A systematic review of educational interventions to enhance cancer awareness and screening in individuals with intellectual disabilities: A mixed-methods approach

IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Research in Developmental Disabilities Pub Date : 2024-11-02 DOI:10.1016/j.ridd.2024.104867
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Abstract

Background

Cancer awareness and screening among individuals with intellectual disabilities face unique challenges. To bridge this gap, educational interventions have been developed.

Aims

This review comprehensively analyzes educational interventions aimed at enhancing cancer awareness among individuals with intellectual disabilities (IDs). It addresses key questions regarding intervention types and effectiveness, influencing factors, and recommendations for impactful programs.

Methods and procedures

A robust search strategy was deployed across reputable databases yielding 2512 articles. After meticulous screening and eligibility assessments, eight studies met the inclusion criteria, encompassing qualitative research, a feasibility study, and randomized control trials.

Outcomes and results

The studies employed diverse interventions and assessment methods, leading to varying outcomes. Interventions included educational materials, communication packs, health education DVDs, and healthcare professional support, typically delivered over a short period with limited follow-up. Assessment methods comprised surveys, interviews, and knowledge surveys. However, a comprehensive evaluation of knowledge gains and screening uptake was often absent. While some studies reported modest increases in knowledge, none measured actual screening uptake and long-term effects. The strengths and limitations of these studies underscore the need for more comprehensive research in this area, considering factors such as sample size, study design, and long-term impact.

Conclusion and implications

In conclusion, this review provides valuable insights into educational interventions for cancer awareness among individuals with intellectual disabilities. Its comprehensive methodology and findings underscore the significance of tailoring interventions, extending their duration, and involving caregivers to optimize outcomes for this vulnerable population.
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对提高智障人士癌症意识和筛查的教育干预措施进行系统回顾:混合方法。
背景:智障人士对癌症的认识和筛查面临着独特的挑战。目的:本综述全面分析了旨在提高智障人士(IDs)癌症意识的教育干预措施。综述探讨了有关干预类型和效果、影响因素的关键问题,并就有影响力的项目提出了建议:在知名数据库中采用了强大的搜索策略,共搜索到 2512 篇文章。经过细致的筛选和资格评估,8 项研究符合纳入标准,其中包括定性研究、可行性研究和随机对照试验:这些研究采用了不同的干预措施和评估方法,导致了不同的结果。干预措施包括教育材料、交流包、健康教育 DVD 和医护人员支持,通常在短期内实施,后续跟踪有限。评估方法包括调查、访谈和知识调查。但是,往往缺乏对知识增长和筛查接受度的全面评估。虽然一些研究报告了知识的适度增长,但没有一项研究对筛查的实际接受率和长期效果进行衡量。这些研究的优势和局限性突出表明,有必要在这一领域开展更全面的研究,同时考虑样本量、研究设计和长期影响等因素:总之,本综述为智障人士认识癌症的教育干预提供了宝贵的见解。其全面的方法论和研究结果强调了量身定制干预措施、延长干预措施的持续时间以及让护理人员参与其中以优化这一弱势群体的治疗效果的重要性。
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来源期刊
CiteScore
5.50
自引率
6.50%
发文量
178
期刊介绍: Research In Developmental Disabilities is aimed at publishing original research of an interdisciplinary nature that has a direct bearing on the remediation of problems associated with developmental disabilities. Manuscripts will be solicited throughout the world. Articles will be primarily empirical studies, although an occasional position paper or review will be accepted. The aim of the journal will be to publish articles on all aspects of research with the developmentally disabled, with any methodologically sound approach being acceptable.
期刊最新文献
Being the other child - A systematic review on the quality of life and mental health of siblings of children with rare diseases SPAN-ASD: Pilot implementation to promote functional goals of autistic adolescents and young adults A systematic review of educational interventions to enhance cancer awareness and screening in individuals with intellectual disabilities: A mixed-methods approach Working memory training in students with dyslexia: Additional effects to reading and spelling remediation not likely The effectiveness of transcranial direct current stimulation (tDCS) on information processing speed in children with intellectual disability
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