How do family carers assist people with dementia? A qualitative observation study of daily tasks

IF 1.3 4区 医学 Q3 REHABILITATION British Journal of Occupational Therapy Pub Date : 2024-08-19 DOI:10.1177/03080226241267172
Julieta Camino, Ana Paula Trucco, Naoko Kishita, Eneida Mioshi, Tamara Backhouse
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Abstract

Introduction:As people with dementia progressively experience difficulties when performing daily tasks, family carers often become the main providers of support. Little is known about the role of carer support during task performance. Therefore, Occupational Therapy interventions are often underinformed in this area. Knowledge of how carers assist people with dementia could support Occupational Therapists in promoting participation in daily tasks. The objective was to explore how carers support people with dementia during the performance of daily tasks.Methods:A secondary analysis was conducted on observations video-recorded for the TASKed project, where people with dementia completed a task with carer support. Data were analysed using an inductive reflexive thematic analysis approach.Findings:Video recordings of 21 dyads were included in this study. Five themes were generated depicting how carers supported people with dementia during task performance: (1) person-enabled assistance, (2) goal-directed assistance, (3) carer-led assistance, (4) partnership-oriented assistance and (5) bystander.Conclusion:Our findings suggest carers employ different approaches when assisting people with dementia with daily tasks. Knowledge of these different modes of assistance could help Occupational Therapists and researchers understand what works well and what could be changed to facilitate the participation of people with dementia in daily activities.
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家庭照护者如何帮助痴呆症患者?对日常工作的定性观察研究
导言:随着痴呆症患者在执行日常任务时逐渐遇到困难,家庭照护者往往成为主要的支持者。人们对照护者在完成任务过程中所起的作用知之甚少。因此,职业疗法干预措施在这方面的信息往往不足。了解照护者如何帮助痴呆症患者,可以帮助职业治疗师促进患者参与日常任务。方法:我们对 "TASKed "项目的观察录像进行了二次分析,观察了痴呆症患者在照护者的支持下完成任务的情况。研究结果:本研究包括 21 个二人组的视频记录。结论:我们的研究结果表明,照护者在协助痴呆症患者完成日常任务时采用了不同的方法。了解这些不同的协助方式有助于职业治疗师和研究人员了解哪些方式行之有效,哪些方式可以改变,以促进痴呆症患者参与日常活动。
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来源期刊
CiteScore
2.20
自引率
15.40%
发文量
81
审稿时长
6-12 weeks
期刊介绍: British Journal of Occupational Therapy (BJOT) is the official journal of the Royal College of Occupational Therapists. Its purpose is to publish articles with international relevance that advance knowledge in research, practice, education, and management in occupational therapy. It is a monthly peer reviewed publication that disseminates evidence on the effectiveness, benefit, and value of occupational therapy so that occupational therapists, service users, and key stakeholders can make informed decisions. BJOT publishes research articles, reviews, practice analyses, opinion pieces, editorials, letters to the editor and book reviews. It also regularly publishes special issues on topics relevant to occupational therapy.
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