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Making memories: The gestural misinformation effect in children aged 11-16-years-old with intellectual/developmental difficulties. 制造记忆:11-16 岁智力/发育障碍儿童的手势错误信息效应。
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-09-19 DOI: 10.1016/j.ridd.2024.104828

Background

In 2016, global records documented around 1 billion child abuse cases, with higher rates among children with Intellectual and Developmental Disabilities (IDD), and most recorded offenses not proceeding to court. Accurate eyewitness testimony is vital for the justice system. Yet, while children with IDD are known to be influenced by verbal misinformation, the effect of gestures on their testimony is still unknown.

Aims

The present study assessed the extent to which gesture can mislead children with IDD, alongside comparisons to prior research in typically developing (TD) children.

Method

A sample of children with moderate IDD aged 11–16 years (n = 21, M=12.95 years) were recruited from a UK school, and compared to TD 5–6-year-olds (n = 31, M=5.77 years) and 7–8-year-olds (n = 32, M=7.66 years) from previous published research. After watching a video participants underwent an interview containing 12 questions, some of which contained suggestive gestures.

Outcomes and Implications

Results demonstrated that in children with IDD, gesture observation significantly influenced responses given, with 18 of 21 children being misled at least once. Comparisons to TD children indicated no difference in suggestibility. This study is the first to examine how leading gestural information affects children with IDD, broadening previous research to a more representative sample for the justice system. Discussion centres on implications for police interview guidelines.

背景2016年,全球记录在案的虐待儿童案件约有10亿起,其中智力和发育障碍(IDD)儿童受虐率更高,且大多数记录在案的犯罪行为都未进入法庭审理程序。准确的目击证人证词对司法系统至关重要。本研究评估了手势在多大程度上会误导智障儿童,并将其与之前对典型发育(TD)儿童的研究进行了比较。方法从英国一所学校招募了 11-16 岁的中度 IDD 儿童样本(n=21,M=12.95 岁),并与之前发表的研究中 5-6 岁的 TD 儿童(n=31,M=5.77 岁)和 7-8 岁的 TD 儿童(n=32,M=7.66 岁)进行了比较。在观看视频后,参与者接受了包含 12 个问题的访谈,其中一些问题包含暗示性手势。结果和意义结果表明,对 IDD 儿童而言,手势观察会显著影响他们的回答,21 名儿童中有 18 名至少被误导过一次。与智障儿童相比,他们在受暗示性方面没有差异。这项研究首次考察了引导性手势信息对智障儿童的影响,将以往的研究扩展到了司法系统中更具代表性的样本。讨论的重点是对警方面谈指南的影响。
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引用次数: 0
EEG activation in preschool children: Characteristics and predictive value for current and future mental health status 学龄前儿童的脑电图激活:特征及对当前和未来心理健康状况的预测价值
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-09-16 DOI: 10.1016/j.ridd.2024.104840

Background

Previous research has characterised EEG changes associated with resting activation in primary school children and adults, while task-related activation has only been considered in adults. The current study characterises physiological activation in preschool children and examines the potential value of activation indices for predicting mental health status at two time points.

Aims

To investigate how resting activation and task-related activation are represented in 4- to 5-year-old preschool children and examine if these activation indices can predict current and future mental health status.

Methods and procedures

Frontal EEG was recorded from 81 preschool children during eyes-closed resting, eyes-open resting, and an inhibitory control task to allow calculation of activation indices. The Child Behaviour Checklist was completed by the child’s parent at this time, and again 6–8 months later after the child’s transition to kindergarten.

Outcomes and results

Resting activation was represented by reductions in frontal delta, theta, and alpha power in the eyes-open compared to eyes-closed condition, and an increase in frontal beta power. Task-related activation was represented by increases in frontal delta, theta, and alpha power and a decrease in beta power. Frontal delta and theta task-related activation significantly predicted externalising behaviours in both preschool and kindergarten, with stronger prediction in kindergarten.

