Research in Developmental Disabilities最新文献

{"title":"Measures of emotional well-being for individuals with intellectual disabilities: A scoping review of reviews","authors":"Sophie Hall ,&nbsp;Jessica B. Koslouski ,&nbsp;Caroline G. Richter ,&nbsp;Sandra M. Chafouleas","doi":"10.1016/j.ridd.2025.104940","DOIUrl":"10.1016/j.ridd.2025.104940","url":null,"abstract":"<div><h3>Objective</h3><div>This scoping review of reviews examines how one facet of quality of life, emotional well-being (EWB), has been assessed for individuals with intellectual disabilities (ID), including the characteristics of measures that have been designed, adapted, or administered to individuals in this population.</div></div><div><h3>Methods</h3><div>Following established practices for scoping reviews, we searched the ERIC, APA Psych Info, and Academic Search Premier databases in November 2022 for review articles that included measures of EWB that had been designed, adapted, or administered to individuals with ID. Following PRISMA guidelines, we conducted independent double coding at the title and abstract and full text review stages. From each included review article, we extracted the review’s purpose, EWB-related construct of interest, and EWB-related measure names and authors. We then located each measure and coded its items using <span><span>Park et al.'s (2023)</span></span> definition of EWB. We also coded the “non-EWB” domains assessed by these measures. We used the PRISMA Extension for Scoping Reviews (PRISMA-Scr) checklist to structure our manuscript.</div></div><div><h3>Results</h3><div>The scoping review identified 10 review articles that included 14 unique measures of EWB. Each of these measures included at least 1 item (<em>M</em> = 2.8) that assessed EWB. Quality of life was the most common EWB-related construct specified by review articles. Measures frequently assessed additional constructs beyond EWB, including self-determination, interpersonal relations, physical well-being, and material well-being.</div></div><div><h3>Conclusions</h3><div>In measures designed or adapted for individuals with ID, EWB is often included as a subcomponent of quality of life. Because of EWB’s link to positive social, emotional, behavioral, and health outcomes, research is needed to identify the most salient components of EWB for individuals with ID. This would allow for measures and interventions to be developed to promote EWB in this population.</div></div><div><h3>What this paper adds</h3><div>This study provides a scoping review of available measures of EWB that have been designed, adapted, or administered to individuals with ID. Study findings detail the characteristics of these measures, highlighting gaps in available EWB measures for children and adolescents with ID. We also found that emotional well-being is frequently assessed as a component of a broader construct (e.g., quality of life) using a small number of items. This suggests a need and opportunity for growth in further understanding emotional well-being assessment in individuals with ID.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"158 ","pages":"Article 104940"},"PeriodicalIF":2.9,"publicationDate":"2025-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143372702","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Underlying neurophysiological and biomechanical mechanisms related to postural control of children with Developmental Coordination Disorder differ from those in typically developing children","authors":"Daniela Godoi-Jacomassi ,&nbsp;Bouwien Smits-Engelsman ,&nbsp;Tatiane Targino Gomes Draghi ,&nbsp;Eloisa Tudella ,&nbsp;Dorothee Jelsma","doi":"10.1016/j.ridd.2025.104939","DOIUrl":"10.1016/j.ridd.2025.104939","url":null,"abstract":"<div><h3>Background</h3><div>Although many studies have provided important insights into postural control in children with Developmental Coordination Disorder (DCD), relevant aspects remain unresolved.</div></div><div><h3>Aims</h3><div>To investigate the underlying mechanisms related to postural control in children with and without DCD during standing tasks, using global, structural, and spectral descriptors of the Center of Pressure (CoP) trajectory.</div></div><div><h3>Methods</h3><div>Sixty-eight children (9.88 ± 0.96 years) participated in this study, divided into two groups: DCD and typically developing (TD) peers. Participants stood upright on a force platform for 30 seconds, under different conditions of vision (open or closed eyes), and surface (compliant or firm). To compute features from the CoP displacements, global, structural, and spectral analyses were employed.</div></div><div><h3>Outcomes and results</h3><div>The main results showed that children with DCD (a) displayed higher variability and velocity of the CoP displacement than TD children (global descriptors), (b) needed more postural commands to control balance when compared to TD children (structural descriptors), and (c) used sensory inputs differently when compared to TD children (spectral descriptors). Moreover, the differences between groups of children and the effects of vision and somatosensory inputs were task- and outcome-dependent.