Late effects surveillance adherence among young adult childhood cancer survivors: A population‐based study

Abstract

Lifelong, guideline‐based monitoring for late effects is recommended for childhood cancer survivors (CCS). We examined rates of receiving surveillance tests among at‐risk young adult CCS in a population‐based study (n = 253; 50% Hispanic/Latino; mean post‐treatment interval 14.5 years, range: 5–22). Adherence rates were 36.1%, 31.9%, and 36.4% among those indicated for cardiac (n = 119), thyroid (n = 68), and breast (n = 66) surveillance, respectively, indicating that poor surveillance among long‐term CCS is widespread. Receipt of any of these surveillance tests was positively associated with being in follow‐up care, having any health insurance (vs. none), and receiving education about need for follow‐up with surveillance (all p‐values less than .05).