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Selection of a classroom observation tool for disability inclusion in Uganda. 为乌干达残疾人融入社会选择课堂观察工具。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-31 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1485
Elizabeth S Kawesa, Claire Nimusiima, Janet Seeley, Femke Bannink Mbazzi

Background: Obuntu Bulamu is a Ugandan intervention promoting inclusive education for children with disabilities. This culturally appropriate approach, based on the Ubuntu philosophy, utilises peer-to-peer support activities for children, parents and teachers.

Objectives: To effectively measure the intervention's impact on disability inclusion, the study aimed to select, adapt and test classroom observation instruments suitable for the Ugandan context.

Method: Three structured classroom observation tools were selected and piloted in 10 primary schools in Wakiso District: The Classroom Observation Checklist (CoC), the Teacher-Pupil Observation Tool (T-POT) and the Interaction Engagement Scale (IES). These tools were adapted to ensure cultural relevance and applicability within Ugandan school settings.

Results: Factors like class size, teaching methods, cultural relevance, language and ease of use influenced the suitability of the selected tool. The CoC emerged as a more effective tool with a strong internal consistency (Cronbach's alpha of 0.80) for capturing inclusiveness and peer-to-peer support in the classroom compared to the T-POT and IES.

Conclusion: The study findings emphasise the significance of adapting and testing tools in specific cultural contexts and low-income country settings and considering culturally contextual factors like class size, teaching methods, language complexity and ease of use when measuring disability inclusion in primary schools.

Contribution: The selection of a classroom observation tool for the Obuntu Bulamu randomised control trial contributed to African disability knowledge and practices designed on and for the continent.

背景:Obuntu Bulamu 是乌干达促进残疾儿童全纳教育的一项干预措施。这种基于 "乌班图"(Ubuntu)理念的文化适宜方法,为儿童、家长和教师提供了同伴互助活动:为了有效衡量干预措施对残疾儿童全纳教育的影响,本研究旨在选择、调整和测试适合乌干达国情的课堂观察工具:选择了三种结构化课堂观察工具,并在瓦基索地区的 10 所小学进行了试点:课堂观察核对表(CoC)、师生观察工具(T-POT)和互动参与量表(IES)。对这些工具进行了调整,以确保其在乌干达学校环境中的文化相关性和适用性:结果:班级规模、教学方法、文化相关性、语言和易用性等因素影响了所选工具的适用性。与 T-POT 和 IES 相比,CoC 是一种更有效的工具,具有很强的内部一致性(Cronbach's alpha 为 0.80),可用于捕捉课堂上的包容性和同伴间的支持:研究结果强调了在特定文化背景下和低收入国家环境中调整和测试工具的重要性,以及在测量小学中的残障包容性时考虑文化背景因素(如班级规模、教学方法、语言复杂性和易用性)的重要性:为 Obuntu Bulamu 随机对照试验选择的课堂观察工具为非洲大陆的残疾知识和实践做出了贡献。
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引用次数: 0
Employment challenges for persons with visual impairment in Windhoek, Namibia. 纳米比亚温得和克视力障碍者的就业挑战。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-30 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1500
Kelao Uiras, Nisha A Paulse, Annelisa Murangi, Clifford K Hlatywayo

Background: The greatest challenge for persons with disabilities is that of securing and maintaining employment, because of the limitations associated with being visually impaired.

Objectives: This study aims to explore the employment challenges of securing and maintaining employment faced by persons with visual impairments.

Method: A qualitative research approach with an exploratory research design was employed. A non-probability sampling method using the snowball sampling technique was adopted. A semi-structured interview was conducted with a total of n = 9 participants, and the data were analysed using the thematic analysis method.

Results: The findings indicate that persons with visual impairment continue to face adverse challenges, especially in the quest of securing employment. Discrimination, isolation, rejection and lack of recognition are key issues that continue to persist in their life experiences, from the tertiary to post-tertiary level.

