The factors associated with the caregiving burden among family caregivers of pediatric patients with fractures: A descriptive cross-sectional study

Qiaoyan Dai RN , Mingxia Peng RN , Chunyan Li RN, Sijia Deng RN, Peiyan Huang RN, Xuemei Guo RN, Yi Yang M.D., Ph.D.
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Abstract

Purpose

To investigate the factors linked to the caregiving burden among family caregivers of pediatric patients with fractures.

Methods

This descriptive cross-sectional research used non-probabilistic sampling involving 200 pediatric patients (0–14 years) with fractures and their family caregivers. Data was collected between November 2019 and June 2020. The Chinese version of the Zarit Burden Interview (ZBI) and Simplified Coping Style Questionnaire (SCSQ) assessed caregiving burden and coping styles. We examined clinical data of patients and caregivers, identifying factors influencing caregiving burden by integrating findings from parallel studies, and conducted statistical analyses on these factors.

Results

Most family caregivers in this study were women (80.5%), with mothers comprising 56% of the total. The average ZBI score was 40.65 ± 17.27, and 81.5% of caregivers had moderate or severe burden. Factors associated with caregiving burden included caregiver gender, co-caregivers, positive and negative coping scores, and monthly income. The significant factors that were identified accounted for approximately 42.4% of the variability in the caregiving burden.

Conclusions

This study concluded that family caregivers of pediatric patients with fractures often experience moderate to severe burdens, especially female caregivers, those without co-caregivers, using negative coping strategies, and from low-income families. Thus, it is essential to provide these families with professional information, policy support, and affordable, effective care services.

Implications to practice

Healthcare professionals should prioritize addressing the caregiving burden of family caregivers of pediatric patients with fractures. Nurses can actively improve the health of these pediatric patients and ease parental burden by providing information about social support systems.

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与儿科骨折患者家庭护理人员护理负担相关的因素:一项描述性横断面研究
目的 调查与儿科骨折患者家庭护理人员护理负担相关的因素。 方法 本描述性横断面研究采用非概率抽样法,涉及 200 名儿科骨折患者(0-14 岁)及其家庭护理人员。数据收集时间为 2019 年 11 月至 2020 年 6 月。中文版扎里特负担访谈(ZBI)和简易应对方式问卷(SCSQ)评估了护理负担和应对方式。我们研究了患者和照护者的临床数据,通过整合平行研究的结果确定了影响照护负担的因素,并对这些因素进行了统计分析。ZBI 平均得分为 40.65 ± 17.27,81.5% 的照顾者有中度或重度负担。与护理负担相关的因素包括护理者的性别、共同护理者、积极和消极应对得分以及月收入。本研究得出结论,儿科骨折患者的家庭照顾者通常会承受中度到重度的照顾负担,尤其是女性照顾者、没有共同照顾者、使用消极应对策略以及来自低收入家庭的照顾者。因此,为这些家庭提供专业信息、政策支持以及负担得起的有效护理服务至关重要。对实践的启示医护人员应优先解决儿科骨折患者家庭护理者的护理负担问题。护士可以通过提供有关社会支持系统的信息,积极改善这些儿科患者的健康状况,减轻家长的负担。
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来源期刊
CiteScore
3.70
自引率
8.30%
发文量
291
审稿时长
65 days
期刊介绍: Official Journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society (PENS) The Journal of Pediatric Nursing: Nursing Care of Children and Families (JPN) is interested in publishing evidence-based practice, quality improvement, theory, and research papers on a variety of topics from US and international authors. JPN is the official journal of the Society of Pediatric Nurses and the Pediatric Endocrinology Nursing Society. Cecily L. Betz, PhD, RN, FAAN is the Founder and Editor in Chief. Journal content covers the life span from birth to adolescence. Submissions should be pertinent to the nursing care needs of healthy and ill infants, children, and adolescents, addressing their biopsychosocial needs. JPN also features the following regular columns for which authors may submit brief papers: Hot Topics and Technology.
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