Coping strategies adopted by caregivers of children with autism in the Limpopo Province, South Africa.

IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES African Journal of Disability Pub Date : 2024-09-30 eCollection Date: 2024-01-01 DOI:10.4102/ajod.v13i0.1384
Gsakani O Sumbane
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Abstract

Background: Emotion- and problem-focused coping strategies are frequently employed by caregivers of autistic children to increase their general well-being and resilience to the stress of raising the child. Although these strategies cannot directly address the situation, it is useful for handling stressful situations that cannot change.

Objectives: The study seeks to explore and understand the emotion- and problem-focused strategies that caregivers use to cope with the challenges of raising a child with autism.

Method: This was a qualitative, exploratory and descriptive research study. Twenty-eight caregivers were purposive-convenient sampled from the public special schools where their autism spectrum disorder (ASD) children are schooling. Semi-structured interviews were used to gather data, which were then transcribed and subjected to thematic analysis.

Results: Positive emotion-focused strategies include positive reappraisal, reframing and acceptance. Negative emotion-focused strategies include denial, emotional release, cognitive distortion, self-isolation, overprotection, negative self-talk, punishment and religion. Problem-focused coping strategies include active and adaptive coping, peer group, professional support and social support.

Conclusion: The coping methods that have been identified can be integrated into intervention programmes and serve as a guide for specialised institutions that offer more extensive knowledge and assistance to families who are caring for children with ASD.

Contribution: The study contributes to understanding the emotion- and problem-focused strategies adopted by rural caregivers in managing their emotions, interpretation of the situation and adjusting to the demands of raising an autistic child.

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南非林波波省自闭症儿童照顾者采取的应对策略。
背景:自闭症儿童的照顾者经常采用以情绪和问题为重点的应对策略,以提高他们的总体幸福感和对抚养孩子压力的适应力。虽然这些策略不能直接解决实际情况,但对于处理无法改变的压力情况却很有用:本研究旨在探索和了解照顾者为应对抚养自闭症儿童的挑战而采取的以情绪和问题为重点的策略:这是一项定性、探索性和描述性研究。从自闭症谱系障碍(ASD)儿童就读的公立特殊学校中,有目的性地方便抽取了 28 名照顾者。研究采用半结构式访谈收集数据,然后将数据转录并进行主题分析:以积极情绪为重点的策略包括积极的重新评估、重塑和接受。消极情绪应对策略包括否认、情绪释放、认知扭曲、自我隔离、过度保护、消极的自我对话、惩罚和宗教。以问题为中心的应对策略包括积极和适应性应对、同侪团体、专业支持和社会支持:结论:已确定的应对方法可纳入干预计划,并作为专门机构的指南,为照顾患有自闭症儿童的家庭提供更广泛的知识和援助:本研究有助于了解农村照顾者在管理情绪、解释情况和适应抚养自闭症儿童的需求时所采取的以情绪和问题为重点的策略。
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来源期刊
African Journal of Disability
African Journal of Disability HEALTH CARE SCIENCES & SERVICES-
CiteScore
2.10
自引率
5.90%
发文量
50
审稿时长
20 weeks
期刊介绍: The African Journal of Disability, the official journal of CRS, AfriNEAD and CEDRES, introduce and discuss issues and experiences relating to and supporting the act of better understanding the interfaces between disability, poverty and practices of exclusion and marginalisation. Its articles yield new insight into established human development practices, evaluate new educational techniques and disability research, examine current cultural and social discrimination, and bring serious critical analysis to bear on problems shared across the African continent. Emphasis is on all aspects of disability particularity in the developing African context. This includes, amongst others: -disability studies as an emerging field of public health enquiry -rehabilitation, including vocational and community-based rehabilitation -community development and medical issues related to disability and poverty -disability-related stigma and discrimination -inclusive education -legal, policy, human rights and advocacy issues related to disability -the role of arts and media in relation to disability -disability as part of global Sustainable Development Goals transformation agendas -disability and postcolonial issues -globalisation and cultural change in relation to disability -environmental and climate-related issues linked to disability -disability, diversity and intersections of identity -disability and the promotion of human development.
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