Conclusion: Persons with visual impairment need continued support from various stakeholders as far as employment opportunities are concerned. There is a need to sensitise stakeholders, at all levels, on the challenges encountered by persons with visual impairment in their employment journey for effective inclusion and diversity management.

Contribution: The findings can aid in the development of an all-round model of support and optimal functioning for persons with visual impairment from grassroots level to post-tertiary education and in workplaces.

背景:由于视力障碍所带来的限制,残疾人面临的最大挑战是获得和维持就业:本研究旨在探讨视障人士在就业和维持就业方面所面临的挑战:方法:采用探索性研究设计的定性研究方法。研究采用了非概率抽样法,即滚雪球抽样法。共对 n = 9 名参与者进行了半结构式访谈,并采用主题分析法对数据进行了分析:结果:研究结果表明,视障人士仍然面临着不利的挑战,尤其是在求职方面。歧视、孤立、排斥和缺乏认可是他们从高等教育到高等教育后的生活经历中持续存在的关键问题:结论:就就业机会而言,视障人士需要各利益相关方的持续支持。有必要提高各级利益相关者对视障人士在就业过程中遇到的挑战的认识,以实现有效的包容性和多样性管理:贡献:研究结果有助于为视力障碍人士建立一个从基层到高等教育后及工作场所的全方位支持和最佳运作模式。
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引用次数: 0
Paediatric cerebral palsy in South Africa: Prevention and care gaps at hospital level. 南非的小儿脑瘫:医院一级的预防和护理差距。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-30 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1449
Thembi J Katangwe, Mariana Kruger, Ronald van Toorn, Jeanetta van Zyl, Sandile Ndlovu, Regan Solomons, Kirsten A Donald

Background: Population-based data show high proportions of severe cases of cerebral palsy (CP) in resource-poor regions such as sub-Saharan Africa, where most children have potentially preventable risk factors (factors that may increase the likelihood of CP occurrence but can be mitigated through medical interventions).

Objectives: This study aimed to describe the demographic and clinical profile of children living with CP accessing services at Tygerberg Hospital over a period of 10 years (2010-2020), identify the potential gaps in care (proportion of individuals in a country requiring but not receiving suboptimal or inadequate care), and comparison with a similar study at the same centre two decades ago.

Method: This 10-year retrospective study investigated causes and morbidities in children with CP, attending a central hospital in the Western Cape, South Africa.

Results: A total of 613 children with CP were identified. Perinatal causes were predominant, especially in 57.7% (n = 354) of the cohort: perinatal asphyxia (41.1%) and preterm birth (16.6%). Postnatal causes constituted 15.2% (n = 93), which included tuberculous meningitis (3.6%) and bacterial meningitis (3.6%). The most common complications were intellectual impairment (61.8%; n = 379); epilepsy (30.8%; n = 189) and visual impairment (54.7%; n = 234). A third of the cohort had severe CP, classified as Gross Motor Function Classification System IV and V (38%).

Conclusion: Most of the previously documented main drivers of CP are still present and the implementation of healthcare prevention strategies remains inadequate.

Contribution: This study provides longitudinal evidence to confirm that CP in a South African setting is associated with a high burden of potentially preventable causes.

