Rational application of the ESPGHAN 2022 recommendations for the follow-up of the paediatric coeliac patient: consensus document of scientific societies (SEGHNP, AEPAP, SEPEAP, SEEC, AEG, SEPD, SEMFYC, SEMG and SEMERGEN)

Enriqueta Roman , Josefa Barrio , Maria Luz Cilleruelo , Ricardo Torres , Vega Almazán , Cristobal Coronel , Beatriz Espin , Eva Martinez-Ojinaga , David Perez Solís , Maria Antonia Moreno , Joaquín Reyes , Luis Fernandez Salazar , Sergio Farrais , Gemma Castillejo , Noelia Fontanillas , Mar Noguerol , Alicia Prieto , y Ester Donat , Sociedad de Gastroenterología, Hepatología y Nutrición Pediátrica (SEGHNP), Sociedades de Pediatría de Atención Primaria (AEPap y SEPEAP), Sociedad Española de Enfermedad Celíaca (SEEC), Sociedades de Digestivo de Adultos (AEG y SEPD), Sociedades de Atención Primaria de adultos (SEMFYC, SEMG y SEMERGEN)
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Abstract

Coeliac disease is a common condition for which the only current treatment is a gluten-free diet. Adherence to this diet is not always easy and is associated with a reduction in quality of life for the patient and their family. Non-adherence is associated with complications of varying severity. The lack of control at the outpatient care level in a high percentage of these patients evinces the need to improve follow-up protocols and the approach to care delivery with coordination of paediatric gastroenterology units (PGU) and primary care paediatricians. With this aim in mind, the present document was developed by consensus to offer a set of recommendations adapted to our region, based on the recent recommendations published by the European Society of Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN), and with participation of the pertinent scientific societies, including those concerning the adult population, for the management and follow-up of adolescents and the transition to adult care.
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合理应用 ESPGHAN 2022 年关于儿科乳糜泻患者随访的建议:科学协会(SEGHNP、AEPAP、SEPEAP、SEEC、AEG、SEPD、SEMFYC、SEMG 和 SEMERGEN)的共识文件。
乳糜泻是一种常见病,目前唯一的治疗方法就是无麸质饮食。坚持这种饮食并非易事,而且会降低患者及其家人的生活质量。不坚持治疗还会引起严重程度不同的并发症。这些患者中有很大一部分在门诊治疗中缺乏控制,这表明有必要改进后续治疗方案,并在儿科胃肠病科(PGU)和儿科初级保健医生的协调下改进治疗方法。有鉴于此,本文件在欧洲儿科胃肠病学、肝脏病学和营养学学会(ESPGHAN)近期发布的建议基础上,并在相关科学学会(包括与成人相关的学会)的参与下,以协商一致的方式编写而成,旨在为青少年的管理和随访以及向成人护理的过渡提供一套适合本地区的建议。
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