Navigating post-ICU care: understanding family members' experiences - a qualitative study.

IF 2.4 Q2 PSYCHOLOGY, CLINICAL Health Psychology and Behavioral Medicine Pub Date : 2024-10-11 eCollection Date: 2024-01-01 DOI:10.1080/21642850.2024.2415394
Matteo Danielis, Alessandro Garau, Dina Molaro, Sara Gentilini, Marika Rosset, Serena Giorgino, Federica Vuerich, Renzo Zanotti, Lorenza Entilli
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Abstract

Background: Comprehending and addressing the needs of caregivers during the post-intensive care unit (ICU) phase is vital for establishing sustainable support systems and improving the overall quality of life (QoL) for both patients and caregivers.

Objective: To explore the experiences of family members (FMs) caring for loved ones three-months after ICU discharge and their related QoL.

Methods and measures: A qualitative, descriptive research was conducted. Participants were recruited from two general ICUs in an Italian Academic Hospital. Data collection lasted two months and was performed with telephonic interviews led by ICU nurses. Thematic analysis was conducted using a hybrid approach, incorporating both deductive and inductive coding strategies. This process has been facilitated by Atlas.ti software.

Results: Twenty-four FMs participated, representing a diverse range of familial relationships with the patients. Thematic analysis revealed four overarching themes: 1) QoL underwent transformations; 2) Positive emotions laden with significance; 3) Supporting role taken on by a caregiver; and 4) Life's transience through the meaning-making of the illness event. These themes highlighted the multifaceted nature of the caregiving experience.

Conclusions: This study provides valuable insights into the challenges and dynamics faced by FMs following ICU discharge. Findings underscore the importance of addressing environmental challenges, cultivating positive emotions, and strengthening caregiver-patient relationships to enhance the caregiving experience and promote overall QoL. FMs can adapt their personal concepts and reach their full potential by learning to coexist with the demanding role of caregiver and achieve a new level of resilience and fulfillment.

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重症监护室术后护理导航:了解家庭成员的经历--一项定性研究。
背景:了解并满足重症监护室(ICU)后期护理人员的需求对于建立可持续的支持系统以及改善患者和护理人员的整体生活质量(QoL)至关重要:目的:探讨 ICU 出院三个月后家庭成员(FMs)照顾亲人的经历及其相关的 QoL:方法和措施:采用描述性定性研究方法。参与者来自意大利一家学术医院的两个普通重症监护室。数据收集工作持续了两个月,由重症监护室的护士主导进行电话访谈。采用混合方法进行了主题分析,包括演绎和归纳编码策略。Atlas.ti软件为这一过程提供了便利:结果:24 位家庭医生参加了此次访谈,他们代表了与患者之间不同的家庭关系。主题分析揭示了四个首要主题:1)QoL 发生转变;2)积极情绪充满意义;3)照顾者扮演的支持角色;以及 4)通过疾病事件的意义建构实现生命的短暂性。这些主题突出了护理经验的多面性:本研究为了解家政人员在重症监护室出院后所面临的挑战和动态变化提供了宝贵的见解。研究结果强调了应对环境挑战、培养积极情绪和加强护理者与患者之间关系的重要性,以增强护理体验和提高整体 QoL。家政服务人员可以调整个人观念,通过学习如何与要求苛刻的护理人员角色共存来充分发挥自己的潜能,并达到一个新的复原力和成就感水平。
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来源期刊
CiteScore
3.50
自引率
3.70%
发文量
57
审稿时长
24 weeks
期刊介绍: Health Psychology and Behavioral Medicine: an Open Access Journal (HPBM) publishes theoretical and empirical contributions on all aspects of research and practice into psychosocial, behavioral and biomedical aspects of health. HPBM publishes international, interdisciplinary research with diverse methodological approaches on: Assessment and diagnosis Narratives, experiences and discourses of health and illness Treatment processes and recovery Health cognitions and behaviors at population and individual levels Psychosocial an behavioral prevention interventions Psychosocial determinants and consequences of behavior Social and cultural contexts of health and illness, health disparities Health, illness and medicine Application of advanced information and communication technology.
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