An Analysis of Fertility Preservation Offerings for Transgender Youth on United States Pediatric Hospital Websites.

IF 5.5 2区 医学 Q1 PEDIATRICS Journal of Adolescent Health Pub Date : 2024-10-04 DOI:10.1016/j.jadohealth.2024.08.008
Isabelle C Band, Bethany Dubois, Atoosa Ghofranian, Katrina S Nietsch, Joseph A Lee, Jenna Friedenthal, Alan B Copperman, Samantha L Estevez
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Abstract

Purpose: To survey United States (U.S.) pediatric hospital websites for information about fertility preservation (FP) for transgender patients. Secondarily, to identify hospital characteristics associated with higher likelihood of publishing transgender-specific FP content on websites.

Methods: This cross-sectional study included all U.S. pediatric hospitals from Children's Hospital Association excluding specialty hospitals. From September-December 2023, 2 independent researchers surveyed websites for: geographic location, academic affiliation, religious affiliation, presence of general and transgender-specific FP information, and specialties of FP providers. Fisher's exact and Pearson's Chi-square tests were used.

Results: Of 177 websites surveyed, 41% (n = 73) published FP information, largely targeted to oncology patients (90%, n = 66). Only 8% (n = 15) of all websites mentioned FP for transgender youth. Based on website information, most fertility programs included a medical oncologist (80%, n = 53); fewer included a urologist (32%, n = 21), pediatric gynecologist (27%, n = 18) or reproductive endocrinologist (RE, 21%, n = 14). About half (n = 31) referred to affiliate REs. Presence of transgender-specific FP website content ranged from 0% to 5% in Southern divisions to 20% in New England (median = 10%). Secular (p < .001) and academic (p = .04) hospital websites were significantly more likely to include FP content.

Discussion: Our findings highlight a gap in access to FP information for transgender youth on U.S. pediatric hospital websites. Few websites identify FP teams that include an RE or pediatric gynecologist, who specialize in FP for patients with ovaries. Access to FP information is critical to transgender youth who may desire genetically related children later in life. Strategies to assure this information is widely available are needed.

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分析美国儿科医院网站为变性青少年提供的生育力保存服务。
目的:调查美国儿科医院网站上有关变性患者生育力保存(FP)的信息。其次,确定与在网站上发布变性人特定生育力保存内容的可能性较高相关的医院特征:这项横断面研究包括美国儿童医院协会(Children's Hospital Association)的所有儿科医院,但不包括专科医院。从 2023 年 9 月到 12 月,两名独立研究人员对网站进行了调查,调查内容包括:地理位置、学术隶属关系、宗教隶属关系、是否存在一般和跨性别特定 FP 信息以及 FP 提供者的专业。采用费雪精确检验和皮尔逊卡方检验:在接受调查的 177 个网站中,41%(n = 73)发布了计划生育信息,主要针对肿瘤患者(90%,n = 66)。在所有网站中,只有8%(n = 15)的网站提及变性青年的计划生育。根据网站信息,大多数生育计划包括肿瘤内科医生(80%,n = 53);包括泌尿科医生(32%,n = 21)、儿科妇科医生(27%,n = 18)或生殖内分泌医生(RE,21%,n = 14)的计划较少。约有一半(n = 31)转诊至附属生殖内分泌医生。变性人专用 FP 网站内容的出现率从南部分区的 0% 至 5% 到新英格兰的 20%(中位数 = 10%)不等。世俗(p < .001)和学术(p = .04)医院网站更有可能包含 FP 内容:讨论:我们的研究结果凸显了美国儿科医院网站在为变性青年提供 FP 信息方面存在的差距。很少有网站能识别出包括RE或儿科妇科医生在内的FP团队,他们专门为卵巢患者提供FP服务。获得 FP 信息对于变性青年来说至关重要,因为他们可能希望在以后的生活中拥有与基因相关的子女。我们需要制定策略,确保这些信息能够广泛传播。
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来源期刊
Journal of Adolescent Health
Journal of Adolescent Health 医学-公共卫生、环境卫生与职业卫生
CiteScore
10.40
自引率
3.90%
发文量
526
审稿时长
46 days
期刊介绍: The Journal of Adolescent Health is a scientific publication dedicated to enhancing the health and well-being of adolescents and young adults. Our Journal covers a broad range of research topics, spanning from the basic biological and behavioral sciences to public health and policy. We welcome a variety of contributions, including original research papers, concise reports, literature reviews, clinical case reports, opinion pieces, and letters to the editor. We encourage professionals from diverse disciplines such as Anthropology, Education, Ethics, Global Health, Health Services Research, Law, Medicine, Mental and Behavioral Health, Nursing, Nutrition, Psychology, Public Health and Policy, Social Work, Sociology, and Youth Development to share their expertise and contribute to our mission of promoting adolescent health. Moreover, we value the voices of young individuals, family and community members, and healthcare professionals, and encourage them to submit poetry, personal narratives, images, and other creative works that provide unique insights into the experiences of adolescents and young adults. By combining scientific peer-reviewed research with creative expressions, our Journal aims to create a comprehensive understanding of the challenges and opportunities in adolescent and young adult health.
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