Kiran Rodrigues, Matthew Murphy, Helen E Jack, Justin Berk
{"title":"Participation With Compensation: Ethical Considerations for Research Payment Practices With People Who Are Incarcerated.","authors":"Kiran Rodrigues, Matthew Murphy, Helen E Jack, Justin Berk","doi":"10.1089/jchc.24.01.0002","DOIUrl":null,"url":null,"abstract":"<p><p>The participation of incarcerated individuals in research is necessary to appropriately address the health disparities that affect them and to adapt and implement health services for the carceral setting. Incarceration significantly impacts health, leading to negative outcomes including accelerated aging and increased mortality, with these effects disproportionately impacting communities of color. The U.S. Department of Health and Human Services' Office for Human Research Protections outlines ethical approaches to compensating individuals who participate in research activities, yet lacks specific guidance for payment within carceral settings. Historical abuses in carceral research underscore the persistent need for robust protections for incarcerated research participants. Existing regulations offer some protection but inadequately address ethical payment practices. Substantial variability in payment policies across carceral systems and vague national guidelines pose ethical challenges in ensuring equitable treatment for incarcerated research participants. We outline the ethical concerns related to compensating incarcerated individuals for participating in research and present a framework of approaches to payment. We argue for payment parity between incarcerated and community research participants. More community-engaged research is needed to understand the perspectives of incarcerated individuals on ethical payment.</p>","PeriodicalId":73693,"journal":{"name":"Journal of correctional health care : the official journal of the National Commission on Correctional Health Care","volume":" ","pages":"368-373"},"PeriodicalIF":0.0000,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11698665/pdf/","citationCount":"0","resultStr":null,"platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of correctional health care : the official journal of the National Commission on Correctional Health Care","FirstCategoryId":"1085","ListUrlMain":"https://doi.org/10.1089/jchc.24.01.0002","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"2024/10/28 0:00:00","PubModel":"Epub","JCR":"","JCRName":"","Score":null,"Total":0}
引用次数: 0
Abstract
The participation of incarcerated individuals in research is necessary to appropriately address the health disparities that affect them and to adapt and implement health services for the carceral setting. Incarceration significantly impacts health, leading to negative outcomes including accelerated aging and increased mortality, with these effects disproportionately impacting communities of color. The U.S. Department of Health and Human Services' Office for Human Research Protections outlines ethical approaches to compensating individuals who participate in research activities, yet lacks specific guidance for payment within carceral settings. Historical abuses in carceral research underscore the persistent need for robust protections for incarcerated research participants. Existing regulations offer some protection but inadequately address ethical payment practices. Substantial variability in payment policies across carceral systems and vague national guidelines pose ethical challenges in ensuring equitable treatment for incarcerated research participants. We outline the ethical concerns related to compensating incarcerated individuals for participating in research and present a framework of approaches to payment. We argue for payment parity between incarcerated and community research participants. More community-engaged research is needed to understand the perspectives of incarcerated individuals on ethical payment.
被监禁者有必要参与研究,以适当解决影响他们的健康差异问题,并针对监禁环境调整和实施健康服务。监禁严重影响健康,导致包括加速衰老和增加死亡率在内的负面结果,而这些影响对有色人种社区的影响尤为严重。美国卫生与公众服务部人类研究保护办公室(Office for Human Research Protections)概述了对参与研究活动的个人进行补偿的道德方法,但缺乏对在监禁环境中进行补偿的具体指导。囚禁研究中的历史性滥用强调了为被监禁的研究参与者提供有力保护的长期必要性。现有法规提供了一些保护,但对符合道德规范的付款行为却没有提供充分的指导。不同监狱系统的支付政策存在巨大差异,而国家指导方针又模糊不清,这给确保公平对待被监禁的研究参与者带来了伦理挑战。我们概述了与补偿参与研究的在押人员相关的伦理问题,并提出了一个付费方法框架。我们主张为被监禁者和社区研究参与者提供同等报酬。需要开展更多社区参与的研究,以了解被监禁者对伦理支付的看法。