Conclusions and implications

This study characterised resting and task-related activation in preschool children, and reported similar effects to those found in older children and adults for resting activation, with novel effects for task-related activation. As task-related activation indices were predictive of externalising behaviours in both preschool and kindergarten, these results have implications for early identification of children who experience externalising behavioural problems across the transition to school period.

What does this study add?

This study provides new data on how the fundamental physiological processes of resting and task-related activation, both of which are theorised to contribute to “upstream” processes such as executive functions and broader behaviour, are represented in the frontal EEG of preschool aged children. We also learn that the top-down task-related activation indices for delta and theta activity were predictive of current mental health status and future status after the transition to kindergarten, while the bottom-up resting activation indices were not.

背景以前的研究描述了与小学生和成人静息激活相关的脑电图变化,而与任务相关的激活只在成人中进行过研究。本研究分析了学龄前儿童的生理激活特征,并探讨了激活指数在两个时间点预测心理健康状况的潜在价值。方法和程序记录了 81 名学龄前儿童在闭眼休息、睁眼休息和抑制控制任务期间的额部脑电图,以便计算激活指数。结果:与闭眼休息时相比,睁眼休息时的额叶δ、θ和α功率下降,额叶β功率上升,这代表了休息时的激活。与任务相关的激活表现为额叶δ、θ和α功率的增加以及β功率的降低。额叶δ和θ任务相关激活对学龄前儿童和幼儿园儿童的外化行为有明显的预测作用,而对幼儿园儿童的预测作用更强。由于与任务相关的激活指数可预测学龄前儿童和幼儿园儿童的外化行为,因此这些结果对早期识别在向学校过渡期间出现外化行为问题的儿童具有重要意义。这项研究提供了新的数据,说明静息激活和与任务相关的激活这两种基本生理过程是如何在学龄前儿童的额叶脑电图中体现出来的。我们还了解到,δ和θ活动的自上而下的任务相关激活指数可以预测当前的心理健康状况和升入幼儿园后的未来状况,而自下而上的静息激活指数则不能。
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引用次数: 0
The effect of dual-task training on postural and cognitive performances in adolescents with down syndrome 双任务训练对唐氏综合征青少年姿势和认知能力的影响
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-30 DOI: 10.1016/j.ridd.2024.104827

Background

The dual task training (DTT) has been shown to improve postural and cognitive performances in many populations. Therefore, it seems of interest to explore the effect of such training modality in individuals with Down syndrome (DS) presenting both cognitive and postural deficits.

Aims

This study explored the effect of a DTT compared to a single task training (STT) on postural and cognitive performances in adolescents with DS.

Methods and procedures

The center of pressure velocity (CoPVm) and the cognitive performance in the selective word recall test were recorded under single task (ST) and DT conditions before and after 8 weeks in the STT group (STTG), the DTTG and the control group (CG).

Outcomes and results

Before training, CoPVm values increased and cognitive performances decreased (p < 0.001) during the DT compared to ST conditions in all groups. After training, CoPVm decreased (p < 0.001) in the DTTG and the STTG under the ST conditions. However, under DT conditions, these values decreased (p < 0.001) only in the DTTG. The cognitive performance increased (p < 0.001) only in the DTTG in both ST and DT conditions.

Conclusion

The DTT is strongly recommended to improve both postural and cognitive performances in individuals with DS notably in DT conditions.

