Gratitude Experience in Ten Patients with Spinal Muscular Atrophy: A Qualitative Study.

IF 2.8 3区心理学 Q2 PSYCHOLOGY, CLINICAL Psychology Research and Behavior Management Pub Date : 2024-11-15 eCollection Date: 2024-01-01 DOI:10.2147/PRBM.S480618

Shuang Dai, Lan Gao, Chao Zou, Minghui Ge, Junwei Zhou, Yinghua Yun

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Abstract

Objective: This study aimed to investigate the gratitude experience of young and middle-aged patients with spinal muscular atrophy (SMA) during hospitalisation to provide a theoretical basis for medical professionals to develop gratitude intervention programs.

Methods: Patients with SMA who were treated with nusinersen in the Department of Neurology of the First Hospital of Jilin University between April 20 and May 20, 2024 were selected using the purposive sampling method, and semi-structured interviews were conducted. The interview data were analysed using Colaizzi's 7-step analysis method.

Results: Four themes were extracted: gratitude stimulated positive emotions; gratitude enhanced life motivation; gratitude reflected the level of social support; and gratitude promoted life restructuring planning.

Conclusion: Patients with SMA have gratitude experience and their own perception of life. Strengthened feelings of gratitude could be helpful to the psychological resilience of patients, influence their view of life in a grateful way of thinking and help them actively plan all aspects of their lives, from daily living to social re-integration.

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十名脊髓肌肉萎缩症患者的感恩体验：定性研究。

研究目的本研究旨在调查中青年脊髓性肌萎缩症（SMA）患者在住院期间的感恩经历，为医务人员制定感恩干预方案提供理论依据：采用目的取样法选取2024年4月20日至5月20日期间在吉林大学第一医院神经内科接受奴西那生治疗的SMA患者，进行半结构式访谈。结果：提取了四个主题：感恩激发了积极情绪；感恩增强了生活动力；感恩反映了社会支持水平；感恩促进了生活重组规划：结论：SMA 患者有感恩体验和自己的生活感知。结论：SMA 患者有感恩体验和自己的生活感知，加强感恩情感有助于患者的心理复原，影响他们以感恩的思维方式看待生活，帮助他们积极规划从日常生活到重新融入社会的各个方面。

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来源期刊

Psychology Research and Behavior Management Multiple-

CiteScore

4.50

自引率

4.70%

发文量

341

审稿时长

16 weeks

期刊介绍： Psychology Research and Behavior Management is an international, peer-reviewed, open access journal focusing on the science of psychology and its application in behavior management to develop improved outcomes in the clinical, educational, sports and business arenas. Specific topics covered in the journal include: -Neuroscience, memory and decision making -Behavior modification and management -Clinical applications -Business and sports performance management -Social and developmental studies -Animal studies The journal welcomes submitted papers covering original research, clinical studies, surveys, reviews and evaluations, guidelines, expert opinion and commentary, case reports and extended reports.