Evaluating family-centred care at BC Children's Hospital: Healthcare providers' perspectives

IF 2.1 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES Journal of evaluation in clinical practice Pub Date : 2024-11-20 DOI:10.1111/jep.14187

Tessa Kolar MSc, Courtney B. Cook MSc, CGC, Anthony Cooper MBChB, FRCSC, Tom Blydt-Hansen MDCM, FRCPC, Mary B. Connolly FRCP, MBBCH, Cyrus Boelman MD, Harpreet Chhina PhD, Anita Datta MD, Michelle Demos MD, FRCPC, Kyla J. Hildebrand MD, FRCPC, Kathryn Selby MBBCH, FRCPC, Ye Shen MPH, Scott E. Wenderfer MD, PhD, GenCOUNSEL Study, Alison M. Elliott PhD, CGC

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Abstract

Background

Family-centred care (FCC) emphasizes a partnership approach to care between healthcare providers (HCPs), patients, and families. FCC provides significant benefits to both children and families; however, challenges exist in implementing FCC into practice. This study aimed to explore HCPs' FCC behaviours in multidisciplinary specialty clinics at a tertiary pediatric health care center in Canada.

Methods

A demographic survey and the Measure of Processes of Care for Service Providers (MPOC-SP) questionnaire was administered to HCPs in five specialty clinics: orthopaedics, neurology, multi-organ transplant, immunology, and nephrology. Survey data were summarized using descriptive statistics. The association between possible predictor variables (ethnicity, gender, years in clinical practice) and MPOC-SP scores were analysed by analysis of variance (ANOVA) followed by post-hoc Tukey's test. Differences in scores across professional disciplines were analysed by multivariate analysis of variance (MANOVA) followed by ANOVA. Items rated lower (1–4 out of 7 by >33% of participants) were identified as potential areas for improvement.

Results

HCPs (N = 77) from all five clinics rated the MPOC-SP domain ‘Treating People Respectfully’ the highest (mean 6.00 ± 0.59) and ‘Providing General Information’ the lowest (mean 4.56 ± 1.27). HCPs with 5–10 years of experience had higher scores across all domains compared to HCPs with <5 years and >10 years of experience. There were no significant differences in scores based on ethnicity, gender, and professional discipline. Items rated lower (1–4 out of 7 by >33% of participants) involved providing general information and emotional support to families.

Conclusions

Providing general information and emotional support to patients and families are areas for improvement for all specialty clinics surveyed. Given genetic counsellors (GCs) expertise in education and counselling, GC integration in these clinics is one way in which FCC can be improved. Our study also shows that years of work experience influences HCPs' capacity to provide FCC.

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评估不列颠哥伦比亚省儿童医院以家庭为中心的护理：医疗服务提供者的观点

背景以家庭为中心的护理（FCC）强调医疗服务提供者（HCP）、患者和家庭之间的合作护理方法。以家庭为中心的护理为儿童和家庭带来了巨大的益处；然而，在实践中实施以家庭为中心的护理却面临着挑战。本研究旨在探讨加拿大一家三级儿科医疗保健中心的多学科专科门诊中医护人员的 FCC 行为。方法对骨科、神经内科、多器官移植科、免疫科和肾内科五个专科门诊的医疗保健人员进行了人口统计学调查和 "服务提供者护理流程测量"（MPOC-SP）问卷调查。调查数据采用描述性统计方法进行总结。通过方差分析（ANOVA）分析了可能的预测变量（种族、性别、临床执业年限）与 MPOC-SP 分数之间的关联，然后进行了事后 Tukey's 检验。不同专业学科之间的得分差异通过多变量方差分析（MANOVA）进行分析，然后进行方差分析。评分较低（1-4 分，满分 7 分，33% 的参与者评分较低）的项目被确定为潜在的改进领域。结果来自所有五家诊所的保健医生（N = 77）对 MPOC-SP 领域 "以礼待人 "的评分最高（平均值为 6.00 ± 0.59），对 "提供一般信息 "的评分最低（平均值为 4.56 ± 1.27）。与拥有 5 年和 10 年工作经验的保健医生相比，拥有 5-10 年工作经验的保健医生在所有领域的得分都较高。不同种族、性别和专业学科的得分没有明显差异。评分较低的项目（33% 的参与者评分为 1-4（满分 7 分））涉及向家庭提供一般信息和情感支持。结论为患者和家属提供一般信息和情感支持是所有接受调查的专科诊所需要改进的地方。鉴于遗传咨询师（GCs）在教育和咨询方面的专长，将遗传咨询师纳入这些诊所是改善 FCC 的一种方法。我们的研究还表明，工作年限会影响 HCP 提供 FCC 的能力。

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来源期刊

Journal of evaluation in clinical practice 医学-卫生保健

CiteScore

4.80

自引率

4.20%

发文量

143

审稿时长

3-8 weeks

期刊介绍： The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.