背景:基于人口的数据显示,在撒哈拉以南非洲等资源匮乏地区,严重脑瘫(CP)病例的比例很高,而这些地区的大多数儿童都存在潜在的可预防风险因素(可能会增加发生脑瘫的可能性,但可以通过医疗干预措施加以缓解的因素):本研究旨在描述 10 年内(2010-2020 年)在泰格贝格医院接受治疗的 CP 患儿的人口和临床概况,确定潜在的护理缺口(一个国家中需要但未接受次优或不适当护理的人数比例),并与 20 年前在同一中心进行的类似研究进行比较:这项为期 10 年的回顾性研究调查了在南非西开普省一家中心医院就诊的 CP 患儿的病因和发病情况:结果:共发现了 613 名患有脊髓灰质炎的儿童。围产期病因占主导地位,尤其是57.7%(n = 354)的患者:围产期窒息(41.1%)和早产(16.6%)。产后原因占 15.2%(93 人),包括结核性脑膜炎(3.6%)和细菌性脑膜炎(3.6%)。最常见的并发症是智力障碍(61.8%;n = 379)、癫痫(30.8%;n = 189)和视力障碍(54.7%;n = 234)。三分之一的患者患有严重的CP,被归类为粗大运动功能分类系统IV级和V级(38%):结论:之前记录的大多数导致 CP 的主要因素仍然存在,医疗保健预防策略的实施仍然不足:本研究提供的纵向证据证实,在南非环境中,CP 与潜在可预防原因的高负担有关。
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引用次数: 0
Primary healthcare rehabilitation users' views on activity limitations and participation in South Africa. 南非初级医疗康复用户对活动限制和参与的看法。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-21 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1391
Lebogang J Maseko, Fasloen Adams, Hellen Myezwa

Background: Increasing functional limitations and disabilities have raised the need for comprehensive rehabilitation services at the primary healthcare (PHC) level, particularly in low- and middle-income countries. To support the integration of these services into PHC in South Africa, assessing outcomes from the service users' perspectives is essential.

Objectives: This study examined service users' views on their PHC rehabilitation outcomes in a Metropolitan District of Gauteng, South Africa. The aim was to understand perceived changes in activity limitations and participation restrictions following the rehabilitation intervention.

Method: A quantitative survey design, including self-rating measurements and structured interviews, was employed. Thirty-eight rehabilitation service users from eight clinics and community health centres were purposively sampled. Participants rated their pre- and post-rehabilitation levels of difficulty in activity limitations and participation restrictions, with open-ended questions providing additional insights. Data analysis used descriptive statistics, quantitative content analysis, and non-parametric tests.

Results: Significant improvements in mobility, self-perception, and quality of life were reported by both adult and child service users. Caregivers of child service users also noted positive experiences (p = 0.019) in community, social, and civic life.

Conclusion: This study highlights the perceived positive changes experienced by PHC rehabilitation service users in addressing functional limitations and disabilities. It underscores the effectiveness of integrated rehabilitation service delivery in improving user outcomes.

Contribution: The findings offer valuable insights into how rehabilitation interventions enhance functional abilities, social participation, and overall well-being. By focusing on activity limitations and participation restrictions from service users' perspectives, this study supports the priority of providing person-centred rehabilitation services at the PHC level.

背景:功能限制和残疾的增加提高了在初级医疗保健(PHC)层面提供全面康复服务的需求,尤其是在中低收入国家。为了支持将这些服务纳入南非的初级保健服务,从服务使用者的角度评估结果至关重要:本研究考察了南非豪登省一个大都会区的服务使用者对其初级保健康复成果的看法。目的是了解康复干预后活动限制和参与限制的感知变化:方法:采用定量调查设计,包括自我评分测量和结构化访谈。有目的性地从 8 家诊所和社区卫生中心抽取了 38 名康复服务使用者。参与者对其康复前后在活动限制和参与限制方面的困难程度进行评分,并通过开放式问题提供更多见解。数据分析采用了描述性统计、定量内容分析和非参数检验:结果:成人和儿童服务使用者的活动能力、自我感觉和生活质量都有明显改善。儿童服务使用者的照顾者也注意到他们在社区、社会和公民生活中的积极体验(p = 0.019):本研究强调了初级保健康复服务使用者在解决功能限制和残疾问题方面所感受到的积极变化。结论:本研究强调了初级保健康复服务使用者在解决功能限制和残疾问题方面所感受到的积极变化,强调了综合康复服务在改善使用者成果方面的有效性:贡献:研究结果为了解康复干预如何提高功能能力、社会参与度和整体幸福感提供了宝贵的见解。通过从服务使用者的角度关注活动限制和参与限制,本研究支持在初级保健中心层面提供以人为本的康复服务的优先性。
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引用次数: 0
Participatory research with youth with disabilities: Experiences from sub-Saharan Africa. 残疾青年参与式研究:撒哈拉以南非洲的经验。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-21 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1491
Femke Bannink Mbazzi, Shaffa Hameed, John K Ganle, Tom Shakespeare, Sarah Polack

Background: Disability inclusive youth research, involving youth with disabilities in the design, implementation and dissemination of study data, is still limited in Africa.

