Long-term effects of collaborative dementia care on quality of life and caregiver well-being.

IF 13 1区医学 Q1 CLINICAL NEUROLOGY Alzheimer's & Dementia Pub Date : 2024-11-19 DOI:10.1002/alz.14370

Katherine L Possin, Sarah Dulaney, Alissa B Sideman, Andrew J Wood, I Elaine Allen, Stephen J Bonasera, Jennifer J Merrilees, Kirby Lee, Winston Chiong, Tamara L Braley, Sarah Hooper, Mia Kanzawa, Rosalie Gearhart, Helen Medsger, Krista L Harrison, Lauren J Hunt, Rachel E Kiekhofer, Christopher Chow, Bruce L Miller, Elan L Guterman

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Abstract

Introduction: Collaborative dementia care models with care navigation, including the Care Ecosystem, improve outcomes for persons living with dementia (PLWDs) and their caregivers. The effects of continuous care over long periods have not been studied.

Methods: In this randomized clinical trial with 456 PLWD-caregiver dyads with high caregiver burden, we evaluated the cumulative 5-year treatment effect on PLWD quality of life, health care utilization, caregiver depression, self-efficacy, and burden.

Results: Five-year participation was associated with higher quality of life, lower caregiver depression, and higher caregiver self-efficacy (all p's < 0.05) with a trend for lower burden (p = 0.07). Treatment effects were most robust during the first 2 years. The effects on emergency department visits and hospitalizations were not significant.

Discussion: The benefits of collaborative dementia care on PLWD quality of life and caregiver well-being are sustained for 5 years, and the dyads may experience the greatest benefit during the first 2 years.

Highlights: Collaborative dementia care with care navigation was evaluated over 5 years using a randomized clinical trial. The care was associated with better quality of life for the person with dementia and well-being for the caregiver. The most robust treatment effects were in the first 2 years.

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痴呆症合作护理对生活质量和护理人员幸福感的长期影响。

导言：具有护理导航功能的痴呆症合作护理模式（包括护理生态系统）可改善痴呆症患者及其护理人员的治疗效果。目前尚未研究长期持续护理的效果：在这项随机临床试验中，我们对 456 个护理负担较重的痴呆症患者-护理者二人组进行了为期 5 年的累积治疗效果评估，包括痴呆症患者的生活质量、医疗保健利用率、护理者抑郁程度、自我效能和护理负担：结果：5 年的参与与较高的生活质量、较低的护理者抑郁和较高的护理者自我效能相关（所有 P 均为讨论值）：痴呆症合作护理对 PLWD 生活质量和护理者幸福感的益处可持续 5 年，在最初的 2 年中，双方可能会体验到最大的益处：通过一项随机临床试验，对为期5年的痴呆症协同护理和护理导航进行了评估。这种护理方式提高了痴呆症患者的生活质量和护理人员的幸福感。头两年的治疗效果最为显著。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Alzheimer's & Dementia 医学-临床神经学

CiteScore

14.50

自引率

5.00%

发文量

299

审稿时长

3 months

期刊介绍： Alzheimer's & Dementia is a peer-reviewed journal that aims to bridge knowledge gaps in dementia research by covering the entire spectrum, from basic science to clinical trials to social and behavioral investigations. It provides a platform for rapid communication of new findings and ideas, optimal translation of research into practical applications, increasing knowledge across diverse disciplines for early detection, diagnosis, and intervention, and identifying promising new research directions. In July 2008, Alzheimer's & Dementia was accepted for indexing by MEDLINE, recognizing its scientific merit and contribution to Alzheimer's research.