</div></div><div><h3>Conclusions and implications</h3><div>Postural deficits in children with DCD can be traced to an action problem based on poorer prediction (structural results) and a perception problem of environmental changes (spectral results). Structural descriptors can assess functional stability and changes in anticipatory commands, while spectral descriptors may indicate (in)adequate use of sensory information, which can help to choose the content of tasks in interventions.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"158 ","pages":"Article 104939"},"PeriodicalIF":2.9,"publicationDate":"2025-02-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143236996","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health-related quality of life and participation in adolescents: The role of ADHD, and co-occurrence of DCD","authors":"Shahar Zaguri-Vittenberg,&nbsp;Moriya Gellis,&nbsp;Hila Horovitz Hilman,&nbsp;Miri Tal-Saban","doi":"10.1016/j.ridd.2025.104938","DOIUrl":"10.1016/j.ridd.2025.104938","url":null,"abstract":"<div><h3>Background</h3><div>Attention-deficit hyperactivity disorder (ADHD) and developmental coordination disorder (DCD) are neurodevelopmental disorders that often co-occur. Existing research highlights impairments in participation and health-related quality of life (HRQoL) among individuals with a sole diagnosis of ADHD or DCD. Yet, there is a notable gap in understanding how the co-occurrence of these disorders, compare to a sole diagnosis, affect health-related outcomes. This study explored the participation and HRQoL of adolescents with a sole diagnosis of ADHD, and with co-occurring diagnoses of ADHD+DCD, compared to their typical peers.</div></div><div><h3>Methods</h3><div>Ninety-seven adolescents with ADHD (n = 29), co-occurring ADHD+DCD (n = 23), and their typically developing peers (n = 45), underwent an assessment battery to ensure their diagnostic status, and then completed the Child and Adolescent Scale of Participation and the Pediatric Quality of Life Inventory.</div></div><div><h3>Results</h3><div>There were no significant group differences in participation. However, adolescents with co-occurring ADHD+DCD exhibited significantly (<em>p</em> &lt; 0.05) lower physical and social HRQoL, compared to typical peers and adolescents with ADHD; and lower emotional and school-related HRQoL, compared to typical peers. Adolescents with ADHD demonstrated lower HRQoL compared to typical peers only in the school-related domain. Diagnosis status, including no diagnosis, a sole diagnosis of ADHD, or co-occurring ADHD+DCD, significantly accounted for 12.9 % of the overall HRQoL, beyond the influence of participation levels (25.3 %) and age and sex (4.2 %).</div></div><div><h3>Conclusion</h3><div>Co-occurrence of ADHD and DCD have a negative impact on multiple domains of HRQoL, which differs from the effect of a sole diagnosis of ADHD. The results reinforce the importance of considering the implications of co-occurring ADHD and DCD when planning interventions aimed at improving quality of life.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"158 ","pages":"Article 104938"},"PeriodicalIF":2.9,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143140523","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development of an efficient computerized adaptive test measuring children’s self-care performance","authors":"Cheng-Te Chen ,&nbsp;Kuan-Lin Chen ,&nbsp;Chien-Yu Huang","doi":"10.1016/j.ridd.2025.104929","DOIUrl":"10.1016/j.ridd.2025.104929","url":null,"abstract":"<div><h3>Background</h3><div>The Computerized Adaptive Test for Measuring Children’s Self-care Performance (CAT-SC) was developed with an interview administration approach for a limited population.</div></div><div><h3>Aims</h3><div>We developed a new CAT-SC (the CAT-SC-T) based on the original candidate item bank of the CAT-SC, using the caregiver-report approach and targeting children with and without disability.</div></div><div><h3>Methods and procedures design</h3><div>In this cross-sectional study in the general community, 1289 caregivers of children with and without disability were assessed with the original candidate item bank of the CAT-SC.