Storytelling near the end-of-life: Contingency modes in conversations with relatives of patients receiving palliative care: A qualitative study.

IF 2.1 4区 医学 Q2 PSYCHOLOGY, MULTIDISCIPLINARY Death Studies Pub Date : 2024-12-02 DOI:10.1080/07481187.2024.2435924
Ulla Näppä, Marie Häggström
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Abstract

This article explores the role of end-of-life conversations between palliative home-care patients and their relatives in shaping the bereavement process. Through interviews with 17 bereaved relatives, four distinct modes of contingency were identified: denial, acknowledgment, accepting, and receiving. While some individuals remained in a single mode, others transitioned through all four, suggesting a deeply personal process independent of external influences. The findings underscore the importance of healthcare providers facilitating these conversations, as they can help relatives process emotions and support their grieving. By addressing these modes, caregivers can aid relatives in becoming compassionate advocates for patients nearing death. The study highlights the need for further research into strategies for supporting relatives in navigating these modes, potentially enhancing bereavement care practices.

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临终前讲故事:与接受姑息治疗的患者亲属对话中的偶然性模式:一项定性研究。
本文探讨临终关怀家庭护理患者和他们的亲属之间的对话在塑造丧亲过程中的作用。通过对17位丧亲的访谈,我们确定了四种不同的偶然性模式:否认、承认、接受和接受。虽然有些人仍然处于单一模式,但其他人则经历了这四种模式的过渡,这表明这是一个独立于外部影响的深刻的个人过程。研究结果强调了医疗服务提供者促进这些对话的重要性,因为他们可以帮助亲属处理情绪并支持他们的悲伤。通过解决这些模式,护理人员可以帮助亲属成为接近死亡的患者的富有同情心的倡导者。该研究强调需要进一步研究支持亲属在这些模式中导航的策略,这可能会加强丧亲护理实践。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
Death Studies
Death Studies Multiple-
CiteScore
8.30
自引率
7.90%
发文量
94
期刊介绍: Now published ten times each year, this acclaimed journal provides refereed papers on significant research, scholarship, and practical approaches in the fast growing areas of bereavement and loss, grief therapy, death attitudes, suicide, and death education. It provides an international interdisciplinary forum in which a variety of professionals share results of research and practice, with the aim of better understanding the human encounter with death and assisting those who work with the dying and their families.
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