Development and Validation of the Questionnaire of Young People's Participation–Young Adults (QYPP-YA)

IF 1.8 4区 医学 Q2 PEDIATRICS Child Care Health and Development Pub Date : 2024-09-05 DOI:10.1111/cch.13326
Chirine Cytera, Holger Muehlan, Marion Rapp, Audrey Guyard, Ute Thyen, Silke Schmidt, Henriette Markwart, the TRANS-DISAB Collaborative Group
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Abstract

Background

The Questionnaire of Young People's Participation (QYPP) was developed for use in children and adolescents. To track participation throughout transition from childhood to adulthood, we adapted it for young adults using focus groups. Aim of this study was to validate this measure, the QYPP–Young Adults (QYPP-YA).

Methods

We recruited young adults with cerebral palsy (CP) and a representative, same-aged sample of the general population (GP). The GP-sample was split into two equivalent subsamples, one part to identify the factor structure via exploratory factor analysis and another part to test the resulting model via confirmatory factor analysis. Reliability and different forms of validity were investigated.

Results

The final QYPP-YA includes 17 items assigned to six domains (Autonomy, Independency, Intimate Relationships, Interpersonal Relationships, Social Life, Online Communication). Scales show satisfying internal consistencies in the CP-sample and in the GP-sample, except for ‘Online Communication’. Convergent, divergent and known-group validity were confirmed.

Conclusions

The QYPP-YA instrument features promising psychometric characteristics to assess key domains of participation in healthy and disabled young adults. It provides a multidimensional, economic and sound assessment for use in population surveys and clinical trials.

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青少年参与问卷调查(QYPP-YA)的开发与验证。
背景:青少年参与问卷调查(QYPP)是为儿童和青少年开发的。为了跟踪从童年到成年的整个过渡时期的参与情况,我们利用焦点小组对其进行了改编,使其适用于年轻人。本研究的目的是验证这一测量方法,即 QYPP-年轻成年人(QYPP-YA):我们招募了患有脑瘫(CP)的年轻成年人和具有代表性的同龄普通人群(GP)样本。普通人群样本被分成两个等效的子样本,一部分用于通过探索性因子分析确定因子结构,另一部分用于通过确认性因子分析检验得出的模型。对可靠性和不同形式的有效性进行了调查:最终的 QYPP-YA 包括分配给六个领域(自主、独立、亲密关系、人际关系、社会生活、在线交流)的 17 个项目。除 "在线交流 "外,CP 样本和 GP 样本的量表显示出令人满意的内部一致性。结论:QYPP-YA工具具有良好的心理测量特征,可用于评估健康和残疾年轻人参与的关键领域。它为人口调查和临床试验提供了一种多维、经济、可靠的评估方法。
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来源期刊
CiteScore
3.40
自引率
5.30%
发文量
136
审稿时长
4-8 weeks
期刊介绍: Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.
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