背景双任务训练(DTT)已被证明可改善许多人群的姿势和认知表现。因此,探讨这种训练模式对同时存在认知和姿势缺陷的唐氏综合征(DS)患者的影响似乎很有意义。本研究探讨了与单一任务训练(STT)相比,DTT对唐氏综合征青少年姿势和认知表现的影响。方法和程序记录 STT 组 (STTG)、DTTG 和对照组 (CG) 8 周前和 8 周后在单一任务 (ST) 和 DT 条件下的压力中心速度 (CoPVm) 和选择性单词回忆测试中的认知表现。训练后,在 ST 条件下,DTTG 和 STTG 的 CoPVm 下降(p < 0.001)。然而,在 DT 条件下,只有 DTTG 的 CoPVm 值下降(p < 0.001)。结论:强烈建议使用 DTT 来改善 DS 患者的姿势和认知能力,尤其是在 DT 条件下。
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引用次数: 0
Editorial: Advancing understanding and care for individuals with developmental disabilities in the Middle East 社论:增进对中东发育障碍人士的了解和关爱
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-22 DOI: 10.1016/j.ridd.2024.104816
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引用次数: 0
Challenging behaviour, the application of restrictive measures and psychotropic drug prescription in people with intellectual disabilities 智障人士的挑战行为、限制性措施的应用和精神药物处方
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-22 DOI: 10.1016/j.ridd.2024.104824

Background

Prescribing of psychotropic drugs (PDs) and applying restrictive measures are both frequently used in managing challenging behaviour of people with intellectual disabilities (ID), which is not always according to guidelines or good clinical practice.

Aims

This study aimed to investigate the potential triangular relationship between challenging behaviour, the application of restrictive measures and PD prescription.

Methods and procedures

In this cross-sectional study, data on challenging behaviour, PD prescription and restrictive measures were collected. We defined and compared four mutually exclusive groups of participants.

Outcomes and results

Challenging behaviour in the group in whom one or more PD were prescribed as a restrictive measures (PDRM) was more severe than in the other three groups. More severe challenging behaviour, a higher number of antipsychotics, antidepressants and anxiolytics/hypnotics prescriptions, a lower dosage, and more application of domotics as restrictive measure was shown in the PDRM compared to the group in whom PDs were prescribed according to guidelines (PDNRM).

Conclusions and implications

We did not find indications for a triangular relationship of challenging behaviour, the application of restrictive measures and PD prescriptions. Future longitudinal research is needed to better understand this complex relationship and should investigate the indication and the effect of treatment.

What this paper adds?

This study is a first exploration of the potential triangular relationship between symptoms of challenging behaviour, psychotropic drug (PD) prescription, and the application of restrictive measures. Prescribing PDs and applying restrictive measures are two interventions which are commonly used to manage challenging behaviour in people with intellectual disabilities. Both have been subject of research separately in recent years. However, it is conceivable that the PD prescription in treatments for challenging behaviour could be a substitute for another form of a restrictive measure, for example a physical or mechanical restraint. For this purpose, we defined and compared four mutually exclusive groups of participants. We found no indication for this triangular relationship. On the other hand, we found the highest severity of challenging behaviour in the group who used PDs as restrictive measure next to other restrictive measures. Our results may suggest that both prescribing PDs and applying non-pharmacological restrictive measures are used simultaneously in managing challenging behaviour, are not sufficiently implemented or effective.

背景开具精神药物(PDs)处方和采取限制性措施都是管理智障人士挑战行为的常用方法,但这并不总是符合指南或良好的临床实践。我们定义并比较了四个相互排斥的参与者群体。结果与结果与其他三个群体相比,被处方一种或多种病理性行为限制性措施(PDRM)的群体的挑战行为更为严重。与根据指南处方 PD 的组别(PDNRM)相比,PDRM 组的挑战行为更严重,处方抗精神病药、抗抑郁药和抗焦虑药/催眠药的数量更多,用量更少,并且更多使用多动宁作为限制性措施。为了更好地理解这种复杂的关系,未来需要进行纵向研究,并应对治疗的适应症和效果进行调查。本研究首次探讨了挑战行为症状、精神药物处方和限制性措施应用之间可能存在的三角关系。开具精神药物处方和采取限制性措施是管理智障人士挑战行为的两种常用干预措施。近年来,对这两种干预措施分别进行了研究。然而,可以想象的是,在对挑战行为的治疗中,处方镇定剂可以替代另一种形式的限制性措施,例如物理或机械束缚。为此,我们定义并比较了四组相互排斥的参与者。我们没有发现这种三角关系的迹象。另一方面,我们发现在使用限制性行为器作为限制性措施的组别中,挑战行为的严重程度最高,仅次于其他限制性措施。我们的研究结果可能表明,在管理挑战性行为时,处方药物和采用非药物性限制措施同时使用,并没有得到充分实施或取得成效。
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引用次数: 0
Psychological variables related to technology-mediated intervention design in autism spectrum disorder 与自闭症谱系障碍技术干预设计相关的心理变量。
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-21 DOI: 10.1016/j.ridd.2024.104826

