The correlation between social support, coping style, advance care planning readiness, and quality of life in patients with amyotrophic lateral sclerosis: a cross-sectional study.
Zhijie Zhang,Xin He,Jing Wang,Jialu Cui,Baoxin Shi
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引用次数: 0
Abstract
OBJECTIVE
The primary goal for clinical healthcare professionals is to enhance the quality of life (QOL) of patients with amyotrophic lateral sclerosis (ALS). This study aimed to explore the correlation between social support, coping style, advance care planning (ACP) readiness, and QOL in patients with ALS. We also sought to analyze the mediating effect of coping style and ACP readiness between social support and QOL, and to provide insights for developing targeted interventions to improve patients' QOL.
METHODS
A cross-sectional design was used, with participants recruited through convenience sampling in Tianjin, China. Statistical analysis included the t-test, analysis of variance, correlation analysis, and mediating effect analysis.
RESULTS
The study included 215 participants. The QOL of patients with ALS was at a medium level, with significant correlations between social support, coping style, ACP readiness, and QOL (all p < 0.01). The direct effect of social support on QOL was 0.403 (p = 0.018), accounting for 41.85% of the total effect. The total indirect effect of social support on QOL through coping style and ACP readiness was 0.560 (p < 0.001), accounting for 58.15% of the total effect. The chain mediating effect involving facing, avoiding, and ACP readiness accounted for 16.72%.
CONCLUSION
Social support directly influenced QOL and had an indirect impact through coping style and ACP readiness. Healthcare professionals can improve the QOL of patients with ALS by enhancing social support, disease-coping ability, and ACP readiness in clinical practice.
目的：临床医护人员的首要目标是提高肌萎缩侧索硬化症（ALS）患者的生活质量（QOL）。本研究旨在探讨 ALS 患者的社会支持、应对方式、预先护理计划（ACP）准备程度和 QOL 之间的相关性。方法本研究采用横断面设计，在中国天津通过便利抽样招募参与者。统计分析包括 t 检验、方差分析、相关分析和中介效应分析。ALS 患者的 QOL 处于中等水平，社会支持、应对方式、ACP 准备程度与 QOL 之间存在显著相关性（均 p <0.01）。社会支持对 QOL 的直接效应为 0.403（p = 0.018），占总效应的 41.85%。社会支持通过应对方式和 ACP 准备程度对 QOL 的间接效应为 0.560（p < 0.001），占总效应的 58.15%。结论 社会支持直接影响 QOL，并通过应对方式和 ACP 准备程度产生间接影响。医护人员在临床实践中可以通过增强社会支持、疾病应对能力和ACP准备度来改善ALS患者的QOL。
期刊介绍：
Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration is an exciting new initiative. It represents a timely expansion of the journal Amyotrophic Lateral Sclerosis in response to the clinical, imaging pathological and genetic overlap between ALS and frontotemporal dementia. The expanded journal provides outstanding coverage of research in a wide range of issues related to motor neuron diseases, especially ALS (Lou Gehrig’s disease) and cognitive decline associated with frontotemporal degeneration. The journal also covers related disorders of the neuroaxis when relevant to these core conditions.
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