The Kids Hurt App: Development and testing of a web-based, pain self-report app for First Nations youth.

IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES JMIR Human Factors Pub Date : 2024-11-27 DOI:10.2196/48370

Karlee Francis, Margot Latimer, Hayley Gould, Shante Blackmore, Emily MacLeod

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Abstract

Background: First Nations children and youth may have unique ways to convey their health needs that have not been recognized by health providers. This may contribute to the disparity between high rates of mental health and physical pain and the low rates of treatment for the conditions they experience. Evidence suggests a colonial history has resulted in poor experiences with the healthcare system, lack of trust with health providers and miscommunication between clinicians and patients. Contemporary ways using both Indigenous and Western knowledge is needed to bridge the gap in communicating pain.

Objective: The aim of this qualitative study was to test the usability and clinical feasibility of the Kids Hurt App with First Nations youth and clinicians working with youth.

Methods: Using a Two-Eyed Seeing approach, the Kids Hurt App was developed using concepts from validated mood and pain assessment apps combined with community-based research that gathered First Nations youth and clinicians perspectives on quality, intensity and location of pain and hurt. The Kids Hurt App contains 16 screens accessible on any web-based device.

Results: Three rounds of low-fidelity testing (n=19), two rounds of high-fidelity testing (n=20) and two rounds of clinical feasibility testing (n=10) were conducted with First Nations youth (10-19 years) to determine the relevance, validity and usability of the Kids Hurt App. High-fidelity testing was also conducted with 15 clinicians after completing the high-fidelity youth sessions. Youth had constructive suggestions that were used to improve the app in subsequent rounds of version testing. There was one main discrepancy between youth and clinicians related to a visual in their preference for way to convey pain. Youth's preference was maintained in the app.

Conclusions: All youth in all rounds of testing indicated they would use the Kids Hurt App if it was available to them in a health care setting with most clinicians noting the app would be useful in practice.

Clinicaltrial:

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儿童伤害应用程序：为原住民青少年开发和测试基于网络的疼痛自我报告应用程序。

背景：原住民儿童和青少年可能会以独特的方式表达他们的健康需求，而这些需求并未被医疗服务提供者所认识。这可能是造成他们心理健康和身体疼痛的高发率与低治疗率之间存在差异的原因。有证据表明，殖民历史导致了他们在医疗保健系统中的不良经历、对医疗服务提供者缺乏信任以及临床医生与患者之间的沟通不畅。因此，需要利用土著和西方知识的现代方法来弥合沟通疼痛方面的差距：这项定性研究的目的是测试 "孩子受伤了 "应用程序在原住民青少年和临床医生中的可用性和临床可行性：方法：采用 "双眼观察法"（Two-Eyed Seeing），利用经过验证的情绪和疼痛评估应用程序的概念，结合基于社区的研究，收集原住民青少年和临床医生对疼痛和伤害的质量、强度和位置的看法，开发了 "儿童伤害 "应用程序。儿童伤害应用程序包含 16 个屏幕，可在任何网络设备上访问：对原住民青少年（10-19 岁）进行了三轮低保真测试（19 人）、两轮高保真测试（20 人）和两轮临床可行性测试（10 人），以确定儿童伤害应用程序的相关性、有效性和可用性。在完成高保真青少年课程后，还对 15 名临床医生进行了高保真测试。青少年提出了建设性的建议，这些建议被用于在随后的版本测试中改进该应用程序。青少年和临床医生之间的一个主要差异与他们对视觉传达疼痛方式的偏好有关。结论：所有参加测试的青少年都表示，如果在医疗机构中可以使用 "孩子受伤了 "应用程序，他们会使用该应用程序：

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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