Julieta Camino, Ana Paula Trucco, Naoko Kishita, Eneida Mioshi, Tamara Backhouse
{"title":"How do family carers assist people with dementia? A qualitative observation study of daily tasks","authors":"Julieta Camino, Ana Paula Trucco, Naoko Kishita, Eneida Mioshi, Tamara Backhouse","doi":"10.1177/03080226241267172","DOIUrl":null,"url":null,"abstract":"Introduction:As people with dementia progressively experience difficulties when performing daily tasks, family carers often become the main providers of support. Little is known about the role of carer support during task performance. Therefore, Occupational Therapy interventions are often underinformed in this area. Knowledge of how carers assist people with dementia could support Occupational Therapists in promoting participation in daily tasks. The objective was to explore how carers support people with dementia during the performance of daily tasks.Methods:A secondary analysis was conducted on observations video-recorded for the TASKed project, where people with dementia completed a task with carer support. Data were analysed using an inductive reflexive thematic analysis approach.Findings:Video recordings of 21 dyads were included in this study. Five themes were generated depicting how carers supported people with dementia during task performance: (1) person-enabled assistance, (2) goal-directed assistance, (3) carer-led assistance, (4) partnership-oriented assistance and (5) bystander.Conclusion:Our findings suggest carers employ different approaches when assisting people with dementia with daily tasks. Knowledge of these different modes of assistance could help Occupational Therapists and researchers understand what works well and what could be changed to facilitate the participation of people with dementia in daily activities.","PeriodicalId":49096,"journal":{"name":"British Journal of Occupational Therapy","volume":null,"pages":null},"PeriodicalIF":1.3000,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"British Journal of Occupational Therapy","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1177/03080226241267172","RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"REHABILITATION","Score":null,"Total":0}
引用次数: 0
Abstract
Introduction:As people with dementia progressively experience difficulties when performing daily tasks, family carers often become the main providers of support. Little is known about the role of carer support during task performance. Therefore, Occupational Therapy interventions are often underinformed in this area. Knowledge of how carers assist people with dementia could support Occupational Therapists in promoting participation in daily tasks. The objective was to explore how carers support people with dementia during the performance of daily tasks.Methods:A secondary analysis was conducted on observations video-recorded for the TASKed project, where people with dementia completed a task with carer support. Data were analysed using an inductive reflexive thematic analysis approach.Findings:Video recordings of 21 dyads were included in this study. Five themes were generated depicting how carers supported people with dementia during task performance: (1) person-enabled assistance, (2) goal-directed assistance, (3) carer-led assistance, (4) partnership-oriented assistance and (5) bystander.Conclusion:Our findings suggest carers employ different approaches when assisting people with dementia with daily tasks. Knowledge of these different modes of assistance could help Occupational Therapists and researchers understand what works well and what could be changed to facilitate the participation of people with dementia in daily activities.
期刊介绍:
British Journal of Occupational Therapy (BJOT) is the official journal of the Royal College of Occupational Therapists. Its purpose is to publish articles with international relevance that advance knowledge in research, practice, education, and management in occupational therapy. It is a monthly peer reviewed publication that disseminates evidence on the effectiveness, benefit, and value of occupational therapy so that occupational therapists, service users, and key stakeholders can make informed decisions. BJOT publishes research articles, reviews, practice analyses, opinion pieces, editorials, letters to the editor and book reviews. It also regularly publishes special issues on topics relevant to occupational therapy.