Background

Autism spectrum disorder (ASD) is a lifelong neurodevelopmental disorder characterized by persistent impairments in communication, social interaction and learning (Hodges et al., 2020). Because of its heterogeneous nature, ASD presents complex challenges, including social exclusion, school abandonment and limited access to health care. Technologies offer a pragmatic solution to overcome these limitations and to deliver therapeutic interventions in both physical and online environments. Studies have demonstrated that technology-mediated interventions (TMIs) have a positive impact on the development of capabilities of individuals with ASD. However, according to the European Parliament’s Research Service technologies for ASDs are less mature (European Parliament. Directorate General for Parliamentary Research Services., 2018) and the causes and effects of TMIs in ASD should be better understood.

Aims

Present study aimed to investigate the psychological variables related to TMIs in ASD.

Methods and procedures

The study employed a survey research method with a between-subjects design involving 61 adult participants comprising therapists, teachers and parents of children with ASD and it examined psychological variables related to children with ASD, factors of technology usage, and parental and educators’ experiences.

Outcomes and results

The analysis of the data obtained from the questionnaire focused on correlations and differences between groups, and was carried out using nonparametric tests. Kendall’s Tau B test was used to explore the relationships between variables. The Mann-Whitney nonparametric test was employed to identify differences between groups.

Conclusions and implications

The findings revealed numerous relationships between variables and meaningful differences between the groups investigated in terms of how technologies are perceived by stakeholders involved in ASD interventions.

背景:自闭症谱系障碍(ASD)是一种终身性神经发育障碍,其特点是持续存在沟通、社交和学习障碍(Hodges et al.)由于其异质性,ASD 带来了复杂的挑战,包括社会排斥、学校遗弃和获得医疗保健的机会有限。技术提供了一种务实的解决方案来克服这些限制,并在物理和网络环境中提供治疗干预。研究表明,以技术为媒介的干预(TMIs)对 ASD 患者的能力发展有积极影响。然而,据欧洲议会研究服务局称,针对自闭症的技术还不太成熟(欧洲议会。Directorate General for Parliamentary Research Services.,2018),应更好地了解 TMIs 在 ASD 中的原因和影响。研究目的:本研究旨在调查与 ASD 中 TMIs 相关的心理变量:本研究采用调查研究法和主体间设计,61 名成人参与者包括治疗师、教师和 ASD 儿童的家长,研究了与 ASD 儿童相关的心理变量、技术使用因素以及家长和教育工作者的经验:对问卷调查所得数据的分析主要集中在各组之间的相关性和差异上,并采用了非参数检验方法。Kendall's Tau B 检验用于探讨变量之间的关系。曼-惠特尼非参数检验用于确定组间差异:研究结果表明,在参与 ASD 干预的利益相关者对技术的看法方面,变量之间存在许多关系,调查组之间也存在有意义的差异。
{"title":"Psychological variables related to technology-mediated intervention design in autism spectrum disorder","authors":"","doi":"10.1016/j.ridd.2024.104826","DOIUrl":"10.1016/j.ridd.2024.104826","url":null,"abstract":"<div><h3>Background</h3><p>Autism spectrum disorder (ASD) is a lifelong neurodevelopmental disorder characterized by persistent impairments in communication, social interaction and learning (<span><span>Hodges et al., 2020</span></span>). Because of its heterogeneous nature, ASD presents complex challenges, including social exclusion, school abandonment and limited access to health care. Technologies offer a pragmatic solution to overcome these limitations and to deliver therapeutic interventions in both physical and online environments. Studies have demonstrated that technology-mediated interventions (TMIs) have a positive impact on the development of capabilities of individuals with ASD. However, according to the European Parliament’s Research Service technologies for ASDs are less mature (European Parliament. Directorate General for Parliamentary Research Services., 2018) and the causes and effects of TMIs in ASD should be better understood.</p></div><div><h3>Aims</h3><p>Present study aimed to investigate the psychological variables related to TMIs in ASD.</p></div><div><h3>Methods and procedures</h3><p>The study employed a survey research method with a between-subjects design involving 61 adult participants comprising therapists, teachers and parents of children with ASD and it examined psychological variables related to children with ASD, factors of technology usage, and parental and educators’ experiences.</p></div><div><h3>Outcomes and results</h3><p>The analysis of the data obtained from the questionnaire focused on correlations and differences between groups, and was carried out using nonparametric tests. Kendall’s Tau B test was used to explore the relationships between variables. The Mann-Whitney nonparametric test was employed to identify differences between groups.</p></div><div><h3>Conclusions and implications</h3><p>The findings revealed numerous relationships between variables and meaningful differences between the groups investigated in terms of how technologies are perceived by stakeholders involved in ASD interventions.</p></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":null,"pages":null},"PeriodicalIF":2.9,"publicationDate":"2024-08-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S0891422224001586/pdfft?md5=bd27bc5712c8feda62218c565660777e&pid=1-s2.0-S0891422224001586-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142037702","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
'Of course you crash' Parenting a young child with neurodevelopmental difficulties 你当然会撞车" 养育有神经发育障碍的幼儿
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-21 DOI: 10.1016/j.ridd.2024.104825