Objectives: To describe and reflect on the experiences of involving youth with disabilities in an exploratory research study, focused on disability-inclusive education and employment in 7 African countries.

Method: 12 youths with different impairments, aged 18 to 35, were employed as researchers in Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda. Youth researchers contributed to the data collection and analysis of interviews with 210 youth with disabilities. 24 youth advisors with disabilities formed two youth advisory groups (YAG) of 12 advisors each in the regional hub countries Ghana and Uganda. The YAGs met 4 times during the project and contributed to the study design, data collection, data analysis and dissemination activities. In addition, 4 workshops were held with the Ugandan YAG to develop a participatory film.

Results: Together with the youth participants, we reflected on the experiences of involving youth with disabilities and conducting research with, by and on youth with disabilities. We highlighted ethics and safeguarding, recruitment and representation, exploring experiences and data quality, participatory dissemination, accessibility, capacity building and networking as key areas of consideration and benefit in this project.

Conclusion: Participatory research with youth with disabilities is feasible, enriching, and key to inclusive research that informs education and employment policy and practices.

Contribution: Lessons learned from youth involvement in a disability inclusive research programme, focused on education and employment in 7 African countries.

背景:在非洲,让残疾青年参与设计、实施和传播研究数据的残疾包容性青年研究仍然有限:描述并反思残疾青年参与探索性研究的经验,重点关注非洲 7 个国家的残疾包容性教育和就业:方法:在埃塞俄比亚、加纳、肯尼亚、尼日利亚、卢旺达、塞内加尔和乌干达,聘用了 12 名 18 至 35 岁有不同障碍的青年作为研究人员。青年研究人员参与了 210 名残疾青年的数据收集和访谈分析工作。24 名残疾青年顾问在地区中心国家加纳和乌干达组成了两个青年顾问小组(YAG),每个小组由 12 名顾问组成。项目期间,青年咨询小组召开了 4 次会议,为研究设计、数据收集、数据分析和传播活动做出了贡献。此外,我们还与乌干达青年咨询小组共同举办了 4 次研讨会,以制作一部参与式电影:我们与青年参与者一起反思了残疾青年的参与经验,以及与残疾青年一起、由残疾青年开展和针对残疾青年开展研究的经验。我们强调,伦理和保障、招募和代表、探索经验和数据质量、参与式传播、无障碍环境、能力建设和网络是本项目需要考虑和受益的关键领域:结论:残疾青年参与式研究是可行的、丰富的,也是为教育和就业政策及实践提供信息的全纳研究的关键:从青年参与以 7 个非洲国家的教育和就业为重点的残疾全纳研究计划中汲取的经验教训。
{"title":"Participatory research with youth with disabilities: Experiences from sub-Saharan Africa.","authors":"Femke Bannink Mbazzi, Shaffa Hameed, John K Ganle, Tom Shakespeare, Sarah Polack","doi":"10.4102/ajod.v13i0.1491","DOIUrl":"10.4102/ajod.v13i0.1491","url":null,"abstract":"<p><strong>Background: </strong>Disability inclusive youth research, involving youth with disabilities in the design, implementation and dissemination of study data, is still limited in Africa.</p><p><strong>Objectives: </strong>To describe and reflect on the experiences of involving youth with disabilities in an exploratory research study, focused on disability-inclusive education and employment in 7 African countries.</p><p><strong>Method: </strong>12 youths with different impairments, aged 18 to 35, were employed as researchers in Ethiopia, Ghana, Kenya, Nigeria, Rwanda, Senegal and Uganda. Youth researchers contributed to the data collection and analysis of interviews with 210 youth with disabilities. 24 youth advisors with disabilities formed two youth advisory groups (YAG) of 12 advisors each in the regional hub countries Ghana and Uganda. The YAGs met 4 times during the project and contributed to the study design, data collection, data analysis and dissemination activities. In addition, 4 workshops were held with the Ugandan YAG to develop a participatory film.</p><p><strong>Results: </strong>Together with the youth participants, we reflected on the experiences of involving youth with disabilities and conducting research with, by and on youth with disabilities. We highlighted ethics and safeguarding, recruitment and representation, exploring experiences and data quality, participatory dissemination, accessibility, capacity building and networking as key areas of consideration and benefit in this project.</p><p><strong>Conclusion: </strong>Participatory research with youth with disabilities is feasible, enriching, and key to inclusive research that informs education and employment policy and practices.</p><p><strong>Contribution: </strong>Lessons learned from youth involvement in a disability inclusive research programme, focused on education and employment in 7 African countries.</p>","PeriodicalId":45606,"journal":{"name":"African Journal of Disability","volume":null,"pages":null},"PeriodicalIF":1.3,"publicationDate":"2024-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11538200/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142591933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Using participatory and inclusive methodologies to explore inclusive education in Africa. 利用参与性和包容性方法探索非洲的全纳教育。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-18 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1486
Mary Wickenden

