Feasibility and Acceptability of a Family-Based Telehealth Intervention for Families Impacted by the Child Welfare System: Formative Mixed Methods Evaluation.

IF 2 Q3 HEALTH CARE SCIENCES & SERVICES JMIR Formative Research Pub Date : 2024-10-15 DOI:10.2196/57939
Johanna B Folk, Cynthia Valencia-Ayala, Evan D Holloway, Sarah Anvar, Alison Czopp, Marina Tolou-Shams
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Abstract

Background: Despite elevated rates of trauma exposure, substance misuse, mental health problems, and suicide, systems-impacted teens and their caregivers have limited access to empirically supported behavioral health services. Family-based interventions are the most effective for improving mental health, education, substance use, and delinquency outcomes, yet the familial and placement disruption that occurs during child welfare involvement can interfere with the delivery of family-based interventions.

Objective: To address this gap in access to services, we adapted an in-person, empirically supported, family-based affect management intervention using a trauma-informed lens to be delivered via telehealth to families impacted by the child welfare system (Family Telehealth Project). We describe the intervention adaptation process and an open trial to evaluate its feasibility, acceptability, and impact.

Methods: Adaptations to the in-person, family-based affect management intervention were conducted iteratively with input from youth, caregivers, and systems partners. Through focus groups and collaborative meetings with systems partners, a caregiver-only version of the intervention was also developed. An open trial of the intervention was conducted to assess family perspectives of its acceptability and feasibility and inform further refinements prior to a larger-scale evaluation. Participants included English-speaking families involved in the child welfare system in the past 12 months with teens (aged 12-18 years). Caregivers were eligible to participate either individually (caregivers of origin, kinship caregivers, or foster parents; n=7) or with their teen (caregiver of origin only; n=6 dyads). Participants completed session feedback forms and surveys at pretreatment, posttreatment, and 3-month posttreatment time points. Qualitative exit interviews were conducted with a subset of participants (12/19, 63%) to further understand their experiences with the intervention.

Results: Session attendance was high, and both caregivers and teens reported high acceptability of clinicians and sessions on feedback forms. Families were comfortable with video technology, with very few (<5%) sessions having reported technology problems. Thematic analysis of exit interview transcripts indicated that families used effective communication and affect management skills taught during the intervention. Regarding challenges and barriers, some caregiver-only participants expressed a desire to have their teen also participate in the intervention. All interview participants reported that they would recommend the intervention to others and perceptions of the intervention were overwhelmingly positive. Quantitative surveys revealed differential responses to the intervention regarding affect management and communication.

Conclusions: An open trial of the Family Telehealth Project, a skills-based telehealth intervention for families impacted by the child welfare system, suggests high levels of intervention feasibility and acceptability. Participants noted improvements in areas often hindered by the impacts of trauma and family separation: communication and affect management. Perceptions of the intervention were positive overall for both teens and caregivers. The Family Telehealth Project shows promise in addressing the gaps in behavioral health access for systems-impacted families.

Trial registration: ClinicalTrials.gov NCT04488523; https://clinicaltrials.gov/study/NCT04488523.

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为受儿童福利制度影响的家庭提供基于家庭的远程保健干预的可行性和可接受性:形成性混合方法评估。
背景:尽管遭受创伤、药物滥用、精神健康问题和自杀的比例较高,但受系统影响的青少年及其照顾者获得经验支持的行为健康服务的机会有限。以家庭为基础的干预措施对改善心理健康、教育、药物使用和犯罪结果最为有效,但在儿童福利过程中出现的家庭和安置中断会干扰以家庭为基础的干预措施的实施:为了解决这一服务缺口,我们采用创伤知情视角,对基于家庭的情绪管理干预进行了改编,通过远程医疗向受儿童福利系统影响的家庭提供服务(家庭远程医疗项目)。我们介绍了干预的调整过程和一项公开试验,以评估其可行性、可接受性和影响:方法:根据青少年、照顾者和系统合作伙伴的意见,对基于家庭的面对面情绪管理干预进行了反复调整。通过焦点小组和与系统合作伙伴的合作会议,还开发了一个仅有照顾者参与的干预版本。对干预措施进行了一次公开试验,以评估家庭对其可接受性和可行性的看法,并在进行更大规模的评估之前为进一步的改进提供信息。参与者包括在过去 12 个月中与青少年(12-18 岁)一起卷入儿童福利系统的讲英语的家庭。照顾者有资格单独参加(原籍照顾者、亲属照顾者或养父母;人数=7)或与青少年一起参加(仅原籍照顾者;人数=6)。参与者在治疗前、治疗后和治疗后 3 个月的时间点填写治疗反馈表和调查表。对部分参与者(12/19,63%)进行了退出定性访谈,以进一步了解他们的干预体验:会议出席率很高,护理人员和青少年在反馈表上都表示对临床医生和会议的接受度很高。家庭对视频技术感到满意,只有极少数家庭(结论:家庭远程医疗的开放性试验结果表明,家庭对视频技术的接受程度很高:家庭远程保健项目是一项针对受儿童福利制度影响的家庭的以技能为基础的远程保健干预措施,其公开试验表明,该干预措施具有很高的可行性和可接受性。参与者注意到,在通常受创伤和家庭分离影响的领域,即沟通和情绪管理领域,干预效果有所改善。青少年和照顾者对干预措施的总体看法是积极的。家庭远程保健项目表明,该项目有望解决受系统影响家庭在行为健康获取方面的差距:试验注册:ClinicalTrials.gov NCT04488523;https://clinicaltrials.gov/study/NCT04488523。
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来源期刊
JMIR Formative Research
JMIR Formative Research Medicine-Medicine (miscellaneous)
CiteScore
2.70
自引率
9.10%
发文量
579
审稿时长
12 weeks
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