Background

Parents of children with neurodevelopmental disorders often experience heightened levels of parenting stress and diminished well-being. However, less is known about the well-being of parents whose children exhibit symptoms of neurodevelopmental disorders without yet having a formal diagnosis.

Aim

This study aims to deepen our understanding of the need for support among families with young children with neurodevelopmental difficulties. Specifically, it explores parents’ perspectives concerning their children, life circumstances, and emotional experiences in parenting.

Methods and procedures

Qualitative semi-structured interviews were conducted with ten parents of children aged 2.5–5 years, referred to a child psychologist due to reported neurodevelopmental difficulties. The interviews were transcribed and analysed using qualitative content analysis.

Outcomes and results

Two themes, each containing four and three categories, respectively, emerged in the analysis: Parenting our child with neurodevelopmental difficulties is tough in so many ways and Prevent, manage and make up like a Pro.

Conclusion and implications

The parents express very similar challenges, difficulties and problems as parents of children with diagnosed neurodevelopmental disorders. The main difference lies in the lack of accessible support or help for these parents.

What this paper adds

This study provides insights into how parents of children with suspected neurodevelopmental difficulties perceive their child and their overall life circumstances. The narratives show the challenges these parents face due to their children's multifaceted difficulties, leading to a need for multi-disciplinary support from professionals. The narratives also illustrate the strong emotions that arise in parenting, which in itself indicates a need for support. The study also provides further support for the importance of parents connecting with others facing similar life circumstances. The families often feel isolated despite the need for increased informal support in terms of more adults being involved with the children.