Background: This paper presents researchers' experiences using participatory, inclusive research methodologies to explore aspects of inclusive education, with children with disabilities, parents, and teachers in Nigeria and Kenya.

Objectives: The objective is to describe working with children and adults with disabilities, as research collaborators, alongside local INGO staff and OPD partners.

Method: In Kenya we worked with 9 peer researchers with disabilities to run focus groups and interviews with children with disabilities, parents and teachers about inclusive pre-school education. In Nigeria we ran participatory workshops with children with disabilities, and their parents discussing what makes school and community settings inclusive, to inform the design of a Wellbeing and Inclusion checklist. The studies were based in pilot primary schools and Early Childhood Development and Education (ECDE or pre-school) classes in Nigeria and Kenya respectively. The data produced were recordings and notes from focus group discussions, interviews and activities and reflections from the peer researchers. Data analysis was an inclusive participatory process of thematic analysis carried out in person and online.

Results: These innovative approaches demonstrate that with careful planning and support, both adults and children with disabilities can be involved very directly in research processes not just as participants but as researchers.

Conclusion: We argue that using participatory, disability-inclusive approaches helps to make the findings more nuanced and genuine and the data and outputs generated uniquely grounded in people's realities and perspectives.

Contribution: These methods can potentially inform the mainstreaming of a disability inclusion approach into international development debates and activities.

背景:本文介绍了研究人员使用参与式全纳研究方法,与尼日利亚和肯尼亚的残疾儿童、家长和教师共同探索全纳教育的经验:目的:介绍研究人员作为研究合作者,与当地国际非政府组织工作人员和业务部门合作伙伴一起,与残疾儿童和成人开展合作的情况:在肯尼亚,我们与 9 名残疾同行研究人员合作,就全纳学前教育问题与残疾儿童、家长和教师开展焦点小组讨论和访谈。在尼日利亚,我们举办了参与式研讨会,与残疾儿童及其家长讨论如何使学校和社区环境具有全纳性,为设计 "幸福与全纳 "清单提供信息。这些研究分别在尼日利亚和肯尼亚的试点小学和儿童早期发展与教育(ECDE 或学前教育)班进行。所产生的数据是重点小组讨论、访谈和活动的记录和笔记,以及同行研究人员的反思。数据分析是一个包容性的参与式专题分析过程,通过面谈和在线方式进行:这些创新方法表明,在精心策划和支持下,残疾成人和儿童不仅可以作为参与者,还可以作为研究者直接参与研究过程:我们认为,使用参与式、兼顾残疾问题的方法有助于使研究结果更加细致入微、更加真实,并使所生成的数据和成果更加符合人们的实际情况和观点:这些方法有可能为将残疾包容性方法纳入国际发展辩论和活动的主流提供信息。
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引用次数: 0
Electoral participation of people with and without disabilities in urban communities in Cameroon and Senegal. 喀麦隆和塞内加尔城市社区残疾人和非残疾人的选举参与情况。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-10-16 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1399
Vladimir Y Pente, Anita Jeyam, Stevens Bechange, Emma Jolley, Anne Roca, Sandra R Dossou, Khady Ba, Joseph Oye, Salimata Bocoum, Laurene Leclercq, Elena Schmidt

