Journal of Pediatric Nursing-Nursing Care of Children & Families最新文献

Purpose: This study employs Charmaz's (2014) constructivist Grounded Theory (GT) approach to explore and construct a theory about the experiences of mothers raising children diagnosed with autism spectrum disorder (ASD).

Methods: Data were collected over 1.5 years from online forum posts written by 10 mothers and in-depth qualitative interviews conducted with nine mothers. During the theoretical sampling phase, an additional four mothers were interviewed face-to-face. The analysis adhered to Charmaz's constructivist GT methodology, encompassing initial coding, focused coding, and theoretical coding.

Results: The study introduces the grounded theory, "Living with the Delusion of Autism Recovery," which encapsulates mothers' oscillation between hope and despair as they navigate their children's developmental journeys. This longitudinal analysis traces mothers' experiences from the pre-diagnosis phase through special education, addressing a significant gap in the literature by examining the progression of experiences rather than isolated moments.

Conclusions: The findings underscore the urgent need for timely interventions and robust support systems. Delays in diagnosis, driven by healthcare professionals' reluctance to diagnose early and the lack of a formal early intervention system, exacerbate developmental challenges. This research provides a unique contribution to the literature by centering on the experiences of Turkish mothers, shedding light on cultural nuances and the dynamic nature of parenting a child with ASD in Türkiye. It is notable as the first study of its kind in Türkiye, offering invaluable insights into the evolving experiences of these mothers.

The Pediatric Endocrinology Nursing Society (PENS) is committed to the advancement of the art and science of pediatric endocrinology nursing. Stimulation (provocative) testing is an important part of the endocrine clinical evaluation of children and adolescents to assess the function of the hypothalamic pituitary adrenal and gonadal axes and determine appropriate treatment. PENS recognizes that nurses have a critical role as advocates for safe and reliable stimulation testing to produce valid clinical results to guide the treatment of endocrine disorders in children. This position statement outlines recommendations for healthcare facilities to provide safe, high quality, culturally sensitive, family-centered care that promotes the well-being and development of the child and supports exceptional pediatric nursing care for endocrine stimulation testing.

Aim: While incorporating artwork within healthcare settings can improve health outcomes, limited research exists to guide art selection for pediatric patients. This study aimed to improve an ongoing collaboration between a healthcare system and local art museum through which community members painted 100 custom ceiling tiles for display in pediatric clinical areas. The researchers sought to determine if artwork content and/or color tone impacted patient experience and/or preference of artwork.

Methods: Nursing directors surveyed 65 patients within the healthcare system's children's hospital on their experiences and preferences of ceiling tile artwork. Patients in "young" (4-7 years), "middle" (8-11 years), and "older" (12-17 years) age groups were asked whether they felt "better," "worse," or "no different" when viewing images within each of six artwork content categories and three color tone categories. Patients who felt "better" were invited to complete the Five Degrees of Happiness Scale to determine preference of artwork content and color tone.

Results: Overall, patients responded positively to viewing the images. The most positive experience resulted from artwork featuring realistic nature, realistic animal, and cartoon content. Patients tended to have a more positive experience of and greater preference for bright color tones. Younger children reported the best experience overall.

Conclusion: Pediatric patient feedback informed the design and installation of ceiling tiles toward greatest patient experience. Patients' enthusiasm to participate in this study suggests the benefits of involving children's feedback in healthcare design include relational aspects of care.

Introduction: Mothers of children with chronic diseases, as the main caregivers, face the care burden. The care burden of mothers can affect their adaptive behaviors and lead to the use of inappropriate adaptive behaviors. This study was conducted to determine the relationship between the caregiving burden and adaptive behaviors of mothers of children with chronic diseases.

Methods: In this descriptive-analytical cross-sectional study, 238 mothers of children with chronic diseases participated by the convenience sampling method. Data collection tools included a demographic information questionnaire, a zarit care burden questionnaire, and a health matching questionnaire for parents. Data were analyzed using descriptive statistics, t-test, ANOVA, and Pearson analysis in SPSS software version 26.

Results: The majority of mothers had a mean age of 34.6 ± 7.6 years. The caregiving burden on the mothers of children with chronic diseases was high (21.95 ± 7.76) and most of the mothers had favorable adaptive behaviors in facing their child's illness (95.14 ± 17.15). The most intensity of the significant correlation was in the pattern of "family integrity and optimization of the situation" (P < 0.001, r = -0.434). The mother's illness (P = 0.009, β = 2.874), care of the child with chronic disease only by the mother (P = 0.008, β = 3.142), and immunodeficiency disease of the child (P = 0.021, β = 4.456) positively predicted the caregiving burden.

Conclusion: These findings help healthcare systems plan supportive and educational programs for decreasing the caregiving burden and increasing adaptive behaviors in mothers of children with chronic diseases.

Lay summary: A cross-sectional study was conducted to determine care burden and adaptive behaviors in mothers with chronically ill children. The results showed that mothers' care burden was high and significantly related to their behavior and adaptation. Mothers had favorable adaptive behaviors.