</div></div><div><h3>Outcomes and results</h3><div>The item bank of the CAT-SC-T contained 69 items with unidimensionality. The three stopping rules were (1) administering a minimum of 10 items and a maximum of 16 items, (2) observing the first 10 items receiving the lowest scores, and (3) ensuring a reliability of self-care performance estimate of 0.95. From the simulation analyses, only 10–16 items were needed for each assessment to achieve good reliability and validity. The person reliability for most children (83.9 %) exceeded 0.95. Of the 16.1 % not meeting the 0.95 reliability criterion, 19 % (n = 39) were extreme responders. The good concurrent validity of the CAT-SC-T was proven by its very high correlation coefficient (<em>r</em> = 0.99) between the scores using the entire item bank and the estimated scores of the CAT-SC-T. Significant score differences between children with and without disability indicated good discriminant validity.</div></div><div><h3>Conclusions and implications</h3><div>The CAT-SC-T appears to be an efficient, reliable, and valid assessment of children’s self-care performance. The CAT-SC-T can be applied to children with and without disability.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"158 ","pages":"Article 104929"},"PeriodicalIF":2.9,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143140916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development of fluid intelligence in children and adolescents with cerebral palsy: A cross-sectional study","authors":"Daiki Asano ,&nbsp;Masaki Takeda ,&nbsp;Hirotaka Gima ,&nbsp;Satoshi Nobusako","doi":"10.1016/j.ridd.2025.104928","DOIUrl":"10.1016/j.ridd.2025.104928","url":null,"abstract":"<div><h3>Background</h3><div>Cerebral palsy (CP) often presents alongside cognitive developmental delays and motor impairments. This study aimed to identify the function most closely linked to the development of fluid intelligence in individuals with CP, and to estimate the point at which the fluid intelligence of children with CP diverges from that of typically developing (TD) children.</div></div><div><h3>Methods and procedures</h3><div>Raven’s Coloured Progressive Matrices (RCPM) were used to evaluate the fluid intelligence of participants. Fifty-one participants with CP aged 4–18 years and 33 TD children aged 3–9 years were included in this study and underwent RCPM testing. The severity of CP was assessed using the Gross Motor Function Classification System (GMFCS), Manual Ability Classification System (MACS) and Communication Function Classification System (CFCS).</div></div><div><h3>Results</h3><div>Multiple regression analysis demonstrated that within the three distinct functional levels, MACS was a significant predictor of fluid intelligence in children with CP (β = – 0.29, p &lt; 0.05). Significant disparities in the development of fluid intelligence between the CP and TD groups emerge after 57.6 months of age.</div></div><div><h3>Conclusions and implications</h3><div>The findings offer valuable insights into timely and functionally targeted interventions to prevent cognitive stagnation.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"158 ","pages":"Article 104928"},"PeriodicalIF":2.9,"publicationDate":"2025-02-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143140917","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and psychometric properties of the Italian little developmental coordination disorder questionnaire (LDCDQ-IT)","authors":"Barbara Caravale ,&nbsp;Anna Di Norcia ,&nbsp;Arianna Boiani ,&nbsp;Maria Teresa Giannini ,&nbsp;Silvia Baldi ,&nbsp;Lucilla Ravà ,&nbsp;Carlo Di Brina ,&nbsp;Tanya Rihtman","doi":"10.1016/j.ridd.2025.104923","DOIUrl":"10.1016/j.ridd.2025.104923","url":null,"abstract":"<div><h3>Background</h3><div>Early identification of Developmental Coordination Disorder (DCD) in children is fundamental to provide the best chance of improving their outcomes. The Little Developmental Coordination Disorder Questionnaire (LDCDQ) is a screening tool to identify preschool children who may warrant a diagnosis of DCD.</div></div><div><h3>Aims</h3><div>This study conducted a transcultural translation and adaptation of the Italian version of the Little Developmental Coordination Disorder Questionnaire (LDCDQ-IT) and evaluated the psychometric properties of the tool, establishing also the optimal cut-off scores.</div></div><div><h3>Methods and procedures</h3><div>Parents/carers of 3- and 4-year-old Italian preschoolers completed the LDCDQ-IT (n = 352 typically developing children; n = 24 children at risk for motor coordination problems). One sub-sample (n = 52) completed the LDCDQ-IT a second time; another sub-sample (n = 90) was assessed using the Movement Assessment Battery for Children (MABC-2).</div></div><div><h3>Results</h3><div>The LDCDQ-IT showed high internal consistency (α=0.96) and good test–retest reliability. Children’s age and gender did not influence total scores. Correlations obtained between the LDCDQ-IT and MABC-2 total scores (r = 0.52, p &lt; 0.001) suggest concurrent validity of the LDCDQ-IT. Using a cut-off score of ≤ 65, overall sensitivity and specificity were 79 % and 75 % respectively. Conclusions and implications: The LDCDQ-IT demonstrates promising psychometric properties, making it a useful tool for the early identification of DCD.