Background: The right to participate in political processes is fundamental to democratic governance, economic development and human rights.

Objectives: We assessed participation in political processes and also explored factors associated with voting at the most recent election for people with and without disabilities.

Method: We conducted cross-sectional survey in four cities in Senegal and three in Cameroon in 2021. Disability was assessed using the Washington Group Short Set of questions. Univariate and multiple regression analyses were conducted to identify the factors associated with voting at the most recent elections.

Results: Among 4180 participants in Cameroon and 4171 in Senegal, disability prevalence was 9.77% and 10.89%, respectively. More than half of the participants had voted at the most recent elections in both Cameroon (52.31%) and Senegal (58.27%). Participants with an interest in politics, having all the key documents or registered with a political party were more likely to have voted in both countries. Adjusting for socio-demographic characteristics, people with disabilities were less likely to have voted compared to those without disabilities in Cameroon (odds ratio [OR] = 0.58 [0.40, 0.84]) and in Senegal (OR = 0.36 [0.26, 0.44]).

Conclusion: There is an urgent need to address the socio-political and environmental factors that have been identified so as to close the disability gaps in voting and ensure equitable opportunities and levels of political participation between people with and without disabilities.

Contribution: This article contributes to the existing knowledge base on the political participation of people with and without disabilities in Cameroon and Senegal.

背景:参与政治进程的权利是民主治理、经济发展和人权的基础:参与政治进程的权利是民主治理、经济发展和人权的基础:我们对残疾人和非残疾人参与政治进程的情况进行了评估,并探讨了他们在最近一次选举中投票的相关因素:我们于 2021 年在塞内加尔的四个城市和喀麦隆的三个城市进行了横断面调查。残疾评估采用华盛顿小组简易问题集。我们进行了单变量和多元回归分析,以确定与最近选举投票相关的因素:在喀麦隆的 4180 名参与者和塞内加尔的 4171 名参与者中,残疾发生率分别为 9.77% 和 10.89%。在喀麦隆(52.31%)和塞内加尔(58.27%),超过半数的参与者在最近的选举中投过票。在这两个国家,对政治感兴趣、拥有所有重要文件或在政党注册的参与者更有可能参加过投票。根据社会人口特征进行调整后,喀麦隆和塞内加尔的残疾人投票率分别为 0.58 [0.40, 0.84]和 0.36 [0.26, 0.44]:结论:迫切需要解决已确定的社会政治和环境因素,以缩小投票方面的残疾差距,确保残疾人和非残疾人之间的政治参与机会和水平公平:本文为喀麦隆和塞内加尔残疾人和非残疾人政治参与方面的现有知识库做出了贡献。
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引用次数: 0
Digital storytelling to promote disability-inclusive research in Africa. 用数字故事促进非洲兼顾残疾问题的研究。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-30 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1495
Lesley L Sikapa, Hadiatou Dialo, Veronica N Ndi, Lanjo S Neindefoh, Che D Nkemchap, Lynn Cockburn

Background: Digital stories have been shown to be effective in sharing information. The Partnerships for Inclusive Research and Learning (PIRL) was a 4-year international participatory research project focussed on the digital divide in inclusive research.

Objectives: Members of PIRL share their experience of using digital storytelling to get key messages from the project to a wide range of people.

Method: Members of PIRL were invited to develop digital stories and create project-specific guidelines for digital story development. Seven people participated in workshops given by experts, read literature, watched digital stories and discussed how to create digital stories.