背景有神经发育障碍儿童的父母经常会感到育儿压力增大,幸福感降低。本研究旨在加深我们对有神经发育障碍幼儿的家庭对支持的需求的了解。具体而言,本研究探讨了家长对其子女、生活环境和养育子女过程中的情感体验的看法。方法和程序本研究对十位家长进行了半结构式定性访谈,这些家长的子女年龄在 2.5-5 岁之间,因神经发育障碍而被转介给儿童心理学家。结果和结果分析中出现了两个主题,每个主题分别包含四个和三个类别:养育有神经发育障碍的孩子在很多方面都很艰难,要像专业人士一样预防、管理和弥补。结论和启示家长们表达的挑战、困难和问题与确诊有神经发育障碍儿童的家长非常相似。本研究深入探讨了疑似神经发育障碍儿童的父母如何看待他们的孩子以及他们的整体生活状况。这些叙述表明,由于孩子存在多方面的困难,这些家长面临着各种挑战,因此需要专业人员提供多方面的支持。叙述还说明了在养育子女过程中产生的强烈情感,这本身就表明需要支持。这项研究还进一步证明了父母与其他面临类似生活环境的人建立联系的重要性。尽管需要更多的非正式支持,让更多的成年人参与到孩子的生活中来,但这些家庭往往感到孤立无援。
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引用次数: 0
Proprioceptive intervention improves reading performance in developmental dyslexia: An eye-tracking study 通过感觉干预提高发育性阅读障碍患者的阅读能力:眼动追踪研究
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-19 DOI: 10.1016/j.ridd.2024.104813

Developmental dyslexia is characterized by difficulties in learning to read, affecting cognition and causing failure at school. Interventions for children with developmental dyslexia have focused on improving linguistic capabilities (phonics, orthographic and morphological instructions), but developmental dyslexia is accompanied by a wide variety of sensorimotor impairments. The goal of this study was to examine the effects of a proprioceptive intervention on reading performance and eye movement in children with developmental dyslexia. Nineteen children diagnosed with developmental dyslexia were randomly assigned to a regular Speech Therapy (ST) or to a Proprioceptive and Speech Intervention (PSI), in which they received both the usual speech therapy and a proprioceptive intervention aimed to correct their sensorimotor impairments (prism glasses, oral neurostimulation, insoles and breathing instructions). Silent reading performance and eye movements were measured pre- and post-intervention (after nine months). In the PSI group, reading performance improved and eye movements were smoother and faster, reaching values similar to those of children with typical reading performance. The recognition of written words also improved, indicating better lexical access. These results show that PSI might constitute a valuable tool for reading improvement children with developmental dyslexia.

发育性阅读障碍的特点是学习阅读困难,影响认知,导致学业失败。对发育性阅读障碍儿童的干预主要集中在提高语言能力(语音、正字法和形态学指令)上,但发育性阅读障碍还伴有多种感官运动障碍。本研究旨在探讨本体感觉干预对发育性阅读障碍儿童阅读能力和眼球运动的影响。19名被诊断患有发育性阅读障碍的儿童被随机分配到常规言语治疗(ST)或本体感觉和言语干预(PSI)中,在后者中,他们同时接受常规言语治疗和旨在纠正其感觉运动障碍的本体感觉干预(棱镜眼镜、口腔神经刺激、鞋垫和呼吸指导)。干预前后(九个月后)对默读成绩和眼球运动进行了测量。在 PSI 小组中,阅读能力有所提高,眼球运动更加流畅和快速,达到了与具有典型阅读能力的儿童相近的数值。对书面单词的识别能力也有所提高,这表明他们能够更好地使用词汇。这些结果表明,PSI 可能是改善发育性阅读障碍儿童阅读能力的重要工具。
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引用次数: 0
Subjective well-being and social inclusion at school for students with a disability, according to their parents, in France 法国残疾学生在学校的主观幸福感和社会融入(根据其家长提供的信息)。
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-14 DOI: 10.1016/j.ridd.2024.104814

Background

Providing inclusive, quality education for all children is one of the United Nations' sustainable development goals for 2030.

Aims

The aim of this study, carried out in France among 491 parents of children with a disability aged 3 to 18 and enrolled in ordinary schools, is to measure the well-being and social inclusion of children and to identify the factors that promote well-being and social inclusion at school.

Methods and procedures

The parents fill in various questionnaires relating to the well-being and social inclusion of their child, the quality of their relationship with the teacher and their satisfaction with the accommodations offered at school. They also provide information about their child and their socio-economic situation.

Outcomes and results

Regression analyses show that well-being and social inclusion depend on the nature of the child’s disability and decrease with age but do not significantly depend on child’s gender and academic level or social background. Furthermore, well-being and social inclusion can be significantly improved when the quality of the parent-teacher relationship and school accommodations are satisfying.

