Living with COPD and its psychological effects on participating in community-based physical activity in Brazil: a qualitative study. Findings from the Breathe Well group.

IF 3.1 3区 医学 Q1 PRIMARY HEALTH CARE NPJ Primary Care Respiratory Medicine Pub Date : 2024-10-25 DOI:10.1038/s41533-024-00386-7
S M Martins, R Adams, E M Rodrigues, R Stelmach, P Adab, C Chi, K K Cheng, B G Cooper, J Correia-de-Sousa, A P Dickens, A Enocson, A Farley, N Gale, K Jolly, R E Jordan, S Jowett, M Maglakelidze, T Maghlakelidze, A Sitch, K Stavrikj, A M Turner, S Williams, V B Nascimento
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Abstract

Physical activity (PA) improves dyspnoea, psychological wellbeing and quality of life (QoL) for people with COPD reducing their risk of exacerbation. However, engagement in PA is low especially amongst those with anxiety and depression, and PA programmes are limited in countries with limited resources such as Brazil. We explored perceptions of 21 people with COPD about the impact of their disease on taking part in community-based PA programmes in Sao Paulo, Brazil through semi-structured telephone interviews from October 2020 to April 2021. Discussions were audio-recorded, transcribed, and analysed using the Framework method. Five themes were identified: Knowledge about COPD and its management; Self-perception of life with COPD; Knowledge and experiences of depression and anxiety; Opinions on PA and repercussions of COVID-19. PA was considered to be important in bringing physical and mental health benefits but there were barriers in accessibility of formal PR programmes and therefore local community PA programmes were considered to be important. People with mental health conditions tended to view PA more negatively. COVID-19 had reduced PA opportunities, access to COPD treatment and social interaction, and was associated with more exacerbations and emotional suffering. In general, this study showed an urgent need to improve knowledge about COPD and its risk factors and management among both patients, the public and primary healthcare professionals. We provide important content for the formulation of public policies for the implementation of specific activity programmes for people with COPD in community spaces using local resources and intersectoral partnerships.

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在巴西,慢性阻塞性肺病患者的生活及其对参加社区体育活动的心理影响:一项定性研究。来自 "好好呼吸 "小组的研究结果。
体育锻炼(PA)可改善慢性阻塞性肺病患者的呼吸困难、心理健康和生活质量(QoL),降低病情加重的风险。然而,参与体育锻炼的人数很少,尤其是那些患有焦虑症和抑郁症的患者,而且在巴西等资源有限的国家,体育锻炼计划也很有限。2020 年 10 月至 2021 年 4 月期间,我们通过半结构化电话访谈的方式,探讨了 21 名慢性阻塞性肺病患者对其疾病对参加巴西圣保罗社区 PA 项目的影响的看法。对讨论进行了录音、转录,并采用框架法进行了分析。确定了五个主题:对慢性阻塞性肺病及其管理的认识;对慢性阻塞性肺病患者生活的自我感知;对抑郁和焦虑的认识和体验;对 PA 的看法和 COVID-19 的反响。PA 被认为对身心健康有重要益处,但在获得正规的公共关系计划方面存在障碍,因此当地社区 PA 计划被认为非常重要。患有精神疾病的人往往对公共活动持否定态度。COVID-19 的患者参加体育锻炼的机会、接受慢性阻塞性肺病治疗的机会和社会交往的机会都减少了,而且病情加重和精神痛苦也更多了。总之,这项研究表明,迫切需要提高患者、公众和初级医疗保健专业人员对慢性阻塞性肺病及其风险因素和管理的认识。我们为公共政策的制定提供了重要内容,以便利用当地资源和跨部门合作,在社区空间实施针对慢性阻塞性肺病患者的具体活动计划。
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来源期刊
NPJ Primary Care Respiratory Medicine
NPJ Primary Care Respiratory Medicine PRIMARY HEALTH CARE-RESPIRATORY SYSTEM
CiteScore
5.50
自引率
6.50%
发文量
49
审稿时长
10 weeks
期刊介绍: npj Primary Care Respiratory Medicine is an open access, online-only, multidisciplinary journal dedicated to publishing high-quality research in all areas of the primary care management of respiratory and respiratory-related allergic diseases. Papers published by the journal represent important advances of significance to specialists within the fields of primary care and respiratory medicine. We are particularly interested in receiving papers in relation to the following aspects of respiratory medicine, respiratory-related allergic diseases and tobacco control: epidemiology prevention clinical care service delivery and organisation of healthcare (including implementation science) global health.
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