Results: The group created six digital stories, each one addressing a different aspect related to disability-inclusive research, with many having a focus on Africa and the creation of credible African evidence. The importance of assisting community members to think about and support research and evidence creation was one of the goals of the project. The videos provide an avenue to share insights about disability-inclusive development research. Group members stated that being part of the process significantly improved their understanding of translating evidence into formats that are more understandable.

Conclusion: Creating digital stories requires commitment, a significant amount of time, access to digital tools, and financial resources. Working collaboratively on this project was not only meaningful but also encouraged positive working relationships and fostered critical thinking.

Contribution: This article contributes to a better understanding of ways in which digital storytelling can be used in knowledge-sharing strategies to promote disability inclusion.

背景:数字故事已被证明能够有效地分享信息。全纳研究与学习伙伴关系(PIRL)是一个为期四年的国际参与式研究项目,重点关注全纳研究中的数字鸿沟:目标:PIRL 的成员分享他们利用数字故事向广大群众传递项目关键信息的经验:方法:邀请 PIRL 成员开发数字故事,并为数字故事的开发制定项目特定指南。七人参加了由专家举办的研讨会,阅读了文献,观看了数字故事,并讨论了如何创作数字故事:小组创作了六个数字故事,每个故事都涉及与残疾包容性研究有关的不同方面,其中许多故事都以非洲和创建可信的非洲证据为重点。协助社区成员思考和支持研究与证据创建的重要性是该项目的目标之一。这些视频为分享有关兼顾残疾问题的发展研究的见解提供了一个渠道。小组成员表示,参与这一过程极大地提高了他们对将证据转化为更易于理解的格式的理解:创作数字故事需要承诺、大量时间、使用数字工具和资金。在这个项目中开展合作不仅很有意义,还鼓励了积极的工作关系,培养了批判性思维:这篇文章有助于更好地理解在知识共享战略中使用数字故事的方式,以促进对残疾人的包容。
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引用次数: 0
Addressing unique challenges and crafting inclusive policies for Queer living with disabilities. 应对独特的挑战,为残疾女同性恋者制定包容性政策。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-30 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1418
Ikekhwa A Ikhile, Azwihangwisi H Mavhandu-Mudzusi, Ndlovu Sinegugu

Background: This article addresses the intersectional challenges faced by Queer people living with disabilities (QPwD).

Objectives: The article aims to highlight the nature and extent of their struggles while proposing inclusive policies for societal integration and equality. Amid global efforts to promote Queer rights, discrimination and violence persist, particularly affecting those with disabilities.

Method: Drawing upon a comprehensive review of literature and empirical research, this study investigated the experiences of QPwD, identifying key challenges such as limited access to inclusive services, heightened vulnerability to abuse and systemic unemployment. The methodological approach used in this study involves synthesising existing scholarship and empirical evidence to inform the proposed inclusive policies.

Results: The findings reveal pervasive barriers encountered by QPwD, including societal stigma, attitudinal biases and physical obstacles. Discrimination in employment, education and healthcare further exacerbates their marginalisation, necessitating proactive measures to address systemic inequalities and promote social inclusion.

Conclusion: In conclusion, this article underscores the urgent need for policy reforms and societal interventions to uphold the rights and dignity of QPwD. By advocating for Queer-inclusive workplace policies, enhancing accessibility in public infrastructure and fostering governmental support for equality initiatives, this study contributes to advancing social justice and inclusivity.

Contribution: The article calls for concerted efforts to create a more equitable and inclusive society where all individuals, regardless of their sexual orientation or disability status, can thrive and fulfil their potential.