</div></div><div><h3>What this paper adds?</h3><div>This study provides valuable insights into the psychometric properties and cut-off point for the Italian Little Developmental Coordination Disorder Questionnaire (LDCDQ-IT), a screening tool for identifying potential motor coordination problems in 3- and 4-year-old children. We observed good evidence of reliability, concurrent, and discriminative validity, proving that it may be a helpful questionnaire for assessing daily motor skills.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"158 ","pages":"Article 104923"},"PeriodicalIF":2.9,"publicationDate":"2025-02-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143069584","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of executive functions in preschool children with autism spectrum disorder: A short narrative review","authors":"Emanuela Petrolo ,&nbsp;Silvia Guerrera ,&nbsp;Maria Grazia Logrieco ,&nbsp;Laura Casula ,&nbsp;Stefano Vicari ,&nbsp;Giovanni Valeri","doi":"10.1016/j.ridd.2024.104905","DOIUrl":"10.1016/j.ridd.2024.104905","url":null,"abstract":"<div><div>Atypical executive functions (EFs) are well-documented in individuals with autism spectrum disorders (ASD) across all ages. However, most research focuses on EFs impairments in school-aged children and older, with less attention to preschool children. Understanding EF deficits in this age group is challenging and underexplored due to limited studies and measurement difficulties. The current short narrative review's aim is to provide an update on the knowledge on EFs in preschool children with ASD and their association with ASD symptoms. Despite varied results, recent research suggests early EF difficulties, potentially linked to greater impairments in social skills and externalizing behaviors. This suggests the importance of implementing early interventions that take into account the enhancement of these areas from an early age. Further investigation in this age group could enhance our understanding of ASD.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"157 ","pages":"Article 104905"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142966733","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Automated segmentation of child-clinician speech in naturalistic clinical contexts","authors":"Giulio Bertamini ,&nbsp;Cesare Furlanello ,&nbsp;Mohamed Chetouani ,&nbsp;David Cohen ,&nbsp;Paola Venuti","doi":"10.1016/j.ridd.2024.104906","DOIUrl":"10.1016/j.ridd.2024.104906","url":null,"abstract":"<div><h3>Background</h3><div>Computational approaches hold significant promise for enhancing diagnosis and therapy in child and adolescent clinical practice. Clinical procedures heavily depend n vocal exchanges and interpersonal dynamics conveyed through speech. Research highlights the importance of investigating acoustic features and dyadic interactions during child development. However, observational methods are labor-intensive, time-consuming, and suffer from limited objectivity and quantification, hindering translation to everyday care.</div></div><div><h3>Aims</h3><div>We propose a novel AI-based system for fully automatic acoustic segmentation of clinical sessions with autistic preschool children.</div></div><div><h3>Methods and procedures</h3><div>We focused on naturalistic and unconstrained clinical contexts, which are characterized by background noise and data scarcity. Our approach addresses key challenges in the field while remaining non-invasive. We carefully evaluated model performance and flexibility in diverse, challenging conditions by means of domain alignment.</div></div><div><h3>Outcomes and results</h3><div>Results demonstrated promising outcomes in voice activity detection and speaker diarization. Notably, minimal annotation efforts —just 30 seconds of target data— significantly improved model performance across all tested conditions. Our models exhibit satisfying predictive performance and flexibility for deployment in everyday settings.</div></div><div><h3>Conclusions and implications</h3><div>Automating data annotation in real-world clinical scenarios can enable the widespread exploitation of advanced computational methods for downstream modeling, fostering precision approaches that bridge research and clinical practice.