Phaedra Longhurst, Emy Nimbley, Elizabeth H Evans, Keren MacLennan, Karri Gillespie-Smith, Fiona Duffy
{"title":"Measuring eating disorders in Autistic people: a proposal for future research.","authors":"Phaedra Longhurst, Emy Nimbley, Elizabeth H Evans, Keren MacLennan, Karri Gillespie-Smith, Fiona Duffy","doi":"10.1080/10640266.2024.2416340","DOIUrl":null,"url":null,"abstract":"<p><p>While diagnostic pathways for identifying Autism in eating disorder (ED) populations have been developed, the field continues to lack validated psychometric tools to measure EDs for use in the Autistic population. Many commonly used measures for EDs potentially lack validity and reliability in the Autistic population limiting theoretical and practical advancements in the field. This paper outlines current conflicts in autism and ED research and how these can be addressed through psychometric methodology. We discuss: (1) the lack of differentiation between ED pathology and Autistic eating behaviours, as well as the limited inclusion of autism-specific mechanisms in existing tools; (2) the subsequent theoretical and practical implications for researchers, clinicians, and Autistic people; and (3) future directions for psychometric research. Scholars are encouraged to employ participatory designs <i>with</i> autistic people before carefully considering which analytical strategies are used in the Autistic population.</p>","PeriodicalId":48835,"journal":{"name":"Eating Disorders","volume":" ","pages":"1-10"},"PeriodicalIF":3.0000,"publicationDate":"2024-10-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Eating Disorders","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1080/10640266.2024.2416340","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PSYCHIATRY","Score":null,"Total":0}
引用次数: 0
Abstract
While diagnostic pathways for identifying Autism in eating disorder (ED) populations have been developed, the field continues to lack validated psychometric tools to measure EDs for use in the Autistic population. Many commonly used measures for EDs potentially lack validity and reliability in the Autistic population limiting theoretical and practical advancements in the field. This paper outlines current conflicts in autism and ED research and how these can be addressed through psychometric methodology. We discuss: (1) the lack of differentiation between ED pathology and Autistic eating behaviours, as well as the limited inclusion of autism-specific mechanisms in existing tools; (2) the subsequent theoretical and practical implications for researchers, clinicians, and Autistic people; and (3) future directions for psychometric research. Scholars are encouraged to employ participatory designs with autistic people before carefully considering which analytical strategies are used in the Autistic population.
虽然饮食失调症(ED)人群中自闭症的诊断途径已经开发出来,但该领域仍然缺乏有效的心理测量工具来测量自闭症人群中的饮食失调症。许多常用的 ED 测量方法在自闭症人群中可能缺乏有效性和可靠性,这限制了该领域的理论和实践进步。本文概述了当前自闭症和教育问题研究中的冲突,以及如何通过心理测量方法解决这些问题。我们将讨论(1) ED 病理和自闭症饮食行为之间缺乏区分,以及现有工具中对自闭症特定机制的包含有限;(2) 随后对研究人员、临床医生和自闭症患者的理论和实践影响;以及 (3) 心理测量学研究的未来方向。我们鼓励学者们在仔细考虑自闭症人群使用何种分析策略之前,先与自闭症患者一起采用参与式设计。
期刊介绍:
Eating Disorders is contemporary and wide ranging, and takes a fundamentally practical, humanistic, compassionate view of clients and their presenting problems. You’ll find a multidisciplinary perspective on clinical issues and prevention research that considers the essential cultural, social, familial, and personal elements that not only foster eating-related problems, but also furnish clues that facilitate the most effective possible therapies and treatment approaches.