Conclusions and implications

The results of this study encourage the development of quality parent-teacher relationships to promote well-being at school.

背景:为所有儿童提供全纳、优质教育是联合国 2030 年可持续发展目标之一:为所有儿童提供全纳优质教育是联合国 2030 年可持续发展目标之一。目的:本研究在法国进行,对象是 491 名在普通学校就读的 3 至 18 岁残疾儿童的家长,目的是测量儿童的幸福感和社会融入程度,并确定促进学校幸福感和社会融入程度的因素:方法和程序:家长填写各种问卷,内容涉及其子女的幸福感和社会融入程度、与教师关系的质量以及对学校提供的便利的满意度。他们还提供了有关其子女及其社会经济状况的信息:回归分析表明,幸福感和社会融入取决于儿童的残疾性质,并随着年龄的增长而降低,但与儿童的性别、学业水平或社会背景没有明显关系。此外,如果家长与教师关系的质量和学校提供的住宿条件令人满意,那么儿童的幸福感和社会融入程度就会明显提高:本研究的结果鼓励发展高质量的家长-教师关系,以促进学生在学校的幸福感。
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引用次数: 0
Needs of children with neurodevelopmental disorders and medical complexity: Caregiver perspectives 患有神经发育障碍和复杂病症的儿童的需求:照顾者的观点
IF 2.9 2区 医学 Q1 EDUCATION, SPECIAL Pub Date : 2024-08-13 DOI: 10.1016/j.ridd.2024.104815

Background

Caregivers of children with neurodevelopmental disorders and medical complexities (NDD-MC) coordinate care across complex multisectoral systems. Often NDD-MC children have complex behaviors, however there is limited information on coordination needs for families. Aim: The objective of this mixed methods study was to understand the needs of families with NDD-MC children. Methods and Procedures: This sequential exploratory study obtained the perspectives of 67 caregivers of NDD-MC children using semi-structured interviews and validated questionnaires to measure family quality of life, care integration, and resource use. An adapted model using Maslow’s hierarchy of needs was integrated, to understand the impacts of caregiving on quality of life. Outcomes and Results: Lack of support in caring for NDD-MC children negatively impacted family quality of life, resulting in various unmet needs, including caregiver burden, behavioural challenges, financial losses, and mental health issues. Caregivers dealt with a fragmented healthcare system that offered limited support to address coordination challenges. Conclusions and Implications: The implementation of a needs-based care coordination program is recommended to consider the health, educational, and social needs of NDD-MC children and their families. Effective care for children with complex needs should tailor support for families using Maslow’s hierarchy to enhance quality of life.

背景神经发育障碍和医疗复杂性(NDD-MC)儿童的照顾者需要在复杂的多部门系统中协调护理工作。NDD-MC 儿童通常有复杂的行为,但有关家庭协调需求的信息却很有限。目的:这项混合方法研究旨在了解 NDD-MC 儿童家庭的需求。方法和程序:这项顺序探索性研究通过半结构式访谈和有效问卷调查,了解了 67 名 NDD-MC 儿童照护者的观点,以衡量家庭生活质量、照护整合和资源使用情况。研究采用了马斯洛需求层次理论的改编模型,以了解护理工作对生活质量的影响。结果与成果:在照顾 NDD-MC 儿童方面缺乏支持对家庭生活质量产生了负面影响,导致各种需求得不到满足,包括照顾者的负担、行为挑战、经济损失和心理健康问题。照顾者需要应对分散的医疗保健系统,该系统提供的支持有限,难以应对协调方面的挑战。结论与启示:建议实施基于需求的护理协调计划,以考虑 NDD-MC 儿童及其家庭的健康、教育和社会需求。对有复杂需求的儿童进行有效护理时,应采用马斯洛层次理论为家庭提供量身定制的支持,以提高生活质量。
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引用次数: 0
期刊
Research in Developmental Disabilities
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