Aim: This study aims to determine the effect of intolerance of uncertainty, sleep quality, and social support on caregiver burden among parents of children with chronic diseases.

Methods: This cross-sectional study was carried out on parents of children with chronic illnesses (n = 144), who were admitted to a medical faculty hospital in Turkey from June 2023 until June 2024. The data collection was conducted using the "Family Information Form," the "Pittsburgh Sleep Quality Index," the "Multidimensional Scale of Perceived Social Support," the "Intolerance of Uncertainty Scale," and the "Caregiver Burden Scale". Data were analyzed using Student's t-test, one-way ANOVA, and multiple linear regression analysis.

Results: Participants' mean scores were found to be 37.5 ± 14.43 on the Caregiver Burden scale, 8.37 ± 3.25 on the Pittsburgh Sleep Quality Index, 66.06 ± 13.87 on the Multidimensional Scale of Perceived Social Support, and 38.97 ± 10.25 on the Intolerance of Uncertainty Scale. Income level (β = 0.252), level of intolerance of uncertainty (β = 0.200), and the number of the child's hospitalizations in the past year (β = 0.266) were significant predictors affecting the caregiver burden.

Conclusion: This study revealed that parental caregiver burden was related with intolerance of uncertainty, income status, and the number of the child's hospitalizations.

Background: Practice guidelines recommend all children with obesity are connected with comprehensive health behavior and lifestyle treatments (CHBLTs) as a first-line intervention.

Objective: To understand primary care providers' (PCPs) current practices, resources, barriers, and needs related to providing or referring children with obesity to CHBLTs.

Design and methods: For this cross-sectional study, 62 PCPs from a multi-site healthcare system in the Midwest, USA, completed an online survey to report the following: which interventions they offer, referral options they have available inside and outside their practice, barriers to providing CHBLTs, and resources they want related to CHBLTs.

Results: The most common practices included sharing body mass index with families and brief lifestyle counseling. Few PCPs reported access to CHBLTs in their clinic or in the community despite rating these services as highly important. Top barriers included lack of services, perceived family motivation, and time. PCPs desired referral options and training in motivational strategies.

Conclusions: Implementation of best practices for pediatric obesity treatment will require expanded availability of CHBLTs and development of effective patient engagement approaches.

Practice implications: The competencies of pediatric nurses may be particularly well suited to addressing care gaps for pediatric obesity in primary care settings.

Objective: This study aimed to examine the effects of maternal voice and music therapy on pain and physiological parameters during the endotracheal suctioning process in intubated children.

Design: The study was a single-centre, randomized controlled trial.

Setting: The Thoracic-Cardiovascular Surgery Intensive Care Unit of a University Hospital in Turkey.

Methods: This study involved three groups of 27 children, aged between 2 and 36 months. All three groups, including the control group (CG), received the standard suction protocol before, during, and after each intervention. Additionally, the children in the music therapy (MT) group listened to music titled 'The Happiest Child', while the children in the mother's voice (MV) group listened to recordings of their mothers' voices. The variables assessed are pain and physiological parameters.

Results: When the pain results of the children were evaluated, the pain score of the children in the control group was found to be significantly higher than children in the mother's voice and music voice group (p < .05). It was determined that the lowest FLACC Pain Scale value was in the mother's voice group (p < .05). When the physiological parameters results were evaluated, it was determined that the physiological measurement values of the children in the experimental group were positively affected (p < .05), there was a significant difference between the control group (p < .05) and the most effective result was in the mother's voice group (p < .05).

Conclusions: The application of mother's voice and music therapy to children before, during and after the aspiration procedure reduces the pain of children, positively affects their physiological parameters and improves the quality of nursing care.

Implications for clinical practice: This study provides a scientific basis for nursing practices in clinical settings and contributes to clinical practice by shedding light on future evidence-based studies.

Purpose: This study aims to determine the perceptions of children with hospital experience about pediatric nurses.

Design: A descriptive qualitative design guided by a phenomenological approach was used.

Settings: A purposive sampling technique was used to recruit 17 children aged 7-18 who had experienced hospitalization in pediatric clinics.

Methods: The study employed rigorous research methods, including semi-structured interviews and thematic analyses, to ensure the validity and reliability of the findings. Data were analyzed using the MAXQDA20 program, resulting in the identification of 322 codes. Five themes and 16 sub-themes were created from the obtained codes, providing a comprehensive understanding of the children's perceptions. The COREQ checklist was followed in this study.

Results: Five themes were created: the image of the pediatric nurse in children's minds, children's expectations from pediatric nurses, the characteristics of the pediatric nurse, children's perception of whether nurses care about or do not care about them, the topics nurses talk about with children.

Conclusions: Pediatric nurses have positive and negative images of children, children have child-specific expectations from pediatric nurses, such as playing and chatting. Some nurses' attitudes and behaviors create the perception that children care about or do not care about them.

Practice implications: This study's findings have a practical impact on pediatric nursing. In addition to their treatment and care practices, nurses can communicate more with children, spend more time with them, play more games with them. This way, the needs and expectations specific to children's age periods are met, leading to improved patient outcomes.