Idiopathic normal pressure hydrocephalus: A critical analysis of its underrepresentation across Italian medical-scientific societies in the last 5 years.

Gianpaolo Petrella, Giuseppe Demichele, Daniele Armocida, Graziano Taddei, Alessandro Frati, Angelo Pompucci, Alessandro Pesce
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Abstract

Background: The scientific debate concerning clinical, translational and surgical aspects of iNPH could still be limited in respect to the incidence of this condition. The aim of this paper is to systematically assess the extent of the debate on INPH in the context of the congresses of the relevant medical and scientific societies in our Country.

Methods: We thoroughly examined the websites and scientific programs of 12 leading scientific societies linked to medical specialities involved in diagnosis and management of INPH, among which the neurological, neurosurgical, neurophysiological, rehabilitation medicine and urologic societies. The amount of time (in hours) was examined in a time span of events which took place between 2019 and 2023.

Results: Notably, across 4 years (2019-2023), a total of 7 out of 12 (58.3%) of the aforementioned leading scientific societies dedicated a total of zero minutes to the topic "iNPH", two further societies hosted talks for a total of less than one hours concerning such condition. The amount of time dedicated to giant intracranial aneurysms and vestibular schwannomas was in respect to the incidence of the conditions, significantly longer than the time spent debating on iNPH.

Conclusions: The results demonstrates that in our country, despite the high and increasing incidence of INPH, the awareness raised on the topic could still be limited, especially compared to other, significantly rarer intracranial conditions such as giant intracranial aneurysms and vestibular schwannomas.

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特发性正常压力脑积水:过去 5 年意大利医学科学协会对其代表性不足的批判性分析。
背景:就 iNPH 的发病率而言,有关 iNPH 的临床、转化和外科方面的科学讨论仍然有限。本文旨在系统地评估在我国相关医学和科学学会大会上就 INPH 进行讨论的程度:我们全面检查了 12 个主要科学协会的网站和科学计划,这些协会与涉及 INPH 诊断和管理的医学专业有关,其中包括神经学、神经外科、神经生理学、康复医学和泌尿学协会。在 2019 年至 2023 年期间发生的事件的时间跨度中,对时间量(小时)进行了研究:值得注意的是,在 4 年内(2019-2023 年),上述 12 个主要科学学会中,共有 7 个学会(58.3%)在 "iNPH "这一主题上总共花费了 0 分钟,另有两个学会举办的有关该疾病的讲座总共不到 1 小时。与颅内巨大动脉瘤和前庭裂头瘤的发病率相比,讨论这两种疾病的时间明显长于讨论 iNPH 的时间:结果表明,在我国,尽管 INPH 的发病率很高且在不断上升,但人们对这一主题的认识仍然有限,尤其是与其他更为罕见的颅内疾病(如颅内巨大动脉瘤和前庭裂神经瘤)相比。
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