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"157 ","pages":"Article 104906"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143016081","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effectiveness of Active Support on the quality of life and well-being of people with moderate to mild intellectual disabilities","authors":"Aniek van Herwaarden ,&nbsp;Nienke C. Peters-Scheffer ,&nbsp;Monique Mulders ,&nbsp;Vaso Totsika ,&nbsp;Robert Didden","doi":"10.1016/j.ridd.2025.104925","DOIUrl":"10.1016/j.ridd.2025.104925","url":null,"abstract":"<div><div>Active Support is a support model designed to enhance quality of life through activity engagement in people with intellectual disabilities. The aim of the current study was to investigate whether implementation of Active Support affected quality of life, well-being, and activity engagement of residents with mild to moderate intellectual disabilities, using a cluster randomised controlled design. Fourteen services were recruited, and Active Support was implemented after conducting baseline assessments. Residents in both the intervention group (<em>n</em> = 47) and the control group (<em>n</em> = 38) reported on their Quality of Life, eudaimonic well-being, and activity engagement at pretest and at follow-up 9 months after pretest. Level of Active Support implementation was monitored by observing the quality of support and practice leadership. Active Support had a significant effect on independence and well-being, two subscales of quality of life. Residents in the intervention group showed a significantly larger increase on social activity engagement compared to the control group. There were no significant interaction terms for other resident outcomes. For the intervention group, there was a significant increase in quality of support. Findings indicated significant impact on some aspects of quality of life, though not all. Suggestions for future research are therefore discussed.</div></div><div><h3>What this paper adds?</h3><div>Active Support is a support model that is increasingly adopted across several countries. Although there is considerable evidence that Active Support increases activity engagement for people with an intellectual disability, there are very few randomised controlled trials to test effectiveness, and the impact of Active Support on overall quality of life has never been examined. To address these gaps, the current study therefore evaluated the impact of Active Support on quality of life and resident well-being using a randomised controlled trial. This evaluation of Active Support contributes to the existing body of knowledge on the support model, strengthening its evidence base for people with moderate to mild intellectual disability.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"157 ","pages":"Article 104925"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143030245","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Empowering lives: How deinstitutionalization and community living improve the quality of life of individuals with intellectual and developmental disabilities","authors":"Patricia Navas ,&nbsp;Víctor B. Arias ,&nbsp;Eva Vicente ,&nbsp;Laura Esteban ,&nbsp;Verónica M. Guillén ,&nbsp;Natalia Alvarado ,&nbsp;Inés Heras ,&nbsp;Paula Rumoroso ,&nbsp;Laura García-Domínguez ,&nbsp;Miguel Ángel Verdugo","doi":"10.1016/j.ridd.2024.104909","DOIUrl":"10.1016/j.ridd.2024.104909","url":null,"abstract":"<div><h3>Background</h3><div>The number of people with intellectual and developmental disabilities (IDD) living in residential settings has not changed substantially in recent years in Spain. To change this situation the project “My House: A Life in the Community” aims to promote the transition of individuals with IDD and high support needs into community settings.</div></div><div><h3>Aims</h3><div>This paper deepens the understanding of the underlying mechanisms responsible for the changes observed in the process of deinstitutionalization.</div></div><div><h3>Methods</h3><div>A longitudinal study was designed to evaluate the quality of life of individuals with IDD (<em>n</em> = 90) across different environments at two distinct time points: when they were living in an institution and nine months after transitioning to a community-based setting. A comparison group (<em>n</em> = 72) consisting of individuals who remained institutionalized was included to carry out intergroup comparisons. <em>T</em>-tests were used to estimate mean differences both between and within groups. Longitudinal path models were used to investigate the processes underlying the relationships between variables.</div></div><div><h3>Results</h3><div>After transition, movers obtained significantly higher mean scores on all variables with large or very large effect sizes. However, simply moving to a different place was not the factor responsible for the observed improvements: positive changes in quality of life require the constant availability of opportunities to support decision making.</div></div><div><h3>Implications</h3><div>deinstitutionalization will only lead to improvements in quality of life if it favors people’s control over their lives. Community living should therefore be understood not as an autonomous life but as a chosen one.</div></div>","PeriodicalId":51351,"journal":{"name":"Research in Developmental Disabilities","volume":"157 ","pages":"Article 104909"},"PeriodicalIF":2.9,"publicationDate":"2025-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142973313","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}