背景:本文探讨了残疾同性恋者(QPwD)所面临的交叉挑战:文章旨在强调他们斗争的性质和程度,同时提出促进社会融合与平等的包容性政策。尽管全球都在努力促进同性恋者的权利,但歧视和暴力依然存在,对残疾人的影响尤为严重:本研究通过对文献和实证研究的全面回顾,调查了 QPwD 的经历,确定了他们面临的主要挑战,如获得包容性服务的机会有限、更容易遭受虐待和系统性失业。本研究采用的方法包括综合现有的学术研究和经验证据,为拟议的包容性政策提供依据:研究结果表明,卡塔尔残疾人普遍面临各种障碍,包括社会污名化、态度偏见和身体障碍。就业、教育和医疗保健方面的歧视进一步加剧了他们的边缘化,因此有必要采取积极措施,解决系统性不平等问题,促进社会包容:总之,本文强调迫切需要进行政策改革和社会干预,以维护 QPwD 的权利和尊严。通过倡导包容同性恋者的工作场所政策、提高公共基础设施的无障碍性以及促进政府对平等倡议的支持,本研究为促进社会正义和包容性做出了贡献:文章呼吁各方共同努力,创建一个更加公平和包容的社会,让所有人,无论其性取向或残疾状况如何,都能茁壮成长并发挥自身潜能。
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引用次数: 0
Coping strategies adopted by caregivers of children with autism in the Limpopo Province, South Africa. 南非林波波省自闭症儿童照顾者采取的应对策略。
IF 1.3 Q4 HEALTH CARE SCIENCES & SERVICES Pub Date : 2024-09-30 eCollection Date: 2024-01-01 DOI: 10.4102/ajod.v13i0.1384
Gsakani O Sumbane

Background: Emotion- and problem-focused coping strategies are frequently employed by caregivers of autistic children to increase their general well-being and resilience to the stress of raising the child. Although these strategies cannot directly address the situation, it is useful for handling stressful situations that cannot change.

Objectives: The study seeks to explore and understand the emotion- and problem-focused strategies that caregivers use to cope with the challenges of raising a child with autism.

Method: This was a qualitative, exploratory and descriptive research study. Twenty-eight caregivers were purposive-convenient sampled from the public special schools where their autism spectrum disorder (ASD) children are schooling. Semi-structured interviews were used to gather data, which were then transcribed and subjected to thematic analysis.

Results: Positive emotion-focused strategies include positive reappraisal, reframing and acceptance. Negative emotion-focused strategies include denial, emotional release, cognitive distortion, self-isolation, overprotection, negative self-talk, punishment and religion. Problem-focused coping strategies include active and adaptive coping, peer group, professional support and social support.

Conclusion: The coping methods that have been identified can be integrated into intervention programmes and serve as a guide for specialised institutions that offer more extensive knowledge and assistance to families who are caring for children with ASD.

Contribution: The study contributes to understanding the emotion- and problem-focused strategies adopted by rural caregivers in managing their emotions, interpretation of the situation and adjusting to the demands of raising an autistic child.

背景:自闭症儿童的照顾者经常采用以情绪和问题为重点的应对策略,以提高他们的总体幸福感和对抚养孩子压力的适应力。虽然这些策略不能直接解决实际情况,但对于处理无法改变的压力情况却很有用:本研究旨在探索和了解照顾者为应对抚养自闭症儿童的挑战而采取的以情绪和问题为重点的策略:这是一项定性、探索性和描述性研究。从自闭症谱系障碍(ASD)儿童就读的公立特殊学校中,有目的性地方便抽取了 28 名照顾者。研究采用半结构式访谈收集数据,然后将数据转录并进行主题分析:以积极情绪为重点的策略包括积极的重新评估、重塑和接受。消极情绪应对策略包括否认、情绪释放、认知扭曲、自我隔离、过度保护、消极的自我对话、惩罚和宗教。以问题为中心的应对策略包括积极和适应性应对、同侪团体、专业支持和社会支持:结论:已确定的应对方法可纳入干预计划,并作为专门机构的指南,为照顾患有自闭症儿童的家庭提供更广泛的知识和援助:本研究有助于了解农村照顾者在管理情绪、解释情况和适应抚养自闭症儿童的需求时所采取的以情绪和问题为重点的策略。
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引用次数: 0
期刊
African Journal of Disability
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