Parental care experience of children with type 1 diabetes: a qualitative meta-synthesis.

Revista da Escola de Enfermagem da U S P Pub Date : 2024-11-11 eCollection Date: 2024-01-01 DOI:10.1590/1980-220X-REEUSP-2024-0118en
Zhaoying Zhang, Xin Wang, Wenwen Dong, Danshan Gao
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Abstract

Objective: To assess qualitative studies on parents' caregiving experiences whose children have T1DM and develop personalized support strategies based on the findings.

Method: A systematic review with meta-synthesis performed in the Cochrane Library, Embase, Scopus, CINAHL, PubMed, Web of Science, CNKI, CBM, VIP, and Wanfang databases. Quality was assessed via the JBI criteria, and meta-aggregative method was applied to categorize the results into subtopics and aggregate into three interrelated meta-topics to understand parents' caregiving experiences.

Results: In total, 2,100 articles were found, out of which 15 were selected and analyzed. The identified three meta-topics were "Parents facing multiple physical, mental and life challenges", "Parents' lack of a full range of external support" and "Parents' caregiving role competency enhanced to adjust to the new life".

Conclusion: it is critical for healthcare professionals to recognize these parental experiences and offer targeted knowledge, skills training, and psychological support tailored to their needs, including group training, online mindfulness interventions, and improved empathy from the medical team.

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1 型糖尿病患儿父母的护理经验:定性荟萃。
目的评估有关T1DM患儿父母护理经验的定性研究,并根据研究结果制定个性化的支持策略:方法:在 Cochrane Library、Embase、Scopus、CINAHL、PubMed、Web of Science、CNKI、CBM、VIP 和 Wanfang 数据库中进行系统综述和元综合。根据 JBI 标准对研究质量进行评估,并采用元汇总法将研究结果归类为子主题,汇总为三个相互关联的元主题,以了解父母的护理经验:共找到 2,100 篇文章,从中选出 15 篇进行分析。确定的三个元主题分别是 "父母面临身体、精神和生活上的多重挑战"、"父母缺乏全方位的外部支持 "和 "父母的护理角色能力得到提高,以适应新生活"。结论:医护人员必须认识到父母的这些经历,并根据他们的需求提供有针对性的知识、技能培训和心理支持,包括小组培训、在线正念干预和提高医疗团队的同理心。
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