approaches using cellular and animal models that directly address cognitive brain development, patient studies, case studies, post-mortem studies and pharmacological studies.
期刊最新文献
Establishing a model of peer support for pregnant persons with a substance use disorder as an innovative approach for engaging participants in the healthy brain and child development study. Co-developing sleep-wake and sensory foundations for cognition in the human fetus and newborn. State-dependent inter-network functional connectivity development in neonatal brain from the developing human connectome project. How will developmental neuroimaging contribute to the prediction of neurodevelopmental or psychiatric disorders? Challenges and opportunities. Harmonizing multisite neonatal diffusion-weighted brain MRI data for developmental neuroscience.
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